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Switch From Culturelle To Align Based On Bifidobacteria. Thoughts?


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#1 powerofpositivethinking

 
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Posted 28 June 2013 - 10:14 AM

So I've been taking Culturelle for a few months now, and my digestion is improving, but after reading Real Life with Celiac Disease by Dennis and Leffler, I am thinking about switching brands based on this excerpt from p. 283 of their book:

 

"Most probiotics, in fact, are able to affect the intestinal barrier function favorably, increasing its tightness and reducing the inflammation.  And there is also experimental evidence that some probiotics (especially Bifidobacteria) are capable of preventing the gliadin-induced toxicity to the intestinal lining.  In addition, research has shown that children with celiac disease differ from their healthy counterparts in the composition of the kinds and amounts of naturally occurring intestinal bacteria (microflora). They have lesser numbers of some species (again, especially Bifidobacteria) in their small and large intestines, and their content of bacteria is, in general, less diverse, with fewer strains present.  Also, research showed that bacteria in stool samples from treated or untreated patients with celiac disease can stimulate inflammation in the intestine.  When some Bifidobacteria are added to such preparations, there is much less inflammatory effect."

 

In the case study for this chapter they end up recommending the patient to take Align because it has the Bifidobacteria in it, but it also has casein in it.  I have been avoiding dairy, but I'm wondering since Align contains this strain that's been showed to be very beneficial, should I try it instead?  I gave up dairy because of going gluten-free.  I've never been a fan of it anyway.  I drink one glass of milk and get a bunch of mucus in my throat.  Cheese and yogurt seem to be fine, so I'm thinking maybe it is lactose, although I haven't had a lactose intolerance test.  Do you think the minimal amount of casein would be fine?  Did anyone switch from Culturelle to Align and notice a change?  

 


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Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


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#2 IrishHeart

 
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Posted 28 June 2013 - 12:02 PM

Culturelle has lactobacillis GG in it--which is great for diarrhea. If you do not suffer D, you do not need that one.

 

Any other multi -strain probiotic with bifidobacteria in it will  cover all the bases.

 

I use this one

 

http://www.custompro...ormula-cp-1.htm

 

 

On the Align website FAQ section:
When did you remove the language "this product does not contain lactose, soy, or gluten" from the Align label? Has Align changed?
The Align product has not changed. At this time, we do not test for lactose, soy or gluten in Align and as of October 2012 are no longer stating "this product does not contain lactose, soy, or gluten" on the label.

 

 

Just so you know. 


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#3 powerofpositivethinking

 
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Posted 28 June 2013 - 01:23 PM

Irish-thanks for the info!  I did see that disclaimer on their site  :(   I didn't really know what the different strains did until I read that book, so now I really want to take one with bifidobacteria after reading the above page.  I appreciate the link to the probiotics you take, and I'm thinking I'll order those.  While I'm at it  :) , what are your recommendations about digestive/pancreatic enzyme brands?  Before gluten-free, I had the big C, now I'm going regularly thankfully but sometimes have loose stools, with clearly visible fruits and veggies in them...yuck!  I understand I need to let my body heal, but how can I help my food break itself down more so I can hopefully absorb my nutrients better?  

 

PS-in another topic I posted you recommended reading Real Life with Celiac Disease.  Thank you!  It is a fantastic book  :)

 

Culturelle has lactobacillis GG in it--which is great for diarrhea. If you do not suffer D, you do not need that one.

 

Any other multi -strain probiotic with bifidobacteria in it will  cover all the bases.

 

I use this one

 

http://www.custompro...ormula-cp-1.htm

 

 

On the Align website FAQ section:
When did you remove the language "this product does not contain lactose, soy, or gluten" from the Align label? Has Align changed?
The Align product has not changed. At this time, we do not test for lactose, soy or gluten in Align and as of October 2012 are no longer stating "this product does not contain lactose, soy, or gluten" on the label.

 

 

Just so you know. 


  • 0

Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#4 IrishHeart

 
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Posted 28 June 2013 - 01:54 PM

I think that book is pretty fantastic too. Full of great info. 

 

You are pretty early in the healing phase, so your bowels are still a bit wonky.

 

I think the custom probiotics will help you immensely. I was in dire shape when Dxed and they have really "righted the ship" for me.

My 12 years of so-called  "IBS"...history.

 

Digestive enzymes are necessary when you have pancreatic insufficiency. They do not  act to "grind food down" per se

if that is what you are thinking by asking about pieces of food in your stool.

 

From the Mayo Clinic: "Occasionally, you may see undigested food fragments in stool. This usually is high-fiber vegetable matter, which isn't digested by the enzymes in your digestive tract. Undigested food in stool generally isn't a problem unless it's accompanied by persistent diarrhea, weight loss or other changes in your bowel habits. "

 

Does that help? If it matters, I see pieces of fibrous veggies there myself sometimes, but my stool is healthy.

(gosh, the things we divulge on here huh? )  :lol:

 

If you had trouble with fats and carbs, you would need digestive enzymes.

 

You can try them if you want, of course!. I used Digest Gold at the beginning because my GI tract was a total mess and it took me

a long time to heal. 


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#5 powerofpositivethinking

 
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Posted 28 June 2013 - 02:46 PM

sold!  I just ordered the probiotics.  Yep it's usually veggies and fruits I see.  I'm trying to get more Vitamin K to up my level, but it looks like my effort in getting those leafy greens is money flushed down the toilet :D  I know it's normal to see some undigested food, but I just don't know how much.  I had trouble with nuts and coconut which I thought the fiber/fat combination in those might have just been too much.  I haven't tried nuts/coconut since early April.  It's about time I give them a try again, but I think I will wait until 4th of July travel time is over :lol:   I think digesting fat does give me some problems, but I'll start with the probiotics and give my body some time to adjust and see how it goes.  Have a great weekend, Irish!

 

I think that book is pretty fantastic too. Full of great info. 

 

You are pretty early in the healing phase, so your bowels are still a bit wonky.

 

I think the custom probiotics will help you immensely. I was in dire shape when Dxed and they have really "righted the ship" for me.

My 12 years of so-called  "IBS"...history.

 

Digestive enzymes are necessary when you have pancreatic insufficiency. They do not  act to "grind food down" per se

if that is what you are thinking by asking about pieces of food in your stool.

 

From the Mayo Clinic: "Occasionally, you may see undigested food fragments in stool. This usually is high-fiber vegetable matter, which isn't digested by the enzymes in your digestive tract. Undigested food in stool generally isn't a problem unless it's accompanied by persistent diarrhea, weight loss or other changes in your bowel habits. "

 

Does that help? If it matters, I see pieces of fibrous veggies there myself sometimes, but my stool is healthy.

(gosh, the things we divulge on here huh? )  :lol:

 

If you had trouble with fats and carbs, you would need digestive enzymes.

 

You can try them if you want, of course!. I used Digest Gold at the beginning because my GI tract was a total mess and it took me

a long time to heal. 


  • 0

Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#6 IrishHeart

 
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Posted 28 June 2013 - 04:11 PM

sold!  I just ordered the probiotics.  Yep it's usually veggies and fruits I see.  I'm trying to get more Vitamin K to up my level, but it looks like my effort in getting those leafy greens is money flushed down the toilet :D  I know it's normal to see some undigested food, but I just don't know how much.  I had trouble with nuts and coconut which I thought the fiber/fat combination in those might have just been too much.  I haven't tried nuts/coconut since early April.  It's about time I give them a try again, but I think I will wait until 4th of July travel time is over :lol:   I think digesting fat does give me some problems, but I'll start with the probiotics and give my body some time to adjust and see how it goes.  Have a great weekend, Irish!

 

Not entirely "flushed down the toilet", hon! ..Any leafy greens you eat are doing great work! Just because you "see some of them" does not mean you are not absorbing

a great deal of them!! Keep eating them. Do not worry if you "see them" okay? 

Cukes are a good source of Vit K. too . :)

 

Kiddo, try the shredded coconut before the nuts. wait a week in between trials.

Coconut flour and coconut oil...Non abrasive and good for you!

 

Ever try baking with coconut flour? yum

http://www.marksdail.../#axzz2XYjuu1kt


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#7 powerofpositivethinking

 
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Posted 29 June 2013 - 04:53 AM

got it  :)

 

Any leafy greens you eat are doing great work! Just because you "see some of them" does not mean you are not absorbing

a great deal of them!! Keep eating them. Do not worry if you "see them" okay? 

 

 

 


  • 0

Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#8 IrishHeart

 
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Posted 29 June 2013 - 04:56 AM

got it  :)

 

giving-thumbs-up-winking-smiley-emoticon

 

hang in there, kiddo!!!


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#9 dilettantesteph

 
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Posted 29 June 2013 - 05:44 AM

The studies I saw: http://www.ncbi.nlm....pubmed/23314670

http://www.ncbi.nlm....pubmed/16863564

were for Bifidobacterium infantis 35624

 

Along with Align, Natren makes a product containing it, and they have a formulation that uses goats milk instead of cow milk.  My son and I have both been taking the Align and I think that it does make us less sensitive to gluten.  We both notice when we miss a day.  We both tolerate milk.


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#10 notme!

 
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Posted 29 June 2013 - 08:54 AM

i just started taking a probiotic last week (culturelle) - i tried an align 'knockoff' (i think the cvs brand) when i was first dx'd but i didn't realize that *everything* wasn't going to sit well right in the beginning.  i thought it was making me worse!  anyways, i am taking it 1x a day.  it says you can take 2 a day.  will too much make you sick?   when is the best time to take it - i guess with food?  before food?  after food?  i'm a little sheepish, here, because i am so surprised it's helping ME when i know it's good for OTHERS lolz   :ph34r:


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arlene

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just as i was getting my affairs in order to die of malnutrition...
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blood test negative
celiac confirmed by endoscopy 9/2010

 

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have a nice day :)

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#11 IrishHeart

 
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Posted 29 June 2013 - 12:04 PM

The wonderful man from Custom probiotics tells people to take them on an empty stomach.

First thing in the morning or at bed time.

 

One a day is sufficient, unless you have really bad D? (take 2 until you get it under control)

 

or gastroenteritis.

I had "the flu" last February. Just horrid. I have not been sick like that in years. fever, no appetite, body aches, spacey head, headache...etc. Made me cry

it was so bad. Not kidding. I started reading what the hell can we do for the "stomach flu". anyway??

 

Medical articles say it is really just "gastroenteritis", which is inflammation in the gut and since probiotics reduce inflammation, I started thinking......(dangerous, I know  :lol: )

When I could not stop the D or the painful abdomen --this went on for days and days and days- 

I took a dose of probiotics every few hours. I did that all day long with lots of water..

 

Got rid of it within 24 hours.

Bowels back to normal. Felt great.  

 

I tell ya, I am a huge probiotic believer.!! :)

 

Turns out, most "stomach bugs/flus" are just gastroenteritis, my GI confirms.


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#12 powerofpositivethinking

 
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Posted 01 July 2013 - 04:50 AM

ok good to know!  In the morning, I take my three Citrucel with water wait a little bit and then take my Culturelle then eat some breakfast.  I don't know if taking the Citrucel before alters the performance of a probiotic, but Cit. helps get me going in the morning, so at this point, I don't skip it  :)  Maybe I'll start taking them at night when I get the new probiotic.  

 

anyone notice a difference depending on the time of day you take the probiotic?

 

The wonderful man from Custom probiotics tells people to take them on an empty stomach.

First thing in the morning or at bed time.

 


  • 0

Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#13 IrishHeart

 
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Posted 01 July 2013 - 05:30 AM

ok good to know!  In the morning, I take my three Citrucel with water wait a little bit and then take my Culturelle then eat some breakfast.  I don't know if taking the Citrucel before alters the performance of a probiotic, but Cit. helps get me going in the morning, so at this point, I don't skip it  :)  Maybe I'll start taking them at night when I get the new probiotic.  

 

anyone notice a difference depending on the time of day you take the probiotic?

 

Not really. I have taken them in the morning or at bedtime or right in the middle of the day, if I did not do it in the morning.

 

Soon, you will not need that citrucel, I am hoping. (the tablets are just a bunch of chemicals)

I used to take it all the time before DX when my former doc told me I only had "IBS" and he had me on that, GERD medicines, Zantac, about 3 more things--even low-dose amitryptilline .. <_< .I do not need any of those things anymore, (yaay!)

 

Ground flaxseed meal in a big glass of water will also produce the nice BMs you want, if you're looking for fiber. (I did not expect to know so much about "poopology" :D  but what can I say? My GI tract was a disaster so I made it my mission to figure it out.)


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#14 powerofpositivethinking

 
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Posted 01 July 2013 - 06:14 AM

I'm hopeful that Citrucel will be a thing of the past soon!  there are so many things I tried for the big C pre-gluten-free.  I was doing everything right by doctor guidelines...more fiber and water, exercising.  Though more intense exercise actually made it worse.  I read a book called Fiber Menace and became familiar with the Bristol Stool Chart :lol:   I couldn't understand why my friends could eat the same food that I did like Fiber One, and it helped them, but only made me feel worse and more bloated.

 

The more Fiber One bars/types of those products I would eat, the more stopped up I would get even with adequate water.  Not being able to go regularly really got me, so for the same visit where I got prescribed Wellbutrin for a few months, I truly needed it at that point, my GP said to take Miralax for the C but that made me feel even worse.  Exlax didn't give me relief, but gas to the extreme.  Dulcolax worked for me, but I would have to take 5 for anything to happen even though the max dose was to be 3.  I once drank a bottle of magnesium citrate and nothing :huh: If I ate a large amount of sugar, that would get me moving, but I'm talking an obscene, unhealthy amount of sugar.  Which I know between that and less intense exercise due to that weighed down feeling, caused my weight gain.  Pure gylcerin suppositories became my go to because I bought the ones that didn't have any stimulants.  I kept experimenting, but I didn't understand why my bowels stopped functioning like they had.  You know you've hit a low when you're jealous that others are able to go everyday with ease :lol:   That's when I finally said enough is enough and went to a GI.  

 

I just didn't understand.  Now I'm feeling so much better, but I only wish that I would have known back then that my depression was linked to gluten, and not because I was losing it.  I really feel for people that have chronic depression because I've never felt so hopeless and helpless in my life.  Luckily the Wellbutrin helped get me back in check, but why didn't anyone ever tell me 90% of the serotonin is produced in your gut  :blink:  I still have a little anxiety here and there, but what a difference going gluten-free!

 

I want to give other natural things a try in the future, and I wonder how many of the above products would have worked for me, if gluten would have been cut-out.  My Grandma had to have a bowel resection surgery a few years ago and swears by ground flax seed.  They tested her for celiac, but that was before the DGP tests were available, so she said it was negative.  I will have to try flax again in the future  :)

 

this ended up being a lot longer than I thought...

 

Not really. I have taken them in the morning or at bedtime or right in the middle of the day, if I did not do it in the morning.

 

Soon, you will not need that citrucel, I am hoping. (the tablets are just a bunch of chemicals)

I used to take it all the time before DX when my former doc told me I only had "IBS" and he had me on that, GERD medicines, Zantac, about 3 more things--even low-dose amitryptilline .. <_< .I do not need any of those things anymore, (yaay!)

 

Ground flaxseed meal in a big glass of water will also produce the nice BMs you want, if you're looking for fiber. (I did not expect to know so much about "poopology" :D  but what can I say? My GI tract was a disaster so I made it my mission to figure it out.)


  • 0

Diagnosed with celiac disease, but my fat malabsoption, EPI and Vitamin K deficiency have finally cleared themselves up do to the help from Creon!

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#15 IrishHeart

 
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Posted 01 July 2013 - 06:27 AM

Actually, talking about it is illuminating for you.

It gives you insight into your health history and how doctors symptom-treat rather than

find the cause. (this is my life story) :huh:

 

You're going to feel better and better as time goes on!!. You may not need that Wellbutrin in time, so be aware of it.

 

If you are still taking the SSRI  and your gut starts working well, you may have too much seratonin in your system (and that is a whole' nuther set of awful symptoms)

 

Just be careful, okay?

 

Give the probiotics a chance and stay the course. You're still in healing mode, but you sound as if you are doing really well

so far. Time and patience....those are key.

Just hang in there, hon! ;)

 

PS My mom pooped little marbles her entire life. 6 months gluten-free, probiotics and dumping dairy (she used to drink 16 oz a day)............ and she was thrilled to have a normal BM for the first time in her life. She even called to tell me about her "OPP"..her code for One piece poop. :lol:

 

PPS. No, we are not crazy to be so excited about such things. If you have never experienced the horror of bowels that do not work, you just do not "get it".


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif





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