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Alopecia

not looking for a cure

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19 replies to this topic

#1 BSVD

 
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Posted 29 June 2013 - 04:55 AM

I need advice on covering up hair loss. Mine is most noticeable in the front. The best way to describe it is similar to male pattern baldness. (I'm a female age 50) I am wondering of a really short style would help, what color, layered or not? Stuff like that. I found out I have Alopecia about a year before I was diagnosed with Celiac. I've been hoping it would start getting better with the gluten free diet.....but it's just getting worse. Any suggestion?


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#2 VeggieGal

 
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Posted 29 June 2013 - 06:52 AM

Just a thought, but if you haven't already, it may be worth you getting your thyroid checked as it can cause hair thinning.
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#3 BSVD

 
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Posted 29 June 2013 - 09:09 AM

Just a thought, but if you haven't already, it may be worth you getting your thyroid checked as it can cause hair thinning.

Yes I have under active thyroid and on medication for that too


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#4 nvsmom

 
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Posted 29 June 2013 - 09:11 AM

celiac disease caused my alopecia as well as thyroiditis flare-ups (or other AI flare-ups) and changes in thyroid meds. Going gluten-free did help but because of my other issues, it hasn't stopped totally. I still get periods of massive shedding.

 

I tend to go for short bobbed hair-dos that require no volume. Long hair looks stringy on my head, and is only good for ponytails which can disguise the thin spots... it's a sad poytail with a circumference of less than a dime though.  yuck. :wacko: I try to keep my hair fairly flat on my head too because if I go for body, you can see my scalp quite far back on my head (almost a couple of inches). some hairstyles are supposed o be thinner and flatter - I go for those.

 

I keep my hair natural, which is a brow speckle with grey. I think lighter colours would diguise the thinness better but my colouring, and dark eyebrows and body hair would look silly on a blonde.

 

Good luck!  I know it's frustrating.


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Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

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#5 BSVD

 
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Posted 29 June 2013 - 03:53 PM

Thanks for the suggestions nvsmom. I have been trying make it look like I have more volume and maybe that's part of the problem. I'll talk to my hair dresser next week about going with a short straight look. I've been looking at the PRP treatments on line - maybe that's an option in the future.


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#6 Mr. GF in Indiana

 
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Posted 29 June 2013 - 08:25 PM

This is a long shot...I discovered even two years after diagnosis, my vitamin levels were STILL all low (D, B's) and I started a course of very heavy vitamin B. In essence, I had "dry beri-beri". Even though I was always taking vitamins...it didn't get into my blood for some reason, and this is apparently not unusual in autoimmune disease. (I am male, bald at 23). My sister is nonresponsive to vitamins, they are injecting her every few weeks with B's, not sure if she can eventually get along with pill mega-B's (I think each pill I take is 6000% of RDA, seems pretty overboard to me, but it is working somewhat).

Oh...second long, long shot...my prescribed medications that were checked and approved, by six separate doctors for conflict...yeah, some of them turn out, to be one of the rare meds that can block thyroid supplement, so that even though my thyroid test read as if I was fine, I wasn't getting thyroid in the cells enough. BIG difference when I figured that out using experimentation, research, and then confirmed it with rxlist.com. But my hair isn't growing back (then again, male pattern baldness).
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Best Wishes!    Gary

 

Misdiagnosed 62 years; finally medically confirmed Celiac/prolamin 2010

No corn, wheat, rye, barley, oatmeal, sorghum; rice is tolerated.  Salicylate sensitive.

Vitamin D and B deficiency, thyroid deficiency, bleeding disorder (all improving slowly).

Neurologically disabled, retired attorney.

 

Only you can take care of you; random advice from someone on the internet does not substitute for your own doctor!


#7 ravenwoodglass

 
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Posted 30 June 2013 - 02:59 AM

I also have problems with hair loss. Mine thins badly at times plus I have a spot on my crown that has a scar from an accident. A couple years ago I tried a product put out by Joan Rivers (I get it from QVC). It is a powder that you can apply on the areas that are thinning. I was doubtful at first but it stays where it was put until washed out and does a great job of disguising those spots until the new hair grows in. It doesn't solve the hair loss issue but it helps my confidence level until that hair grows back, which takes me at least 3 months or so.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#8 nvsmom

 
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Posted 30 June 2013 - 07:07 AM

I though about looking for those powders to colour my scalp but I though I would probably get all over my hair and pillows. It stayed put , eh? Hmmmmmm.
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Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#9 GottaSki

 
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Posted 30 June 2013 - 07:29 AM

I can't really complain as I have always had too much hair...but here is the observation....for decades I was losing huge amounts of hair each time I showered or brushed -- in reading this thread I just realized I am no longer losing hair at this alarming rate -- can't say exactly the cause of this change other then I am finally a bit more healthy -- AI type symptoms are fewer and farther between. 


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#10 ravenwoodglass

 
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Posted 30 June 2013 - 12:59 PM

I though about looking for those powders to colour my scalp but I though I would probably get all over my hair and pillows. It stayed put , eh? Hmmmmmm.

Yea that brand stays where you put it. It is the only product of that kind that I have ever tried. It worked so well I have never tried any other. I was skeptical when I ordered it but now I wouldn't be without it.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#11 BSVD

 
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Posted 30 June 2013 - 01:03 PM

Mr gluten-free- how did you finally figure out that your body was not absorbing the thyroid medication?


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#12 bartfull

 
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Posted 30 June 2013 - 02:18 PM

My hair is really thin and really fine - like spider silk. When I was taking B12 and biotin it seemed like it was starting to grow in but my other intolerances kicked in and I haven't found any supplements I can take (yet). My hair is long and I wear it up. I stand upside down with the hair spray and push it around until it looks like I have hair.

 

So this spray you are talking about - does it come in salt and pepper color?


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#13 ravenwoodglass

 
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Posted 01 July 2013 - 02:53 AM

My hair is really thin and really fine - like spider silk. When I was taking B12 and biotin it seemed like it was starting to grow in but my other intolerances kicked in and I haven't found any supplements I can take (yet). My hair is long and I wear it up. I stand upside down with the hair spray and push it around until it looks like I have hair.

 

So this spray you are talking about - does it come in salt and pepper color?

The stuff I am talking about is a powder in a compact with a application brush. It does come in a salt and pepper (grey) shade. It doesn't make the hair itself thicker but hides the thin spots at the scalp. If someone dyes their hair it will help to hide the roots growing in as it will stick to hair as well as scalp.  I have seen a product, I think it was also on QVC, that will thicken the hair with fibers but haven't looked into it and don't know the ingredients so don't know if it would be safe for us.  


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#14 ravenwoodglass

 
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Posted 01 July 2013 - 05:00 AM

Just realized I never gave the name of the product. Duh. It is called Great Hair Day and is put out by Joan Rivers.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#15 thegirlsmom

 
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Posted 01 July 2013 - 05:37 AM

I have alopecia areata and have for the last 11 Years, I have recently discovered a spot on my head right at the top of my crown, that I too am trying to figure out how to handle when it gets bigger.  Right now I am thinking pretty scarves and headbands might do the trick, but we will see where the spot grows to. 

 

What I would recomend to you is to get an IGG test to see what other foods cause inflamation in your body. For me it was dairy and when I gave it up it made a huge difference.  My hair loss never completly stopped,  but it did slow down considerably.  Lately I have gotten lazy and have been eating cheese, and my hair is falling out as bad as it was before gluten free/ dairy free changes.  So as of today, I am starting an elimination diet. 

 

If you watch your skin it can also tell you if you are reacting to another food.   I always break out when I eat dairy. 

 

Also,  think about your stress level 6-8 weeks ago.  That is how long it takes your body to react to stress and anxiety.  8 weeks ago my brother's(whom I am very close to) house burned down. 

Remember, it can take up to 2 years for gluten to leave your body, and if you are like me,  you goofed a lot initially. 


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