Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Help With Symptoms
0

8 posts in this topic

Hello! I'm new to this, so please forgive me if I make any errors.

I have a 5 year old son who displays the following symptoms:

- constipation

- extremely large bloated belly

- gas

- skin "itchies" aka "unexplained hives"

- tiny bottom, legs, and arms

He has been tested by blood and negative to having any food allergies.

Here is the crazy thing. When he wakes up in the morning, his belly is normal. He looks like a normal 5 year old. By evening, his tummy is HUGE! He does pass gas at night. He will wake up with a normal belly the following morning and the process repeats.

We have gone dairy free for approximately 2 weeks. I have not seen many improvements yet. Maybe I haven't given it enough time, or maybe I need to go gluten-free. Hoping someone has some experience and can offer me some advice.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Was he tested for Celiac? Wow!! That would make any mom worry!! I'd take a pic of his belly in the AM and then in the evening and take it to your Doc! Make sure he sees the difference. I would think he may be Celiac but I am kinda thinking like alot of other people, when it comes to children, you really want to have them tested for Celiac and not just put him on the Gluten free diet. You can try the Gluten free diet for a few days and see if there is a difference .... 

0

Share this post


Link to post
Share on other sites

Yes, he was tested for celiac and it was NEG. it is just thr weirdest thing!! Something isn't right and I want to get to the bottom of it. I take pics all the time. I had the brilliant idea of measuring his belly first thing in the am and then at pm to get more accurate info. Guess we need to make another trip back to the GI specialist.

0

Share this post


Link to post
Share on other sites

I should have also mentioned, that his diet is not very well balanced. He doesn't eat many fruits, hardly any veggies, and he eats a TON of wheat bread...hmm...sure does make you wonder, huh?!?

0

Share this post


Link to post
Share on other sites

That is EXACTLY how my stomach used to be, I would get more bloated as the day went on. :( not a good sign. I'm glad you are still looking into it.

Do you know what tests he had? These are the usual tests:

tTG IgA and tTG IgG - most popular tests with docs, not always accurate in kids

EMA igA - shows advanced damage and not often positive in kids

DGP IgA and DGP IgG - often the best test for detecting celiac disease in kids

Serum IgA

AGA IgA and AGA IgG

The first three tests indicate intestinal villi damage as seen in celiacs. The serum IgA is a control test to make sure you make enough IgA for the IgA based tests to be valid; 5% of celiacs have low IgA. The AGA tests show gliadin sensitivity in celiacs and possibly those with non-celiac gluten sensitivity (NCGS) who have the same symptoms but no villi damage.

This report has more info on pages11-12: http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

I would suggest doing more testing, possibly the endoscopic biopsy. If everything comes up negative, he might be NCGS and a gluten-free trial of 3-6 months would be diagnostic. If he does have NCGS, it is just as important to eat 100% gluten-free as it will continue to negatively impact his quality of life and possibly lead to further health problems down the road. :(

Best wishes!

0

Share this post


Link to post
Share on other sites




Did measuring the belly work?  Mine once increased 9 inches over night after eating pizza!  I haven't eaten it since.  Usually, mine does increase in size during the day.  When I try to measure the belly, I usually don't see much of a difference.  I am wondering how taking a picture would be?  Stand in front of a grid maybe to see better?

0

Share this post


Link to post
Share on other sites

2.5" bigger on the top part of his abdomen, and 2" bigger right around his belly button. Measurements were taken at 9 am today and 9 pm this evening.

Foods consumed today: French toast, hot dogs with buns, and pizza (no cheese). Still on a no dairy diet. Doesn't seem to be the culprit.

1

Share this post


Link to post
Share on other sites

Good luck sweetie!! I hope you find the answers!! 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,896
    • Total Posts
      919,544
  • Topics

  • Posts

    • Gluten does WHAT to the brain?
      I hear you Gemini. It's nucking futz!
    • Test Results
      I went gluten free & never looked back! I have dh, the celiac rash. That makes it pretty darn easy to go gluten-free the moment you figure it out. I was not about to continue eating gluten for even one more day just so the medical establishment would be satisfied in my dx. There was not a moment of doubt in my mind that I had dh & therefore celiac. As it turns out, weirder than weirder than weird and the odds I can't even begin to imagine.... I have since, by sheer accident, had 2 docs officially dx me. Is that crazy or what??!! I did not go in asking for a dx nor even hoping for one. Frankly, I just plain didn't care what they thought. The medical community has failed me numerous times throughout my life so I don't have the highest regard for them. You are 54, I was 54 when I figured mine out. I have no kids so did not need to consider them in my decision not to go for an official dx. My parents had already passed away so that was not an issue. My brother had passed away so that was not an issue either. I did contact my nephew & tell him to let my sister know so she could get tested. So I have done my duty by her & she's an adult and a nurse & can make her own decisions. I do urge people to go for an official dx whenever possible, especially when they have kids or other 1st degree family members. If it's doable for them I think they should make a good effort at it. Also, there are certain people who express they don't think they can stick to the diet without the official dx. I think those people should pursue a dx with all their might. I have never had the slightest problem sticking religiously to gluten free eating. I have never doubted myself. I know you have tired HARD! Super, super HARD. I commend you for your dogged pursuit. I would not, could not blame you for giving it all up & just going gluten free this instant. That is a choice only you can make but I fully support whatever decision you make.
    • Gluten does WHAT to the brain?
      Your brother sounds like mine, Squirmy.  He was a Type 1 diabetic and had flaming celiac symptoms to boot but his docs always, always blamed his diabetes on everything.  He lived in the country and the docs in his state just were so far from being Celiac savvy.  I doubt they ever diagnosed one. His health was failing so badly that in the end, with the 3 MONTHS of non-stop diarrhea going on, he became so dehydrated that he had a heart attack and died last August 4th. His biggest mistake was trusting these idiots completely.  I think his brain was so messed up and confused that he just couldn't understand what I was trying to tell him.......that good ole brain fog.  He did what celiac's may do when left untreated for years and years.....they slowly fail and then die.  It still is extremely painful for me to think about because I was close to him.  I still see many people in my life that I think have it because of their extreme symptoms. Listening to them complain that the doctors aren't helping them. Try suing them for malpractice too......it would be too hard to prove. And then we have those who know there is something very wrong but won't give up wheat bread because that is unfathomable to them.  This disease can drive anyone crazy, for many different reasons. 
    • I'm actually scared to go to the doctor and could use some advice
      Good for you, Elle!  Now you can figure out the problems and feel better.  We are all interested with how things go for you so please do update us when you can. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,945
    • Most Online
      1,763

    Newest Member
    Balanced Concepts
    Joined