Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

For Those Who See Gastroenterologists
0

11 posts in this topic

I've considered going to a gastroenterologist. They are most knowledgeable about celiac and gluten issues right? I did a stool test with my family doctor to check for parasites and am supposedly clear. But was wondering what sort of things a gastro could help with besides endoscopy, colonoscopy and upper gi tests. Do they also do stool tests? Do they check for small intestinal bacteria overgrowth and what not? Or is it mainly doctors who are not mainstream who do that?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've considered going to a gastroenterologist. They are most knowledgeable about celiac and gluten issues right? I did a stool test with my family doctor to check for parasites and am supposedly clear. But was wondering what sort of things a gastro could help with besides endoscopy, colonoscopy and upper gi tests. Do they also do stool tests? Do they check for small intestinal bacteria overgrowth and what not? Or is it mainly doctors who are not mainstream who do that?

I am seeing a gastroenterologist and she wanted to do a stool sample but I get around by bus and didn't feel comfortable transporting that way. I started out due to stomach pains when I ate anything. She prescribed me Hyoscyamine .125mg to take before eating and whenever pain comes and Prochlorperazine 10mg for nauseau. This helped and led me to believe that I have an issue with wheat/gluten. I will be doing a food allergy test w/ my allergist next month (July) and follow up with my primary and gastro. I hope this helps some.

0

Share this post


Link to post
Share on other sites

I am seeing a gastroenterologist and she wanted to do a stool sample but I get around by bus and didn't feel comfortable transporting that way. I started out due to stomach pains when I ate anything. She prescribed me Hyoscyamine .125mg to take before eating and whenever pain comes and Prochlorperazine 10mg for nauseau. This helped and led me to believe that I have an issue with wheat/gluten. I will be doing a food allergy test w/ my allergist next month (July) and follow up with my primary and gastro. I hope this helps some.

Hopefully you will see this- Celiac is not an allergy so allergy testing won't diagnose it. There are specific blood tests for Celiac disease and any of those docs should be able to order them. You need to be eating gluten to get an accurate test, so don't eliminate it until all testing is completed.

0

Share this post


Link to post
Share on other sites

I've considered going to a gastroenterologist. They are most knowledgeable about celiac and gluten issues right? I did a stool test with my family doctor to check for parasites and am supposedly clear. But was wondering what sort of things a gastro could help with besides endoscopy, colonoscopy and upper gi tests. Do they also do stool tests? Do they check for small intestinal bacteria overgrowth and what not? Or is it mainly doctors who are not mainstream who do that?

I'm curious- if you have never been to a GI, how were you diagnosed with Celiac? So few people have a family doc that feels comfortable diagnosing with just blood tests, symptoms and results. It might be helpful for others to hear your doctor's process.

0

Share this post


Link to post
Share on other sites

Why do you think I think celiac is an allergy and when did I ever say it? I am gluten intolerant and felt better initially gluten free but a whole host of other things began about two or three months in. I've never been to a gastro but could have undiagnosed celiac. Had a history of "irritable bowel" since I was eight or nine that went away once gluten free. If you think I think celiac is an allergy because I've typed about allergies you'd be wrong. Those are seperate issues that recently came up. Just clarifying now so I don't have to do it later.

0

Share this post


Link to post
Share on other sites




I also did enterolab but I know many of you don't accept that but it got rid of those symptoms I was having and my family doctor has celiac listed on their system. Biopsies and blood tests have been known to miss it as well. They can't always get to the area of the bowel most affected. I know I'm not glutening myself just for an "official" diagnosis. I felt too horrible.

0

Share this post


Link to post
Share on other sites

Why do you think I think celiac is an allergy and when did I ever say it? I am gluten intolerant and felt better initially gluten free but a whole host of other things began about two or three months in. I've never been to a gastro but could have undiagnosed celiac. Had a history of "irritable bowel" since I was eight or nine that went away once gluten free. If you think I think celiac is an allergy because I've typed about allergies you'd be wrong. Those are seperate issues that recently came up. Just clarifying now so I don't have to do it later.

I wasn't answering you - I quoted the new person, Monnie. She seemed to need a little info.

0

Share this post


Link to post
Share on other sites

Sorry on my kindle I didn't even notice that. I thought you addressed it because of a couple threads I have regarding histamine etc.

0

Share this post


Link to post
Share on other sites

I am seeing a gastroenterologist and she wanted to do a stool sample but I get around by bus and didn't feel comfortable transporting that way. I started out due to stomach pains when I ate anything. She prescribed me Hyoscyamine .125mg to take before eating and whenever pain comes and Prochlorperazine 10mg for nauseau. This helped and led me to believe that I have an issue with wheat/gluten. I will be doing a food allergy test w/ my allergist next month (July) and follow up with my primary and gastro. I hope this helps some.

Do yourself a favor and get an endoscopy...blood test or even enterolab. THEN go gluten free and see how you feel. I was too chicken to endoscopy at the time. I regret that a year later. Did the diet help? Yes...but...it's nice to have a solid view of what you're dealing with...seriously. The tests could miss it but they might not. If it shows up negative you can always trial the diet anyhow and see if you feel better. 

0

Share this post


Link to post
Share on other sites

Hopefully you will see this- Celiac is not an allergy so allergy testing won't diagnose it. There are specific blood tests for Celiac disease and any of those docs should be able to order them. You need to be eating gluten to get an accurate test, so don't eliminate it until all testing is completed.

I know that celiac is not an allergy, but I have seasonal allergies for ALL seasons (no off season for me) So my 1st thought was to do allergy testing. I immediately stopped eating wheat and felt better then started looking up sites for Gluten Free recipes and came across this site. I have to follow up with my Gastro Dr in Sept. cause I had the appt already and when I tried to get an earlier appt they didn't have any. I have seen that you have to be eating wheat for the testing and am not looking forward to going back to feeling that way.

0

Share this post


Link to post
Share on other sites

Do yourself a favor and get an endoscopy...blood test or even enterolab. THEN go gluten free and see how you feel. I was too chicken to endoscopy at the time. I regret that a year later. Did the diet help? Yes...but...it's nice to have a solid view of what you're dealing with...seriously. The tests could miss it but they might not. If it shows up negative you can always trial the diet anyhow and see if you feel better. 

I will make sure to ask my Gastro Dr about those tests. I also want to know exactly what is wrong, but do not look forward to feeling bad again because I have to eat wheat.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,099
    • Total Posts
      920,353
  • Topics

  • Posts

    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
    • I think that we have to remember that celiacs often develop intolerances due to our  damaged guts.  Our guts do not ncessarily heal either (usually adults) for  a variety of reasons even if their symptoms improve (see links below).   Nuts are just plain hard to digest.   I can not tolerate almonds, but can handle walnuts and cashews in small amounts.  I can eat peanuts too, but resort to Peanutbutter after a Glutening as it is easier to digest (maybe I have to learn to chew better!  😀)  My nut symptoms have  nothing to do with gluten as I have purchased certified gluten-free nuts and suffered with the same symptoms.  .   https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341 http://www.cureceliacdisease.org/treatment/ http://www.ncbi.nlm.nih.gov/pubmed/23936873 i call the manufacturer when I suspect the manufacturer is sharing the line or if I just want to know.  I bought some Black English walnuts and called the company.  Those are the only nuts they process and they do not have any flavored nuts.   if you really want to test your theory out, buy some nuts from Nuts.com (certified gluten-free).   See if you get a reaction or ask your GI to retest your antibodies (which should be done annually anyway).   I just hate to have Planters get a bum rap when you do not really know for sure.......😥    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,133
    • Most Online
      1,763

    Newest Member
    Mycaringkidsmom
    Joined