Need A Little Help
Posted 30 June 2013 - 12:09 PM
Posted 30 June 2013 - 12:20 PM
How long have you had these symptoms? There are numerous symptoms associated with Celiac Disease...here is a list:
Celiac Disease is genetic -- your Aunt is enough reason to be tested every 3-5 years -- more often if symptoms arise.
Make sure you get a complete Celiac antibody panel:
Total Serum IgA
tTG - Both IgA and IgG
EMA - IgA
DGP - Both IgA and IgG
If you suspect Celiac Disease or Non-Celiac Gluten Sensitivity DO NOT remove gluten until the testing is complete -- the tests measure antibodies created in response to gluten ingestion.
Good Luck to you
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE -- probable cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
Celiac.com - Celiac Disease Board Moderator
Posted 30 June 2013 - 06:08 PM
It is quite possible with your family history that you have Celiac, or on your way.
You have two options before you. One, is to remain on a full gluten diet and be tested for the blood test that Lisa offered. Or, to go gluten free. With improvement on a fully compliant diet, you could consider yourself Non Celiac Gluten Sensitive or with Celiac Disease. There is no current testing for NCGS.
Personally, I would suggest that you be tested by a doctor who is fairly well versed in testing and interpretations.
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
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