Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Need A Gluten Free Friend


manderoni22

Recommended Posts

manderoni22 Newbie

Hey. I'm Mandy, and I'm almost 15. I need to share what's been bothering me with some people who might understand.

I've been gluten free all my life, I was diagnosed with Celiac when I was 22 months old. I'm the only gluten free person in my family, out of my friends, and there is only a couple of people I really know who are gluten free. It's lonely, and gotten more lonely. My family understands, especially my mom, who's always been there, but they've never really had to deal with it like I have. My friends are understanding sometimes, but other times poke fun at my food for being crumbly, looking or smelling weird, or having a weird taste. Its harsh and they don't understand that it hurts me a lot. I only have one friend who really understands, and so does her family. Its nice having that. I have a lot of problems going out to eat especially with friends because sometimes I have worries about reliability of Gluten Free menus, or cross contamination, or being judged by my friends for over exaggerating, even though I know its necessary.

Also, I started getting a lot more G/I symptoms in the past 3 years. A couple months ago I had a reaction with hives at school to an allergen that we're still currently testing for. I've been dealing with some other emotional stuff that has really increased my worries about accidental Gluten intake, and getting more hives or G/I issues. It scares me that there could be something that I don't know is hurting me, and sometimes G/I issues are unpredictable. They happen when I'm away from home without my family, and I even held up 5 church retreat buses because of G/I issues. Point, I just really feel brought down sometimes by my intolerances, physically and emotionally.

I'm sorry for the long rant! The last thing I want is to complain, but my mom suggested that I get this off of my chest to some people that might know what I'm saying. :)  I wanted to hear stories of how other people have struggled recently, or not recently. I'd love to talk to some people who know what I'm saying.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Reba.Loves.Music Newbie

Hey! I'm Reba. I'm 20 and I understand everything!! I've been eating gluten for almost 2 years now. Just like you my mom understands the most and then probably my sister. Some of my friends are accepting and they are willing to learn and try it. Eating out is the hardest because it is impossible where I live to find a restaurant to understand our allergy.

My biggest struggle lately. Its been a month now and I helped a friend out and when they picked me I was in the car with a sheet cake, a 3 tier cake, and over 200 rolls. I always couldn't be around it and they didn't think anything of it and I was around it for 2 days and they didn't believe me it was that bad. Like I said its a month later and I'm still struggling with it because I still have a headache, I'm still getting sick, and my stomach still hurts.

I'm always willing to talk and listen. :)

Link to comment
Share on other sites
soccerchic383 Newbie

Hey guys! My name is Casey and I am 17 years old and have been diagnosed with celiacs for two months now but I've been dealing with the symptoms all my life. I totally get how frustrating it is when people don't understand - even with friends who I love and trust, I hate getting the pitiful looks and, "Wow that really sucks!" after I explain my diet.

My biggest challenge right now is preparing for gluten free eating in college. Luckily mine seems to have a pretty accommodating kitchen staff but my dorm doesn't have a kitchen and I will be sharing a minifridge with my Roomate, who eats gluten, and I don't know if the contamination will affect me or not.

I'm definitely scoping for some gluten free buddies so I'd love to talk more. Hang in there :)

Link to comment
Share on other sites
Reba.Loves.Music Newbie

Hey Casey! I so understand with college, and how people don't get it all. I'm always here for a new buddy too lol :),

Link to comment
Share on other sites
  • 5 months later...
Nick-incollege Rookie

hey! I'm 21, and I've been gluten free for a year now, but still have trouble with it a lot. i get reactions pretty often still (somehow) so I'm still learning! I think as you get older your friends start to understand more, so i usually don't feel too weird having to be pretty particular about what I eat. but, a lot of times, even if I order a gluten free pizza or something, I still get glutened - I think a lot of restaurants suck at changing their gloves/dealing with cross contamination and stuff =\

 

I'm also looking for gluten free buddies, mostly because i still don't know a lot about the disease and why exactly I react sometimes! I don't have gi symptoms, I just get: sore throat, nausea, and wicked fatigue. which doesn't sound that bad, but sometimes I barely have enough energy to walk. which sucks, cause I like to be active/play sports and stuff haha

Link to comment
Share on other sites
  • 4 months later...
BeccaMeadows Newbie

I'm 21 and was diagnosed 4 years ago.  It definitely was a struggle at first but here's a few tips that have really helped. 

 

I found the best ways of coping with being around friends and family is being ready. 

 

It's a hassel, but preparing meals ahead of time, or having quick go to snacks ahead of time makes social situations so much easier so you never have to worry about being without food.  I also bring a lunch bag with food ready in it, or sometimes just pack some fruit and protein bars (homemade!) in my purse (having a big purse really helps).  If I know that people are going to be sitting down and having dinner (like at Christmas time) I also bring a full meal with appetizers and a dessert so I don't feel left out.  I've even talked to staff at restaurants and they've been understanding if I eat my own meal there while my friends order. 

 

I've also found that as I got older it was easier socially.  A lot of my friends just can't afford to go out to eat all the time, so instead we go to the grocery store together.  Another thing with getting older is a lot of my friends want to be more health conscious, so instead of them saying "Oh that sucks all the time", now instead I share some really cool super healthy gluten free snacks which taste great and they are really interested.  The hardest thing is explaining it to people who are new to it, but whenever people try to make a gluten free diet sound like a bad thing I usually just jokingly tell them that it doesn't bother me that I'll still have a great body when I'm 50 from eating so well.  It helps to just make light of the situation. 

 

I also tend to host most sleepovers or get togethers to make it easier for me to trust the food I'm eating and if anyone offers I tell people to bring some gluten free snacks, but to make sure they have the gluten free labelling on it.  If people insist on making food I usually ask them to run recipe ideas by me, or I usually just don't eat them because the slightest-cross contamination makes me sick.  It's also fun to have baking parties with friends.  You get to let them in to your world and make some awesome food that everyone can eat. 

 

It is unfortunate to have to deal with celiacs as a teenager when all your friends are so care-free, but honestly, especially for those who are young and new to the diet, it gets way easier socially, mentally and physically.  That's not to say you may not struggle here and there, but to me I've just embraced is as my lifestyle and it's just become second nature to me. 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,160
    • Most Online (within 30 mins)
      7,748

    sandy32
    Newest Member
    sandy32
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • CatherineWang
      I'm pretty sure that in stores, you can find plenty of gluten-free options. But they are usually a bit more expensive.
    • cristiana
      Hello @BunnyBrown and welcome to the forum. I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated.  That pain was what troubled me most after the operation, far more than the operation site.  It took a few days to really settle down, I was quite badly bruised. It was taking so long I was a bit concerned so asked the question on another forum. A few patients came back to me and said they had suffered the same.  I imagine in my own case possibly the throat got bashed about a bit,  maybe they had difficult inserting the tube?  I've suffered with a painful throat post-endoscopy too, but never as long as the intubation pain.   I hope you will be feeling better very soon.   PS BTW - love the name!  I saw this today in an Easter display in a shop and your name reminded me of it.🙂  
    • cristiana
      This wonderful, Anne. I think you have a point about why people disappear off forums.  I found the first few years post diagnosis a real struggle and frankly wondered if I would ever feel better (not to dishearten people, but just to say it can take a while longer for some folk to heal).  However, once my antibodies were back within normal range it really has made a big difference to my health.  I've chosen to stick around because I'm a Mod, otherwise I might have been one of those that disappeared, too!      
    • Exchange Students
      Yes absolutely, we work with all public schools and some private schools in all 50 states.
    • Scott Adams
      Just a quick question, can the host live in any state in the USA?
×
×
  • Create New...