Anyone have experience with something like this? Is it legit or a scam? http://www.personala...m/allergies.php
595 bucks is a bit much to drop on an unscientific test. Thoughts within the group?
Personal Labs Testing? Any Experience?
5 replies to this topic
Posted 01 July 2013 - 01:51 PM
Looks like they use LabCorp, the same company that runs the blood work done by my doctor. (so, that part is probably legit)
Looks like they are not allowed in certain states (check the website)
Not sure what tests you are going to have run and why you may not want to go through a doc to order them (and that is none of my business )
but your insurance would cover them if you did it that way.
If you do not have insurance or you have not been helped by a doctor, maybe it is a good idea, but I would check to see if any complaints have been lodged about this company before sending them my credit card info.
You may still need a doc after you get the results.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
Celiac.com - Celiac Disease Board Moderator
Posted 02 July 2013 - 03:22 AM
I plan on using my doctor if he will order them and doing it myself if he will not. My specialist has told me point blank that I do not need to order such tests and that I should stop being silly. I thought that was irresponsible and I found a new specialist. I just can't see him until August. I have a disease which impacts absorption and causes potential malnutrition. I need to figure out if I am deficient in any vitamins and where I stand on other issues. The food allergy test would also be a plus (if that works). I have heard good and bad things.
Posted 02 July 2013 - 05:53 AM
I can't speak for the lab, but I understand your frustration. My GI just said to take 2 iron pills and two calcium pills a day. Told me that typically his patients don't benefit from a dietitian (that's okay for me because my husband's been gluten-free for 12 years, but others?).
Followed up with my PCP after being in the hospital (focus was on a heart attack which I didn't have and nuclear stress test proved it). Armed with the "Up-To-Date Management blog by Jebbie (pediatrician with celiac disease) in June 2013 in hand, I started the visit with "f/u from hospital but look at this article I found on Celiac.com. Doc said that he uses the website where this information came from (so legit article). I asked about screenings for deficiencies. Told me to go back to my GI or take a multi-vitamin. Then reviewed the hospital one X-ray -- "humm....broken vertebrae, I guess I should order a bone scan." The worst yet: "Some DC patients have bloody diarrhea, but yours isn't so bad you could probably eat a little."
Okay. He's probably limited on procedures (HMO) and he sees a ton of patients who might not have celiac disease and doesn't have time to research everything, but really? (My old PDP/GP of over twenty years retired in December, and geez, he'd give you a PAP to save you time....)
Back to the blood test, I took them almost years ago ordered by a MD (Environmental Medicine) who thought outside the "box", lived in the University Medical Library, and a grad of MIT but now retired too.
He said although they are not 100% accurate, it is at least, a place to start. Did skin testing too.
I found my major food and inhalant allergies (pollen, mold, eggs, casein, whey, almonds, mushrooms and garlic. Other were less, but I rotated them. Can eat some tree nuts (walnuts), but not almonds....weird.
I still have those allergies, but I'm three months into the celiac disease diet. It would be a miracle if I could get those foods back, but I'm hoping. In the meantime, as long as I avoid those foods and the gluten, I'm feeling much better. Just trying to get through the deficiencies (e.g. iron anemia, whacked thyroid). Bone scan in August (I'm going on vacation) and then I'll know if I should be safely back on a bike again). For now, it's swimming and walking!
Go for the testing yourself, unless you can find a savy doc!
Diagnosed via Endoscopy: March 2013
Celiac.com - Celiac Disease Board Moderator
Posted 02 July 2013 - 11:21 AM
I finally found a new doc who has agreed to do vitamin deficiency testing and a food allergy panel. I hope this at least helps a little bit because it has been a miserable last few months. I have been gluten-free for 3 months now. The first week was great but now the symptoms just keep cycling through. The most troubling aspect has been my pulse and heartbeat this week. I had to go do the stress test just like you, CyclingLady and it came back clean *thank goodness* but I still get tender and my pulse shoots up to 100 while I am lying in bed at night. I think this is what is waking me up. I generally wake up around 1 to 3 every night and have a rough time falling back asleep. This makes me tired all the next day and just seems like an endless cycle.
I don't do well with uncertainty. Thankfully I have this community and maybe a new doc now. I would be lost without help. Just being gluten free does not cut it.
Posted 02 July 2013 - 12:29 PM
that early awake ; could be blood sugar related.
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