Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Personal Labs Testing? Any Experience?
0

6 posts in this topic



Ads by Google:

Looks like they use LabCorp, the same company that runs the blood work done by my doctor. (so, that part is probably legit)

 

Looks like they are not allowed in certain states (check the website)

 

Not sure what tests you are going to have run and why you may not want to go through a doc to order them (and that is none of my business :D )

but your insurance would cover them if you did it that way.

 

If you do not have insurance or you have not been helped by a doctor, maybe it is a good idea, but I would check to see if any complaints have been lodged about this company before sending them my credit card info.

 

You may still need a doc after you get the results.

0

Share this post


Link to post
Share on other sites

I plan on using my doctor if he will order them and doing it myself if he will not. My specialist has told me point blank that I do not need to order such tests and that I should stop being silly. I thought that was irresponsible and I found a new specialist. I just can't see him until August. I have a disease which impacts absorption and causes potential malnutrition. I need to figure out if I am deficient in any vitamins and where I stand on other issues. The food allergy test would also be a plus (if that works). I have heard good and bad things. 

0

Share this post


Link to post
Share on other sites

Jesse,

 

I can't speak for the lab, but I understand your frustration.  My GI just said to take 2 iron pills and two calcium pills a day.  Told me that typically his patients don't benefit from a dietitian (that's okay for me because my husband's been gluten-free for 12 years, but others?).  

 

Followed up with my PCP after being in the hospital (focus was on a heart attack which I didn't have and nuclear stress test proved it).  Armed with the "Up-To-Date Management blog by Jebbie (pediatrician with celiac disease) in June 2013 in hand, I started the visit with "f/u from hospital but look at this article I found on Celiac.com.  Doc said that he uses the website where this information came from (so legit article).  I asked about screenings for deficiencies.  Told me to go back to my GI or take a multi-vitamin.  Then reviewed the hospital one X-ray -- "humm....broken vertebrae, I guess I should order a bone scan."  The worst yet:  "Some DC patients have bloody diarrhea, but yours isn't so bad you could probably eat a little."

 

Okay.  He's probably limited on procedures (HMO) and he sees a ton of patients who might not have celiac disease and doesn't have time to research everything, but really? (My old PDP/GP of over twenty years retired in December, and geez, he'd give you a PAP to save you time....)

 

Back to the blood test, I took them almost years ago ordered by a MD (Environmental Medicine) who thought outside the "box", lived in the University Medical Library, and a grad of MIT but now retired too.  

He said although they are not 100% accurate, it is at least, a place to start.  Did skin testing too.

 

I found my major food and inhalant allergies (pollen, mold, eggs, casein, whey, almonds, mushrooms and garlic.  Other were less, but I rotated them.  Can eat some tree nuts (walnuts), but not almonds....weird.

 

I still have those allergies, but I'm three months into the celiac disease diet.  It would be a miracle if I could get those foods back, but I'm hoping.  In the meantime, as long as I avoid those foods and the gluten, I'm feeling much better.  Just trying to get through the deficiencies (e.g. iron anemia, whacked thyroid).  Bone scan in August (I'm going on vacation) and then I'll know if I should be safely back on a bike again).  For now, it's swimming and walking!  

 

Go for the testing yourself, unless you can find a savy doc!

1

Share this post


Link to post
Share on other sites

I finally found a new doc who has agreed to do vitamin deficiency testing and a food allergy panel. I hope this at least helps a little bit because it has been a miserable last few months. I have been gluten-free for 3 months now. The first week was great but now the symptoms just keep cycling through. The most troubling aspect has been my pulse and heartbeat this week. I had to go do the stress test just like you, CyclingLady and it came back clean *thank goodness* but I still get tender and my pulse shoots up to 100 while I am lying in bed at night. I think this is what is waking me up. I generally wake up around 1 to 3 every night and have a rough time falling back asleep. This makes me tired all the next day and just seems like an endless cycle.

 

I don't do well with uncertainty. Thankfully I have this community and maybe a new doc now. I would be lost without help. Just being gluten free does not cut it.

 

Thanks!

Jesse

0

Share this post


Link to post
Share on other sites




I finally found a new doc who has agreed to do vitamin deficiency testing and a food allergy panel. I hope this at least helps a little bit because it has been a miserable last few months. I have been gluten-free for 3 months now. The first week was great but now the symptoms just keep cycling through. The most troubling aspect has been my pulse and heartbeat this week. I had to go do the stress test just like you, CyclingLady and it came back clean *thank goodness* but I still get tender and my pulse shoots up to 100 while I am lying in bed at night. I think this is what is waking me up. I generally wake up around 1 to 3 every night and have a rough time falling back asleep. This makes me tired all the next day and just seems like an endless cycle.

 

I don't do well with uncertainty. Thankfully I have this community and maybe a new doc now. I would be lost without help. Just being gluten free does not cut it.

 

Thanks!

Jesse

that early awake ; could be blood sugar related.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,354
    • Total Posts
      920,511
  • Topics

  • Posts

    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,423
    • Most Online
      1,763

    Newest Member
    Kimmieellis
    Joined