Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Can Someone Advise Me...
0

3 posts in this topic

Hi,

I desperately need some advise.

I've been having dull stomach aches and pressure in colon for the past few years. It's worse after a eat. I also suffer from constipation and haven't hsd diarrhea for at least 4 years, not even once. My other symptoms are chronic depression and anxiety for the past 16 years. And even as a child I was quite anxious, always worrying, but that could be due to my very strict father, whom I was terrified of. At 13 i developed eye inflammation (posterior uveitis), doctors did several tests but never found the cause. I have had recurring uveitis over the years and developed chataracts on both eyes. I'm 38 now. The past 5 years I have been getting numbness that starts in my hands and spreads to my whole body from my neck down to my toes. It stays for 2 to 3 months and dissapears very gradually. MRI of spine didn't show signs of MS. I've also suffered knee pain for a long time. Vaginal thrush was also a problem for me since I was a teenager, but that has resolved after a strict anticandida diet. Last year I had an endoscopy which showed a hiatus hernia and a blood test showed H. Pylori.

Depression and anxiety are my worst symptoms of all, and antidepressants never helped.

Do you think all of this could be due to gluten intolerance? I had bllod tests done last year but they came back negative. I asked for my levels of IgA to be tested and they were quite low. I read that they can be low in gluten intolerant people.

Started a gluten free/casein free diet a week ago, but my stomach ache is still there and I feel very irritable and down. The only improvement I've seen is my face, which used to be extremely oily has become drier the past two days and my severe acne which I've been battling for at least 15 years havw startwd to clear up. I would go for a biopsy but what if it shows that I don't havw celiac, what do I do then...

I would really appreciate your opinions.

Ana

0

Share this post


Link to post
Share on other sites


Ads by Google:

Ana, it COULD be celiac, or it could be non-celiac gluten intolerance. It could be something else entirely. If you want to get tested you need to be eating gluten. If testing isn't important to you you could just try the gluten-free diet and see if your symptoms improve. A week isn't long enough to see any results so don't let that discourage you. If I remember correctly, I went through two weeks of gluten withdrawal - headaches, foggy brain, constant hunger, and just an overall sense that something was wrong. Then that lifted. it was after three weeks of being gluten-free that I started seeing results.

 

But some people take much longer to see any relief. And if you have a lot of damage, although you may notice things getting better it could take a couple of years to completely heal.

 

You should also read the Newbie 101 thread here. It will help you to eliminate any chance of cross contamination. For example, if you are still using your old toaster, your old strainer, your old wooden spoons, you are getting gluten. If you use the same mayonaise jar that someone dipped a knife into after touching bread, you are getting gluten.

 

After reading Newbie 101, look around and read as much as you can on this forum. You will learn a lot. And ask as many questions as come to mind. We are here to help. :)

0

Share this post


Link to post
Share on other sites

Welcome to the board. :)

I agree with Bartful, it can take a long time for symptoms to improve. I had some improvements in the first few weeks, but I was still having symptoms improve at 6 month gluten-free. This disease requires a lot of patience.... Unfortunately.

This report has lots of info on celiac disease and it's tests: http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf. Pages 11-12 discus the tests.

Good luck with whatever you decide to do,whether it is celiac disease testing or going gluten-free.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,873
    • Total Posts
      919,412
  • Topics

  • Posts

    • Toblerone
      I don't eat chocolate often, but I have never had a gluten reaction to Toblerone. I trust it to be gluten-free.
    • So I've been glutened....
      I am so sorry for how your feeling.  I can sympathize; over time I notice I couldn't have any type of gluten free products.  I read that since you don't have villi in your small intestines you have no defenses, meaning even the tiniest bit of exposure causes a flare up.  I even have to be careful when I purchase products by reading the labels to ensure it says manufactured by a nut, soy, milk and wheat free facility.  Be very careful, unfortunately
    • Symptoms despite strict gluten-free -- new here
      I have been reading a lot about leak gut syndrome which is new to the medical community in the sense that they don't know how to manage it.  If (you are female) make sure to do a yearly pap and uterine check to ensure there is no issues there.  If you are not a female then definitely confirm with an endoscopy if your small intestines are still damaged.  I am looking into doing the leaky gut diet to see if it will help, the book I am reading is "Eat Dirt" by Dr Josh Axe.  Especially since I notice anytime I am exposed to gluten by accident my symptoms are worse each and every time.  I know get severe back and rib cage pain, with bloating, gurgling and diarrhea with severe nausea.  I am willing to try anything and I am now reading this book and applying the diet to see if I can heal my intestinal lining.
    • Help
      Ok so I had my colonoscopy & endoscopy last Thursday. Don't get results until July 13th as GI is on vacation. I've had bad pain in my lower left abdomen that wraps around to my lower back as well for the past 4 days..even hurts to touch lightly. Went back to the ER & they did an ultrasound & CT scan. The Doctor said that I have "prominent" lymph nodes in the area that is painful as well as thickening & inflammation of my Sigmond colon? Um ok what is that all about? Kind of freaking out over the whole swollen lymph nodes thing. Has anyone ever dealt with this before? 😒
    • Enormous Stool
      My 2 year old daughter has sufferd with extremely large stools for over a year. She will have a bm once or twice a week there has been blood sometimes i took her to the docs and they gave her some stool softner which didnt help they tried uping the dose which still didnt help and they told me it would eventually work which didnt she was then put on movicol which she was only supposed to get half a sachet still no diffrence i uped it to the the full sachet which helps a little she doesnt always have large stools but most of the time she does. She has got to a stage where she clenches and wont let it out because of how sore it is i try to put her on the toilet for it to come a little easier for her but she screams and will try hide herself in a corner and wont let you anywere near her it is heart breaking to watch her. If anyone has any in advice i would really like to hear.   Thanks.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,909
    • Most Online
      1,763

    Newest Member
    Fourpeople
    Joined