Posted 02 July 2013 - 09:17 AM
What are her symptoms?
Does this GI have a lot of experience with Celiac Disease and Non Celiac Gluten Sensitivity -- sadly, not all GIs do. I find it curious that he/she would completely rule out Celiac Disease with a positive antibody test if they have extensive experience with young children.
Be sure to ask for a written or electronic copy of both the pathology and procedural reports from the endoscopy along with any blood tests. This data may become very important to you down the road.
And yes....if your child has any symptoms associated with Celiac Disease and a positive DGP IgG, then it is of great value to completely remove ALL gluten one the endoscopy is complete for at least 3-6 months to monitor symptoms. There is no test for NCGS except elimination of gluten.
Good Luck to your family
PS...make sure to have the full celiac antibody panel run again after 3 months completely gluten free -- that positive DGP-IgG means your daughter is making antibodies to one of the peptides (Gliadin) that makes up the protein in Gluten.
Edited by GottaSki, 02 July 2013 - 09:22 AM.
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/25/13 - MCAD
Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile
My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free
Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS
Get PROPERLY tested BEFORE REMOVING GLUTEN.
ALWAYS independently research health related information found on internet forums/blogs.
"LTES" a Gem