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Symptom Relief


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7 replies to this topic

#1 Yellow Rose

 
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Posted 02 July 2013 - 03:01 PM

I have a DH rash on my chest.  Have had celiac 6 years and this is the first time with this reaction. I recently read about the healing properties of coconut oil.  Last night the itching and burning was driving me nuts and I couldn't sleep. I had an old, barely used jar of coconut oil in the back of my fridge.It was hard and cold.  I scraped some off with my fingernail and applied it to the rash.  Relief was immediate.  The burning stopped, the itch was still there but not too much.  I have to reapply when it starts back up but so far so good. I have noticed that my skin is peeling a little like a sunburn.  I used Organic Unrefined Expreller Pressed Virgin Coconut Oil.  How long will this last?

Yellow Rose


  • 0
27 years of misdiognoses
seziures summer of 1979 lasted 10 years had maybe a dozen in that time Dr.s never could find what was causing them blamed it on lack of sleep and maybe nutrasweet
rheumatoid arthritis May 1980
wrist joint replacement Jan 1984
fibromyalgia May 1980
insomnia since the 80's
diarrhea 1995-2000 blamed on arthritis meds
Crohn's 1998 after two operations to fix fissures caused by the diarrhea
Other symptons over the last 27 years that have been treated for symptoms not causes:
depression, anemia, constipation, tooth discoloration, tremors in hands, tingling and numbness in feet and hands, fatigue, high blood pressure due to arthritus meds, flushing in face, severe muscle pain and thinking I was going crazy thanks to Dr.'s attitudes.

After diognoses my mother tells me I have an aunt and a cousin with Celiac. Mother tested negative but thinks she is intolerant to wheat and is changing her diet.
Suspect all three of my children have it as well but still trying to convince them to go get tested.

In answer to my prayer, "Lord Please Heal My Broken Body". May 2007 Celiac antibody test positive
Matthew 7: 8 Ask and ye shall receive, Seek and ye shall find, Knock and it shall be opened unto you.

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#2 squirmingitch

 
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Posted 02 July 2013 - 03:16 PM

Are you asking how long the rash will last or how long the relief from the coconut oil will last? Actually, don't even bother to answer that b/c there is no set time for either. It all depends on so many things & lastly it depends on your particular reaction.

 

You do know, don't you that if you've been dx'd for 6 years & this is the first time you've gotten dh that it means you've gotten glutened or cc'd?


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#3 Yellow Rose

 
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Posted 02 July 2013 - 04:53 PM

Yes, I got glutened 4 x in one week. My new son-in-law was living with us before they found a place and bought some mayo that he liked.  When they moved out they forgot to take it with them. I was unaware of all this.  Last Wed I made deviled eggs and grabbed what was in the fridge. We have both squeeze and jar in my fridge and am used to everyone checking things before putting in my fridge.  I ate more eggs the next day, had burgers on Fri. and a BLT Sat. as I was putting it up the label was facing me and you know how you automaticly read labels, well there it was WHEAT.  I didn't get the usual stomach pains and such but did have horrible insomnia,then the itching started, brain fog, what I thought was hives, little blisters in the rash, just got worse as I kept eating the mayo and of course I didn't catch it until I finished the BLT. I have heard about DH and read some on it but the itching is horrible.  My understanding is it dries out but is it ok to help it along by poping the little blisters?


  • 0
27 years of misdiognoses
seziures summer of 1979 lasted 10 years had maybe a dozen in that time Dr.s never could find what was causing them blamed it on lack of sleep and maybe nutrasweet
rheumatoid arthritis May 1980
wrist joint replacement Jan 1984
fibromyalgia May 1980
insomnia since the 80's
diarrhea 1995-2000 blamed on arthritis meds
Crohn's 1998 after two operations to fix fissures caused by the diarrhea
Other symptons over the last 27 years that have been treated for symptoms not causes:
depression, anemia, constipation, tooth discoloration, tremors in hands, tingling and numbness in feet and hands, fatigue, high blood pressure due to arthritus meds, flushing in face, severe muscle pain and thinking I was going crazy thanks to Dr.'s attitudes.

After diognoses my mother tells me I have an aunt and a cousin with Celiac. Mother tested negative but thinks she is intolerant to wheat and is changing her diet.
Suspect all three of my children have it as well but still trying to convince them to go get tested.

In answer to my prayer, "Lord Please Heal My Broken Body". May 2007 Celiac antibody test positive
Matthew 7: 8 Ask and ye shall receive, Seek and ye shall find, Knock and it shall be opened unto you.

#4 squirmingitch

 
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Posted 02 July 2013 - 06:38 PM

Oh, I'm sooooo sorry hon! Yep, you got it allright. Maybe it won't last that long with you. If you've been really, really strict & not had any slip ups but this one then that's a better chance that this will be a milder, shorter lasting outbreak. 

Yes, we know how horrid the itching is. Read this thread for tips on how to deal with it.

http://www.celiac.co...ing-pain-of-dh/

 

Yes, I think all of us pop the blisters. We can't stand not to. They drive you NUTS until you do. Mine sting like fire ants until I do. Then everything stops for a few hours & then the itching starts. But if you don't pop the dratted things you just suffer longer. 

 

We're here if you need any more help, have questions or just want to pitch a fit & scream, moan & complain. Been there, done that.

(((((HUGS)))))

 

OH! And cut out the high iodine foods until the rash starts going away, that should help give you some relief. iodine makes it go bonkers. For low iodine diet see

http://www.thyca.org...31/Cookbook.pdf


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#5 Rowena

 
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Posted 03 July 2013 - 09:39 AM

Oh, I didn't know Iodine made a difference in the rash healing!!!! Thanks for that tip!

 

Meanwhile, I agree with squirmingitch, the disappearance varies, same with coconut oil or any itch relief for that matter...  (Just don't do what I do and say 'Oh I feel miserable anyway, I'll eat more gluten/dairy...)


  • 0

Gluten Free since Oct. 1, 2010
Fish/Seafood Free since 1997
Chocolate Free (with a few taste tests to see if I'm just crazy) since 2001.
Officially Dairy free 8/5/2013 (mostly dairy free before that, but I like my cheese and things) (dx'd officially with lactose intolerance, suspect casein too though)
Esophagitis dx'd 8/5/2013 thus doing a diet devoid of acidic foods and stuff


#6 squirmingitch

 
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Posted 03 July 2013 - 09:53 AM

Rowena, I would like to clarify ~~~ for some reason iodine (for most of us) just makes the rash that much worse or if your rash is all laid down & then you go eating a lot of iodine heavy foods it can make the rash flare like all get out. Iodine doesn't necessarily make the rash heal but going low iodine can take the edge off & sometimes make a big difference. In yellow rose's case; being that she's been gluten-free for so long, it might make all the difference in the world for her. For someone like myself who has had dh for years until I discovered it is actually celiac & have been 19 months gluten-free but still have rash presenting b/c the antibodies are not out of my skin yet; iodine makes my rash so much worse. I am remaining low iodine.


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#7 Rowena

 
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Posted 03 July 2013 - 10:20 AM

Yeah, that's what I meant... I'm HORRIBLE at writing/saying what I mean... But the tip is much appreciated because when I break out (for lack of a better phrase) anything to make it a little better would be amazing!


  • 0

Gluten Free since Oct. 1, 2010
Fish/Seafood Free since 1997
Chocolate Free (with a few taste tests to see if I'm just crazy) since 2001.
Officially Dairy free 8/5/2013 (mostly dairy free before that, but I like my cheese and things) (dx'd officially with lactose intolerance, suspect casein too though)
Esophagitis dx'd 8/5/2013 thus doing a diet devoid of acidic foods and stuff


#8 squirmingitch

 
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Posted 03 July 2013 - 03:02 PM

It's hard to wrote what we mean w/o the possibility of it being misinterpreted. I've written stuff & it seemed perfectly clear to me when I checked it before I posted it. Then I have gone back later & read it & thought OH NO! that sounds completely different than my intent. If you actually know the person you're writing to then they know how you say things & the way you mean them but when we have never spoken in person, it can be hard. No voice inflections or body language to go along with the text.


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 





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