Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Symptom Relief
0

8 posts in this topic

I have a DH rash on my chest.  Have had celiac 6 years and this is the first time with this reaction. I recently read about the healing properties of coconut oil.  Last night the itching and burning was driving me nuts and I couldn't sleep. I had an old, barely used jar of coconut oil in the back of my fridge.It was hard and cold.  I scraped some off with my fingernail and applied it to the rash.  Relief was immediate.  The burning stopped, the itch was still there but not too much.  I have to reapply when it starts back up but so far so good. I have noticed that my skin is peeling a little like a sunburn.  I used Organic Unrefined Expreller Pressed Virgin Coconut Oil.  How long will this last?

Yellow Rose

0

Share this post


Link to post
Share on other sites


Ads by Google:

Are you asking how long the rash will last or how long the relief from the coconut oil will last? Actually, don't even bother to answer that b/c there is no set time for either. It all depends on so many things & lastly it depends on your particular reaction.

 

You do know, don't you that if you've been dx'd for 6 years & this is the first time you've gotten dh that it means you've gotten glutened or cc'd?

0

Share this post


Link to post
Share on other sites

Yes, I got glutened 4 x in one week. My new son-in-law was living with us before they found a place and bought some mayo that he liked.  When they moved out they forgot to take it with them. I was unaware of all this.  Last Wed I made deviled eggs and grabbed what was in the fridge. We have both squeeze and jar in my fridge and am used to everyone checking things before putting in my fridge.  I ate more eggs the next day, had burgers on Fri. and a BLT Sat. as I was putting it up the label was facing me and you know how you automaticly read labels, well there it was WHEAT.  I didn't get the usual stomach pains and such but did have horrible insomnia,then the itching started, brain fog, what I thought was hives, little blisters in the rash, just got worse as I kept eating the mayo and of course I didn't catch it until I finished the BLT. I have heard about DH and read some on it but the itching is horrible.  My understanding is it dries out but is it ok to help it along by poping the little blisters?

0

Share this post


Link to post
Share on other sites

Oh, I'm sooooo sorry hon! Yep, you got it allright. Maybe it won't last that long with you. If you've been really, really strict & not had any slip ups but this one then that's a better chance that this will be a milder, shorter lasting outbreak. 

Yes, we know how horrid the itching is. Read this thread for tips on how to deal with it.

http://www.celiac.com/gluten-free/topic/96552-help-for-the-itching-stinging-burning-pain-of-dh/

 

Yes, I think all of us pop the blisters. We can't stand not to. They drive you NUTS until you do. Mine sting like fire ants until I do. Then everything stops for a few hours & then the itching starts. But if you don't pop the dratted things you just suffer longer. 

 

We're here if you need any more help, have questions or just want to pitch a fit & scream, moan & complain. Been there, done that.

(((((HUGS)))))

 

OH! And cut out the high iodine foods until the rash starts going away, that should help give you some relief. iodine makes it go bonkers. For low iodine diet see

http://www.thyca.org/download/document/231/Cookbook.pdf

0

Share this post


Link to post
Share on other sites

Oh, I didn't know Iodine made a difference in the rash healing!!!! Thanks for that tip!

 

Meanwhile, I agree with squirmingitch, the disappearance varies, same with coconut oil or any itch relief for that matter...  (Just don't do what I do and say 'Oh I feel miserable anyway, I'll eat more gluten/dairy...)

0

Share this post


Link to post
Share on other sites




Rowena, I would like to clarify ~~~ for some reason iodine (for most of us) just makes the rash that much worse or if your rash is all laid down & then you go eating a lot of iodine heavy foods it can make the rash flare like all get out. Iodine doesn't necessarily make the rash heal but going low iodine can take the edge off & sometimes make a big difference. In yellow rose's case; being that she's been gluten-free for so long, it might make all the difference in the world for her. For someone like myself who has had dh for years until I discovered it is actually celiac & have been 19 months gluten-free but still have rash presenting b/c the antibodies are not out of my skin yet; iodine makes my rash so much worse. I am remaining low iodine.

0

Share this post


Link to post
Share on other sites

Yeah, that's what I meant... I'm HORRIBLE at writing/saying what I mean... But the tip is much appreciated because when I break out (for lack of a better phrase) anything to make it a little better would be amazing!

0

Share this post


Link to post
Share on other sites

It's hard to wrote what we mean w/o the possibility of it being misinterpreted. I've written stuff & it seemed perfectly clear to me when I checked it before I posted it. Then I have gone back later & read it & thought OH NO! that sounds completely different than my intent. If you actually know the person you're writing to then they know how you say things & the way you mean them but when we have never spoken in person, it can be hard. No voice inflections or body language to go along with the text.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,608
    • Total Posts
      918,336
  • Topics

  • Posts

    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,707
    • Most Online
      1,763

    Newest Member
    Ree8080
    Joined