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Symptom Relief
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I have a DH rash on my chest.  Have had celiac 6 years and this is the first time with this reaction. I recently read about the healing properties of coconut oil.  Last night the itching and burning was driving me nuts and I couldn't sleep. I had an old, barely used jar of coconut oil in the back of my fridge.It was hard and cold.  I scraped some off with my fingernail and applied it to the rash.  Relief was immediate.  The burning stopped, the itch was still there but not too much.  I have to reapply when it starts back up but so far so good. I have noticed that my skin is peeling a little like a sunburn.  I used Organic Unrefined Expreller Pressed Virgin Coconut Oil.  How long will this last?

Yellow Rose

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Are you asking how long the rash will last or how long the relief from the coconut oil will last? Actually, don't even bother to answer that b/c there is no set time for either. It all depends on so many things & lastly it depends on your particular reaction.

 

You do know, don't you that if you've been dx'd for 6 years & this is the first time you've gotten dh that it means you've gotten glutened or cc'd?

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Yes, I got glutened 4 x in one week. My new son-in-law was living with us before they found a place and bought some mayo that he liked.  When they moved out they forgot to take it with them. I was unaware of all this.  Last Wed I made deviled eggs and grabbed what was in the fridge. We have both squeeze and jar in my fridge and am used to everyone checking things before putting in my fridge.  I ate more eggs the next day, had burgers on Fri. and a BLT Sat. as I was putting it up the label was facing me and you know how you automaticly read labels, well there it was WHEAT.  I didn't get the usual stomach pains and such but did have horrible insomnia,then the itching started, brain fog, what I thought was hives, little blisters in the rash, just got worse as I kept eating the mayo and of course I didn't catch it until I finished the BLT. I have heard about DH and read some on it but the itching is horrible.  My understanding is it dries out but is it ok to help it along by poping the little blisters?

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Oh, I'm sooooo sorry hon! Yep, you got it allright. Maybe it won't last that long with you. If you've been really, really strict & not had any slip ups but this one then that's a better chance that this will be a milder, shorter lasting outbreak. 

Yes, we know how horrid the itching is. Read this thread for tips on how to deal with it.

http://www.celiac.com/gluten-free/topic/96552-help-for-the-itching-stinging-burning-pain-of-dh/

 

Yes, I think all of us pop the blisters. We can't stand not to. They drive you NUTS until you do. Mine sting like fire ants until I do. Then everything stops for a few hours & then the itching starts. But if you don't pop the dratted things you just suffer longer. 

 

We're here if you need any more help, have questions or just want to pitch a fit & scream, moan & complain. Been there, done that.

(((((HUGS)))))

 

OH! And cut out the high iodine foods until the rash starts going away, that should help give you some relief. iodine makes it go bonkers. For low iodine diet see

http://www.thyca.org/download/document/231/Cookbook.pdf

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Oh, I didn't know Iodine made a difference in the rash healing!!!! Thanks for that tip!

 

Meanwhile, I agree with squirmingitch, the disappearance varies, same with coconut oil or any itch relief for that matter...  (Just don't do what I do and say 'Oh I feel miserable anyway, I'll eat more gluten/dairy...)

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Rowena, I would like to clarify ~~~ for some reason iodine (for most of us) just makes the rash that much worse or if your rash is all laid down & then you go eating a lot of iodine heavy foods it can make the rash flare like all get out. Iodine doesn't necessarily make the rash heal but going low iodine can take the edge off & sometimes make a big difference. In yellow rose's case; being that she's been gluten-free for so long, it might make all the difference in the world for her. For someone like myself who has had dh for years until I discovered it is actually celiac & have been 19 months gluten-free but still have rash presenting b/c the antibodies are not out of my skin yet; iodine makes my rash so much worse. I am remaining low iodine.

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Yeah, that's what I meant... I'm HORRIBLE at writing/saying what I mean... But the tip is much appreciated because when I break out (for lack of a better phrase) anything to make it a little better would be amazing!

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It's hard to wrote what we mean w/o the possibility of it being misinterpreted. I've written stuff & it seemed perfectly clear to me when I checked it before I posted it. Then I have gone back later & read it & thought OH NO! that sounds completely different than my intent. If you actually know the person you're writing to then they know how you say things & the way you mean them but when we have never spoken in person, it can be hard. No voice inflections or body language to go along with the text.

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       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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