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Not Sure What To Do


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#1 thegirlsmom

 
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Posted 02 July 2013 - 03:12 PM

Hi, 

I have been experiencing some symptoms, which I know can be due to so many different things and I was hoping you all could lead me in a direction to persue. 

 2 1/2 years ago I was led to a celiac diagnosis because my Alopecia Areata was getting stronger and lasting longer.  Going gluten free not only stabilized my hairloss,  but it also regulated my hormones(I was told a few years earlier- at 33 - that I was perimenopausal).  At the time I had my thyroid checked because I do have a family history of thyroid disease - it was negitive.

 

Since being gluten free I have felt like a different person and none of those issues have been the least bit of concern until recently. I had even convinced myself that the perimenopausal diagnosis was wrong and it was all part of the celiac. 

 

It seems like overnight everything has changed.  I fear what my hair is doing because it feels like it is just falling out all over.  I have stiff joints,  muscle pain,  headaches, fatigue, anxiety, mood swings, and last month my period was about 2 1/2 weeks late, which I know are all symptoms of menopause and knowing that the Dr used the perimenopausal word 5 years ago......I am 38.  This month I am 3 days late but waiting, which is why I am here for help. 

 

Generally my biggest glutening symptom is fatigue and grumpies which ends in a couple weeks.  Otherwise I am asymptomatic.

 

I have been under a lot of stress. 

 

I am not sure if I should persue thyroid testing, go see my gyno,  relax and assume it's stress,  or try to figure if I am getting contaminated somehow. 

 

I know stress can cause flare ups in a lot of autoimmune diseases,  can it cause flare ups in celiac? 

 

Any thoughts would be appreciated.

 

 

 


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#2 shadowicewolf

 
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Posted 02 July 2013 - 09:58 PM

Hi, 

I have been experiencing some symptoms, which I know can be due to so many different things and I was hoping you all could lead me in a direction to persue. 

 2 1/2 years ago I was led to a celiac diagnosis because my Alopecia Areata was getting stronger and lasting longer.  Going gluten free not only stabilized my hairloss,  but it also regulated my hormones(I was told a few years earlier- at 33 - that I was perimenopausal).  At the time I had my thyroid checked because I do have a family history of thyroid disease - it was negitive.

 

Since being gluten free I have felt like a different person and none of those issues have been the least bit of concern until recently. I had even convinced myself that the perimenopausal diagnosis was wrong and it was all part of the celiac. 

 

It seems like overnight everything has changed.  I fear what my hair is doing because it feels like it is just falling out all over.  I have stiff joints,  muscle pain,  headaches, fatigue, anxiety, mood swings, and last month my period was about 2 1/2 weeks late, which I know are all symptoms of menopause and knowing that the Dr used the perimenopausal word 5 years ago......I am 38.  This month I am 3 days late but waiting, which is why I am here for help. 

 

Generally my biggest glutening symptom is fatigue and grumpies which ends in a couple weeks.  Otherwise I am asymptomatic.

 

I have been under a lot of stress. 

 

I am not sure if I should persue thyroid testing, go see my gyno,  relax and assume it's stress,  or try to figure if I am getting contaminated somehow. 

 

I know stress can cause flare ups in a lot of autoimmune diseases,  can it cause flare ups in celiac? 

 

Any thoughts would be appreciated.

Stress is the issue here.

 

As for celiac, I have not heard of it causing flare ups, however, I believe stress can mimic them.


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#3 GottaSki

 
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Posted 02 July 2013 - 10:15 PM

Hi, 

I have been experiencing some symptoms, which I know can be due to so many different things and I was hoping you all could lead me in a direction to persue. 

 2 1/2 years ago I was led to a celiac diagnosis because my Alopecia Areata was getting stronger and lasting longer.  Going gluten free not only stabilized my hairloss,  but it also regulated my hormones(I was told a few years earlier- at 33 - that I was perimenopausal).  At the time I had my thyroid checked because I do have a family history of thyroid disease - it was negitive.

 

Since being gluten free I have felt like a different person and none of those issues have been the least bit of concern until recently. I had even convinced myself that the perimenopausal diagnosis was wrong and it was all part of the celiac. 

 

It seems like overnight everything has changed.  I fear what my hair is doing because it feels like it is just falling out all over.  I have stiff joints,  muscle pain,  headaches, fatigue, anxiety, mood swings, and last month my period was about 2 1/2 weeks late, which I know are all symptoms of menopause and knowing that the Dr used the perimenopausal word 5 years ago......I am 38.  This month I am 3 days late but waiting, which is why I am here for help. 

 

Generally my biggest glutening symptom is fatigue and grumpies which ends in a couple weeks.  Otherwise I am asymptomatic.

 

I have been under a lot of stress. 

 

I am not sure if I should persue thyroid testing, go see my gyno,  relax and assume it's stress,  or try to figure if I am getting contaminated somehow. 

 

I know stress can cause flare ups in a lot of autoimmune diseases,  can it cause flare ups in celiac? 

 

Any thoughts would be appreciated.

 

It is my experience that the damage caused by Celiac Disease can indeed cause autoimmune flares....Celiac itself doesn't 'flare' unless gluten is ingested.

 

Stress can exacerbate this - as can hormone imbalance.  My suggestion is go to your doctor -- ask for complete hormone panel to include TSH, Free T3, Free T4, eseridol, testosterone, progesterone and Thyroid antibodies...hmmm...list looks short - i'll try to double check in the morning.

 

Good Night!


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#4 dilettantesteph

 
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Posted 03 July 2013 - 04:14 AM

Have you changed something in your diet?  Did you try a new product or eat our where some cc might have happened?  Is your celiac having a flare due to accidental gluten ingestion?


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