Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Similac Formulas
0

5 posts in this topic

My 2 almost 3 month old is on Similac Alimentum due to a milk allergy, but since I've got a gluten intolerance, I'm also worried it might manifest itself with him.  Its supposed to be easy on the the tummy for babies with food allergies... But I was wondering is it really without gluten?  Or ANY formula for that matter?  I mean when I read the can I noticed it said 'Casein' with some variation of saying it was made more digestible...  (How is that milk-free?)

0

Share this post


Link to post
Share on other sites


Ads by Google:

it's not milk free, but it may have been pre-digested so as not to trigger the response that your son would experience.  I have not seen ANY formula contain gluten (though I admit this is second hand information, hopefully moms who had to verify formula was gluten free for their little ones can help).

0

Share this post


Link to post
Share on other sites

If your son is tolerating Alimentum well, that sounds like a good sign. My daughter had extensive digestive problems and moderate neurological problems starting when she was just a few weeks old and exclusively breast feeding. She still had problems even after I'd completely stopped eating dairy (though that did help a little bit). At five and a half months, an allergist and pediatric GI doctor both agreed that we should try formula, since she was obviously reacting to something in my breast milk. Her food allergy tests were repeatedly negative. We did a brief trial of Alimentum, and she couldn't tolerate that either. My understanding is that it is milk-based, though the proteins are broken down extensively to make it easier to digest. I have no idea if it contains gluten, though I'd be surprised if it does. If you call the manufacturer, they should be able to tell you.

We finally ended up putting my daughter on Neocate, which is an amino acid formula with no milk (or gluten or other proteins) at all. Her recovery was so rapid that everyone was astounded. The neurologist discharged and GI both discharged her after six months on Neocate because she was doing so well. But the problems returned gradually once she started solids...and here we are another three years later, when she's just been diagnosed with celiac. In retrospect, that pretty much explains her entire health history!

This is a long-winded way of saying that if your baby seems to be doing well on Alimentum, that's great and there's probably no need to switch formulas. But if he does start having trouble digesting it, it's good to know that there is another option that has no milk in it whatsoever. Neocate is super-expensive, though - like over $220 per month in the U.S. - so it's definitely not a formula of choice unless it's really necessary. We were lucky that our insurance treated it like a prescription and paid for most of it.

0

Share this post


Link to post
Share on other sites

Thing is, I'm not sure its helping, but we tried soy and he wouldn't even swallow that (I don't think he liked the flavor of it... not that I blame him, I don't even know how he tolerates Alimentum.  It smells like crap!)... he's got a lame *insert a stream of four letter words* pediatrician I do not trust in the slightest, but stupid insurance problems won't let me have the one I do trust with my baby!

I'm just scared to death for my little one, simply because I have so many problems, that people don't seem to know what's up with me... I don't want life to be like that for him, and I am assuming to be on the safe side that he has the same intolerances/allergies that I do.  

 

As for the Neocate, my sister-in-law's sister had a baby with wheat/gluten, soy, nuts, dairy and a few others... is the Neocate soy free?  Because they wanted to put the baby on formula but all of them have soy so the mother is continuing to bf, though a lot of the things stay in her system a while, so the improvement for the baby despite the mom keeping to a blan diet isn't drastically improving...

0

Share this post


Link to post
Share on other sites

I can't comment on the formula (I breast fed for over two years), but since my husband was gluten-free and I had food allergies (now celiac disease too), I followed my allergist's advice on how to introduce foods to my daughter.  No solids until she was 8 to 9 months, then veggies first month, then added fruit for another month,  then meats.  No grains of any kind until she was a year old.  No eggs, dairy or wheat until she was two years old.  Her pediatrician balked, complained, etc., but the end result was worth it.  When she was four he mentioned that she had the "thinnest chart", meaning that she was so healthy.  She never went in for illness until she started preschool (all those shared germs).  She's healthy, slender and active as teen now.  She's consuming little gluten as we are are gluten-free household.  I only buy her gluten products in packages.  She also eats gluten at her friend's homes and at restaurants.  She has not be tested for celiac disease yet. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,652
    • Total Posts
      921,612
  • Topics

  • Posts

    • So, LST my celiac sibling thinks I should see a naturopath to get additional food sensitivity tests. I think this is swell, but expensive for me. He had a panel done and was reacting to some foods he ate the most of. I have reached out to a local allergist and they do food testing but do not accept my insurance. I was going to make some more calls tomorrow. I actually do have mild reactive airway disease too which seems to go hand-in-hand with the allergists. I honestly had no idea, but makes since. What type of tests have folks had? I know I am not allergic to most foods as of November. My former GI doc ran a basic panel then but it seemed short. Has anyone had any luck with these? I read there is a difference between IGE and IGG tests. Anyone get a doc to order them and insurance to cover? I may end up having to save up for awhile to have this done with a naturopath. But I was off of payroll recently with all of this and the idea of waiting for a couple of more months to find out what other foods may be trigging me really sucks. I am off of dairy and soy, suspicious of lettuce and shrimp.
    • How about reaching out to your local celiac disease support group? http://www.houstonceliacs.org
    • Yes, I am in Houston, TX. Can anyone recommend a good GI in Houston, lots of experience with celiac?  
    • I am sorry to hear about your mother.   It is not so hard to get a medical doctor to order a celiac panel -- especially if your father was diagnosed with celiac disease.  Our family GP did not blink an eye when I first asked my daughter to be tested.    If you think your doctor will disregard your legitimate request, you can either fire him or put the request in writing and send it certified (attorneys love documentation!)  I agree that our doctors should support us.  I have a great GI, but my GP  is pretty clueless when it comes to celiac disease, but she admits it.    She does always order all the lab tests I request.  Perhaps it is because I come in with supporting medical documentation and evidence.  If she was not supportive to my satisfaction, I would find a new doctor.   Again, you can go gluten free in your own.   Chance are you have celiac disease.    But it is hard.  Really hard if you do not have the support of your family.  That is my concern.   Are you in the US?  
    • I've just read SO MUCH about the long, arduous process of getting a positive diagnosis through traditional medicine - I'm not sure I want to put myself through all that. Since my father WAS positively diagnosed - I carry the celiac gene and another gene that predisposes me to gluten sensitivity - and my fecal tests for gliadin were SO elevated - there are enough reasons for me to go to a gluten free diet. The true medical diagnosis would just make it easier for my family/friends to believe the necessity of it. My children are adults and not particularly health care nuts. I doubt they would take their own risk seriously without a medical diagnosis. I'm afraid my husband, while he is trying to be supportive at this point, will grow weary of all the things I no longer serve at meals and all the places we will no longer go to because there are not gluten free alternatives on the menu. A medical diagnosis would make it easier for him, long term, I think.  I don't have much faith in general in our western health care system. My mother died 6 months ago at age 82 after 4-5 years of many different health issues. She had given up the keys to her car in her late 70's after getting lost several times. I became her designated driver to all doctor appointments, procedures, hospital stays, etc. The incompetence and disregard I saw blew me away. I'm surprised any elderly people survive our health care system once they get on that revolving door. The reason I started seeing a naturopath is that I am looking for an alternative to medical doctors for most of my health issues as I age. I know there are some things I still have to see them for - and of course, they are essential in trauma and emergency situations. But I am on a quest to follow a more holistic approach to my health care. If this is the path I am choosing, then I have to follow my gut (no pun intended) in situations like this. I think the only reason I would go through the medical testing would be for other people - not me. It seems to me, that with so many people being gluten intolerant these days, a decent M.D. would listen to a patient that was adamant about their intent to live gluten free - positive celiac diagnosis or not (and especially with the gene and stool test results). I mean, they don't tell vegetarians they have to eat meat ... and vegetarianism is a personal choice. Sorry if I seem to be rambling ... this is all so new, and I'm trying to find my way.    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined