Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Similac Formulas
0

5 posts in this topic

My 2 almost 3 month old is on Similac Alimentum due to a milk allergy, but since I've got a gluten intolerance, I'm also worried it might manifest itself with him.  Its supposed to be easy on the the tummy for babies with food allergies... But I was wondering is it really without gluten?  Or ANY formula for that matter?  I mean when I read the can I noticed it said 'Casein' with some variation of saying it was made more digestible...  (How is that milk-free?)

0

Share this post


Link to post
Share on other sites


Ads by Google:

it's not milk free, but it may have been pre-digested so as not to trigger the response that your son would experience.  I have not seen ANY formula contain gluten (though I admit this is second hand information, hopefully moms who had to verify formula was gluten free for their little ones can help).

0

Share this post


Link to post
Share on other sites

If your son is tolerating Alimentum well, that sounds like a good sign. My daughter had extensive digestive problems and moderate neurological problems starting when she was just a few weeks old and exclusively breast feeding. She still had problems even after I'd completely stopped eating dairy (though that did help a little bit). At five and a half months, an allergist and pediatric GI doctor both agreed that we should try formula, since she was obviously reacting to something in my breast milk. Her food allergy tests were repeatedly negative. We did a brief trial of Alimentum, and she couldn't tolerate that either. My understanding is that it is milk-based, though the proteins are broken down extensively to make it easier to digest. I have no idea if it contains gluten, though I'd be surprised if it does. If you call the manufacturer, they should be able to tell you.

We finally ended up putting my daughter on Neocate, which is an amino acid formula with no milk (or gluten or other proteins) at all. Her recovery was so rapid that everyone was astounded. The neurologist discharged and GI both discharged her after six months on Neocate because she was doing so well. But the problems returned gradually once she started solids...and here we are another three years later, when she's just been diagnosed with celiac. In retrospect, that pretty much explains her entire health history!

This is a long-winded way of saying that if your baby seems to be doing well on Alimentum, that's great and there's probably no need to switch formulas. But if he does start having trouble digesting it, it's good to know that there is another option that has no milk in it whatsoever. Neocate is super-expensive, though - like over $220 per month in the U.S. - so it's definitely not a formula of choice unless it's really necessary. We were lucky that our insurance treated it like a prescription and paid for most of it.

0

Share this post


Link to post
Share on other sites

Thing is, I'm not sure its helping, but we tried soy and he wouldn't even swallow that (I don't think he liked the flavor of it... not that I blame him, I don't even know how he tolerates Alimentum.  It smells like crap!)... he's got a lame *insert a stream of four letter words* pediatrician I do not trust in the slightest, but stupid insurance problems won't let me have the one I do trust with my baby!

I'm just scared to death for my little one, simply because I have so many problems, that people don't seem to know what's up with me... I don't want life to be like that for him, and I am assuming to be on the safe side that he has the same intolerances/allergies that I do.  

 

As for the Neocate, my sister-in-law's sister had a baby with wheat/gluten, soy, nuts, dairy and a few others... is the Neocate soy free?  Because they wanted to put the baby on formula but all of them have soy so the mother is continuing to bf, though a lot of the things stay in her system a while, so the improvement for the baby despite the mom keeping to a blan diet isn't drastically improving...

0

Share this post


Link to post
Share on other sites

I can't comment on the formula (I breast fed for over two years), but since my husband was gluten-free and I had food allergies (now celiac disease too), I followed my allergist's advice on how to introduce foods to my daughter.  No solids until she was 8 to 9 months, then veggies first month, then added fruit for another month,  then meats.  No grains of any kind until she was a year old.  No eggs, dairy or wheat until she was two years old.  Her pediatrician balked, complained, etc., but the end result was worth it.  When she was four he mentioned that she had the "thinnest chart", meaning that she was so healthy.  She never went in for illness until she started preschool (all those shared germs).  She's healthy, slender and active as teen now.  She's consuming little gluten as we are are gluten-free household.  I only buy her gluten products in packages.  She also eats gluten at her friend's homes and at restaurants.  She has not be tested for celiac disease yet. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,639
    • Total Posts
      918,434
  • Topics

  • Posts

    • How effective is HD skin biopsy after being gluten free for a year
      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
      I've been gluten free for a year now and my gastro wants to wait for the endocopy until I'm eligible for the colonoscopy when I turn 50 later this year. I don't think she believes I have celiac, even though I tested positive for one of the genes associated with celiac and my primary has diagnosed me as having celiac. The gluten sensitivity blood tests came back negative, of course, since I was gluten free for 9 months at that time. Why is she waiting? At any rate, My digestive system has improved greatly, but when I reintroduced non fat Greek yogurt in my diet, the plaques psoriasis returned on my elbows. My primary believes it is dermatitis herpetiformis (as well as I, since before going gluten free, I used to get boils in my armpits) and I'm scheduled for a skin biopsy in 3 weeks. However, I eliminated dairy from my diet 4 weeks ago and the plaques psoriasis is healing like it did when I eliminated gluten from my diet a year ago. If the scar is reduced to eczema, does that mean there still are IGA deposits in my skin? I don't want to resume dairy since I experienced a cross reaction to the casein in cheese and found lactose was on that same list. So my question is, how long do the granular IGA deposits remain in the skin in order to have a valid skin biopsy test performed for dermatitis herpetiformis? Since it takes 1-2 years for dermatitis herpetiformis to heal on a gluten free diet and I just had a recent flare up, can I continue on my dairy free diet or should I resume eating non fat Greek yogurt for the next 3 weeks just for this skin biopsy?
    • Celiac Night Vision
      Thanks Cristiana. It was Mistyx7 and night driving. Migraine type is very personal but does not appear to be closely connected to celiac or my peculiar scotomas. If you think going gluten-free has improved it that deserves a separate topic!
    • Burning Sensation
      The last post was from 2011.   if you can eat a regular pizza crust with no issue, then gluten isn't your problem.  You might want to look for something else.  The amount of gluten in a beer or fryer cc is very very small compared to eating a pizza crust.   I am assuming you do not have Celiac disease.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,732
    • Most Online
      1,763

    Newest Member
    SueJ
    Joined