I have had digestive issues as long as I can remember. When I was 13, I had my first seizure that came while dealing with debilitating abdominal pain. Multiple blood tests and CAT scans could not pinpoint a cause for the seizure, so I was sent on my way. I continued to have boughts of severe abdominal pain (far worse than childbirth) usually accompanied by diarrhea. A few required trips to the ER, where I was told it was "acute colitis" cause by stress, or a virus, or something else that got me sent home quickly without any real testing. The pain was so bad I would get goosebumps over my entire body and be crying out loud in the bathroom.
At 20, I had one of these incidents but instead of diarrhea, I had pure, red blood coming out when I went to the bathroom. I went to see a GI and was scheduled for a colonoscopy. By the time the test came, the "flare" was over and the colonoscopy showed nothing, so I was again given the "acute colitis" brush-off and sent on my way. At 24, I had another series of seizures following horrific abdominal pain, and this time I was admitted to the hospital. They kept me for 5 days for every kind of neurological test you can think of, and found nothing. Never once did they even mention any kind of GI testing.
About 5-6 months ago, my younger brother (13) was diagnosed wiith Celiacs after over a year of seeing specialist after specialist because his only symptom was a skin rash. They went back and forth between fungal infection and psoriasis multiple times before finally testing for Celiacs. Less than a month later, my older sister (32) was diagnosed with Lupus (not sure if other auto-immune diseases in the family history have any impact on ones chance of having Celiacs).
I'm now 30 years old and have 2 children. For years I just assumed I had IBS, but looking back, I have dealt with migraines since I was 10 or 11, had very painful periods that were always regular, but since having my son 3 years ago have been all over the place, and I'm on Celexa and occasional Xanax for depression and anxiety, which again I have dealt with since my teen years. Only recently have my headaches/migraines become a daily occurance and the fatigue I'm experiencing is overwhelming...I get 8 hours of sleep and still find it difficult to stay awake while driving my stepson to camp.
I just left a message to make an appointment with my doctor. When my brother and sister were diagnosed, I asked for bloodwork for both, but I think she just did general antibody tests for any autoimmune (since it was 2 different diseases). I'm not sure because I never saw the actual test results, but I was told everything was negative (I was also tested for Lyme's and had my thyroid levels checked because of the fatigue and hair loss I was experiencing). I was told that my B12 levels were low and that could cause some of my symptoms, but I've been taking a supplement for months with no improvement. I don't know if I'm being a hypochondriac and I've convinced myself of this after my siblings' diagnoses, but I seem to have a lot of the common symptoms. Any feedcack?