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Gluten Challenge And Now A Rash...coincidence Right?


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#1 birdie22

 
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Posted 04 July 2013 - 04:19 AM

I am 12 days into a gluten challenge. Today I woke up with a lacy rash on my arms and legs (I almost look sunburn) and joint pain in my wrists, knees, and fingers. A bit of googling and I think it is the virus Fifth Disease. My kids don't have it but I've been taking them to swim lessons for the past two weeks so I'm exposed to lots of other kids. It doesn't bear resemblance to DH. Total coincidence right?
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#2 ravenwoodglass

 
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Posted 04 July 2013 - 04:58 AM

Does this rash itch? Your description of 'lacy' makes me wonder if it might be livedo reticularis. I have that and it seems to be related to inflammation at least for me. It was so bad I was purple before diagnosis but since I went gluten free it has resolved greatly, unless I get glutened.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 seezee

 
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Posted 04 July 2013 - 05:33 AM

I had 5th disease last June and there's a blood test to confirm. I took it to rule out Lyme. 


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#4 birdie22

 
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Posted 04 July 2013 - 07:00 AM

It doesn't itch per se but gets a bit prickly in spots (like the feeling of walking in tall grasses) mostly on my legs. I was reading on fifth disease and in adults it isn't uncommon to not have the slapped cheek look (which I don't) and for adult women to get joint pain, which I do have. But I don't and haven't had in the last few days a fever, or headache, or cold symptoms which are usually symptoms. And of course being the 4th of July I can't call my PCP. I don't feel sick at all so doesn't seem worth wasting time going to an after hours place.
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#5 birdie22

 
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Posted 05 September 2013 - 07:37 AM

I just wanted to update this in case anyone else happens upon this thread in a search. I ended my gluten challenge that very day figuring it wasn't worth the symptoms, especially if this was related. The rash lasted another 2 or 3 days. The joint pain lasted about 4 or 5. The joint swelling in my fingers and feet lasted a solid week. I also noticed around this time that my cheeks were red and it would come and go. The red cheeks (as stated in my other post) did not happen at the same time as my rash. My kids and husband never came down with anything before or following this episode for me.

 

So my follow up with my PCP was about a month after this episode and I mentioned it to her and said, I know, it's probably a coincidence and it was viral and just happened to occur during my gluten challenge. I was surprised when she responded, no, she doesn't think it was coincidence at all and that rashes, flushed face, joint pain and swelling are common responses to food intolerance and/or allergy. I was surprised because while she is quite celiac knowledgeable in many regards she also didn't believe in referring me for an endoscopy based on negative serology and doesn't find genetic testing at all helpful. So she didn't think it was Fifth's Disease virus at all and has solidified my diagnosis as NCGS.


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Diagnosed NCGS April 2012 after battling headaches, canker sores, bloating, heartburn, epigastric pain, buzzed feeling, extreme fatigue, muscle aches, and nausea since November 2010.

gluten-free since November 2011




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