Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

I Don't Know What To Do Anymore!


  • Please log in to reply

21 replies to this topic

#1 lovechild

 
lovechild

    Community Member

  • Advanced Members
  • PipPipPip
  • 34 posts
 

Posted 05 July 2013 - 10:45 AM

I have been on a gluten free diet for the past 2.5 months and I felt good for a little while but for the past 2 months I am having some other food intolerance issues as well and my health keeps yo-yoing daily. I also have low vitamin B12, low ferritin, hypothyroid symptoms (I am on Armour Thyroid), and have some other issues such as tingling, low blood sugar, headaches and brain fog. I have currently cut out gluten, dairy, soy, mustard, mostly anything with added sugar and eggs out of my diet.

 

I am waiting for my ELISA food intolerance results to come back (hopefully in the next week or so)and in the meantime I have been eating foods that seem to not bother me, or so I think they don't. I have been eating at home only and have been careful to choose only gluten free items and I am also careful of cross contamination in my kitchen. 

 

Some days I feel wonderful, like yesterday when at lunch I walked 20 blocks on my break and had energy to spare. Then there is today where I feel so nauseas, dizzyness, headachy, complete body soreness, weakness, stomach pains that if I get any worse I am considering going to the hospital. I feel like death warmed over right now!

 

This is what I ate yesterday because maybe I am eating something that I shouldn't be:

Breakfast

Banana Raw - Banana, 1 banana (medium) 120 g

Gluten Free Whole Grain Oatmeal, 1/2 cup

 

Lunch

Spaghetti Squash - Spaghetti Squash Cooked, 0.13 squash

Chicken - Breast, meat only, cooked, roasted, 0.5 cup, chopped or diced

 

Dinner

Quinoa, Cooked, 1/4 cup

Generic - Organic Baby Spinach, 2 cup (30 g)

Chicken - Breast, meat only, cooked, roasted, 0.25 cup, chopped or diced

Earthbound Farm Organic - Celery Stalk, 1 medium stalks (110 g)

Daiya - Jack Style Wedge, 3 cm cube (1 oz)

Manitoba Harvest - Hemp Hearts Raw Shelled Hemp Seeds, 15 g (3 Tbsp)

Renee's Gourmet - Tangerine and Lime Dressing, 3 tbsp (15ml)

 

Snacks

Que Pasa - Tortilla Chips (Made With Organic Yellow Corn), 14 chips

Daiya-Jack-Wedge - Non Dairy Cheese, 0.2 wedge

Pc Organics Biologique - Carrots, 2 medium carrot

Organic Produce - Cucumber , 0.25 large (8 1/4 inch)

Gogo Quinoa - Quinoa Crunchies Cinnamon, 28 grams

Shelled Raw Sunflower Seeds, 4.8 tbsp.

 

Maybe my problem is I am eating too much of a variety of foods. Should I just eat chicken and rice for every meal for a couple of days to see if I feel better? 

 

I am also taking supplements that my naturopath gave me (vitamin D6, vitamin B12, B6, Iron, Chromium, Max Methyl, Estro Adapt, Ubiquinol). Should I also cut those out for a couple of days?

 

I am at my wits end because I am tired of feeling so crappy and in 1 weeks time we are going to Disneyland with my family and although they have lots of gluten free items there I am not sure what I am going to eat if I need to really restrict my diet so that I don't feel crappy every day. I am really looking forward to this trip and I want it to be a fun experience for my family as well.

 

Thanks in advance for any tips you can give me.

 

 


  • 0

Celiac.com Sponsor:

#2 shadowicewolf

 
shadowicewolf

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,768 posts
 

Posted 05 July 2013 - 10:49 AM

Remove the oatmeal for a while. Some cannot tolerate it this soon after a dx.


  • 2

#3 HumanDecency

 
HumanDecency

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 96 posts
 

Posted 05 July 2013 - 11:07 AM

It really could be any of that stuff. I know I react to hemp seeds. Which is unfortunate because I love them and they are quite nutritious. I'm hoping it passes. I also react to corn. You may want to consider some form of elimination diet. I'm still progressing, but I had to eat salmon and green beans for dinner for a week to discover my corn reaction.

 

I hope you feel better. *internet hugs*


  • 0

#4 notme!

 
notme!

    Advanced Community Member

  • Moderators
  • PipPipPipPipPipPip
  • 2,126 posts
 

Posted 05 July 2013 - 11:08 AM

Remove the oatmeal for a while. Some cannot tolerate it this soon after a dx.

i agree.  and if i'm trying to figure out what's bothering me, i do the (boring) elimination diet.  like you said, eat the same thing (plain) and add in your suspect food and see what you are reacting to.  

 

20 blocks!  that's awesome!  and that was a good day :)  it's pretty early in, you are bound to have some good ones and bad ones (sometimes, seemingly for no reason) then you will start to have noticably more and more good ones.  

 

ps - i didn't do so well with the 'fake' cheese, for some reason, so i quit eating any kind of cheese altogether until i could re-introduce real cheese again.  also quinoa didn't like me.  it might like me by now, but my feelings are still hurt so i may never forgive it haha  ;)

 

good luck :)


  • 0

arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#5 lovechild

 
lovechild

    Community Member

  • Advanced Members
  • PipPipPip
  • 34 posts
 

Posted 05 July 2013 - 11:28 AM

Remove the oatmeal for a while. Some cannot tolerate it this soon after a dx.

 

Thanks Shadowicewolf. It is not really oatmeal exactly. It is more like a porridge with flax, dates, hemp, goji berries. I can't remember the name of it right now but my Mom is going to call me with the name shortly because she also bought some. I only started eating it three days ago but I think i am going to cut it out for a while anyway in case I am reacting to it.


  • 0

#6 lovechild

 
lovechild

    Community Member

  • Advanced Members
  • PipPipPip
  • 34 posts
 

Posted 05 July 2013 - 11:29 AM

It really could be any of that stuff. I know I react to hemp seeds. Which is unfortunate because I love them and they are quite nutritious. I'm hoping it passes. I also react to corn. You may want to consider some form of elimination diet. I'm still progressing, but I had to eat salmon and green beans for dinner for a week to discover my corn reaction.

 

I hope you feel better. *internet hugs*

I actually just started the hemp seeds a couple of days ago. Maybe I am reacting to that too! This is so frustrating! I am going to have to google an elimination diet to try. I don't know if it is healthy just to only eat chicken and rice for breakfast, lunch and dinner every day. 


  • 0

#7 Salax

 
Salax

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 430 posts
 

Posted 05 July 2013 - 11:33 AM

I would stick to a Paelo diet for a month and then slowly reintroduce items back in. Thats how I discoved I am intolerant to corn and cow milk products. Basically eat meat, fruit and veggies, no grains..except quinoa (maybe), I would cut all grains, but if your bored with food that might be ok. And no white potatoes. Only sweet potatoes/yams.

 

I hope you feel better soon.


  • 1

Salax
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
(='.'=)
(")_(") Eat your vegetables!


#8 lovechild

 
lovechild

    Community Member

  • Advanced Members
  • PipPipPip
  • 34 posts
 

Posted 05 July 2013 - 11:33 AM

i agree.  and if i'm trying to figure out what's bothering me, i do the (boring) elimination diet.  like you said, eat the same thing (plain) and add in your suspect food and see what you are reacting to.  

 

20 blocks!  that's awesome!  and that was a good day :)  it's pretty early in, you are bound to have some good ones and bad ones (sometimes, seemingly for no reason) then you will start to have noticably more and more good ones.  

 

ps - i didn't do so well with the 'fake' cheese, for some reason, so i quit eating any kind of cheese altogether until i could re-introduce real cheese again.  also quinoa didn't like me.  it might like me by now, but my feelings are still hurt so i may never forgive it haha   ;)

 

good luck :)

Thanks Notme! Can I ask what you were eating when you started on your boring elimination diet?


  • 0

#9 cyclinglady

 
cyclinglady

    Advanced Community Member

  • Moderators
  • PipPipPipPipPipPip
  • 1,846 posts
 

Posted 05 July 2013 - 11:42 AM

Cut out the oats as suggested.  I had problems with oats and quinoa too!  I'm only into the diet three months.  Hopefully, I'll get these grains back.  Also, I don't know what's in the "fake" cheese, but it can contain casein or whey (cow's milk) and I'm intolerant to these.  Believe it or not, I tested as having moderate issues to bananas and celery!  


  • 0
Non-functioning Gall bladder Removal Surgery 2005
Diagnosed via Blood Test and Endoscopy: March 2013
Hashimoto's Thyroiditis -- Stable 2014
Anemia -- Resolved
Fractures (vertebrae): June 2013
Osteopenia/osteoporosis -- June 2013
Allergies and Food Intolerances
Diabetes -- January 2014




Celiac.com - Celiac Disease Board Moderator

#10 lovechild

 
lovechild

    Community Member

  • Advanced Members
  • PipPipPip
  • 34 posts
 

Posted 05 July 2013 - 12:42 PM

Ok, the porridge I was eating is called boring porridge (flax seeds, sesame seeds, shredded coconut, chia, goji berries, red dates, sea salt) so no oats but this company does make oat cereal so maybe there is oat cross contamination going on. Their product is certified gluten free/wheat free.  I think I will take a breather from it anyway in case one of the ingredients is causing me problems.


  • 0

#11 lovechild

 
lovechild

    Community Member

  • Advanced Members
  • PipPipPip
  • 34 posts
 

Posted 05 July 2013 - 12:46 PM

Cut out the oats as suggested.  I had problems with oats and quinoa too!  I'm only into the diet three months.  Hopefully, I'll get these grains back.  Also, I don't know what's in the "fake" cheese, but it can contain casein or whey (cow's milk) and I'm intolerant to these.  Believe it or not, I tested as having moderate issues to bananas and celery!  

Maybe I have issues with bananas, quinoa and celery too. Yuck! I am thinking I have a leaky gut because a year ago I could eat anything I wanted without noticeable problems. Uggggg...

 

These are the ingredients for the fake cheese. The reason I picked it was because it was dairy, casein and whey free.

Filtered water, tapioca flour, palm fruit oil, non-GMO expeller pressed canola and/or safflower oil, pea protein, coconut oil, inactive yeast, salt, vegetable glycerin, xanthan gum, vegan natural flavours, gum arabic, lactic acid (vegan, for flavor),titanium dioxide (a naturally occurring mineral), natural smoke flavour, vegan enzyme.

 

Thanks for taking the time to reply. I appreciate it.


  • 0

#12 notme!

 
notme!

    Advanced Community Member

  • Moderators
  • PipPipPipPipPipPip
  • 2,126 posts
 

Posted 05 July 2013 - 12:46 PM

Thanks Notme! Can I ask what you were eating when you started on your boring elimination diet?

chicken and rice, chicken and rice, chicken and rice.  lolz  sorry but that is my 'safe' food.  hopefully, you don't have any trouble eating rice?  :)  when my system evened out, i added something for a few days, if it was ok, i added something different, blah, it's boring but it is helpful.  i know how frustrating it is to be suspicious of everything.  for me, it's the only way i can figure out what the culprit is.  and journal it.  


  • 0

arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#13 Gemini

 
Gemini

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,161 posts
 

Posted 05 July 2013 - 05:11 PM

The only thing I would add is dump the fake cheese because there are a lot of gums in there and they can muck up your gut when first gluten free.  Really...wait until you can eat real dairy and go for the real cheese.  It's better for you.

 

It also looks like you are not eating enough protein in your diet.  You need a protein at every meal.  Not a small amount but at least 4-5 ounces per meal.  That should stabilize your blood sugar.  Eat lots of fresh veggies and fruit with it, plus some brown rice or potatoes.  Eggs and egg whites are an excellent source of protein....eggs are considered the perfect protein because they contain all the essential amino acids for humans.  

 

Good luck and hang in there.  You have not been gluten-free for very long and it takes awhile to feel better.


  • 1

#14 CarolinaKip

 
CarolinaKip

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 635 posts
 

Posted 05 July 2013 - 06:15 PM

Don't give up hope!

 

I actually went months trying to figure it out and be pain free. I'm still not totally pain free, better, but not pain free.

 

 I went whole food and grain free. I was food allergy tested as well. After 3 years, I have found that my food allergies pay a big part of me not feeling well. In my job, I have to be around my allergies and gluten. I'm Celiac with a wheat, barley, peanut, almond, tomato, cantaloupe allergies. I'm soy free and corn free(right now). I limit my dairy intake as well. I was told by my dietitian not to eat gluten-free oats until a year gluten-free, I, however, still do not eat them.

 

It doesn't have to be so boring :) There are a lot of wonderful food that is naturally gluten-free. 

 

I still do not eat a lot of gluten-free replacement foods. Keep a food dairy and try to keep it simple in the beginning. It does get better and you will find your way! Hugs


  • 0
How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in your life you will have been all of these.
George Washington Carver


Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10

#15 BelleVie

 
BelleVie

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 293 posts
 

Posted 05 July 2013 - 11:09 PM

Hi lovechild, 

 

Bananas really were causing major problems for me. The only reason I finally figured it out was because one day I took paleo banana muffins to work, ate two for breakfast, and then could barely keep my eyes open I was so "gluten tired." But I knew there was no gluten. So I tried again later. Ate more muffins. Same reaction. Tried once more with a banana by itself. Got horrible stomach pains within the hour. I read somewhere that a lot of celiacs have problems with bananas, so who knows, maybe that's your problem? I hope you figure it out soon! 


  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: