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Williams Syndrome


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#1 come dance with me

 
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Posted 05 July 2013 - 03:27 PM

My daughter has just had a blood test to see if she has this.  Anyone else been down this path before?


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Lord please give me patience, because if you give me strength, I may just beat the living crap out of someone...

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#2 mommida

 
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Posted 06 July 2013 - 06:40 AM

I have no personal experience with William's Syndrome.  I am on a search for answers for my daughter's issues.  (kind of a "research junkie" way of dealing with things)  She has been diagnosed with Celiac since she was 16 months old, Eosinophilic Esophagitis when she was 6, vitamin D defiency &precocious puberty at 10 (now), and I'm not sure if doctors are just missing something.

 

In the experience that I have gained from dealing with "surprise" your child has this (?) lifelong disease, I have learned it is better to have the truth.  Get the diagnoses so you can help your child live her life to the fullest.  The average descrption of a William's Syndrome person, sounds like a delightful person to be with!!!!  (My personal opinion ~ not everyone needs to have the IQ of Einstein to learn the true lessons of life.  It really is love.)  You will have different challenges to face, but you will do the best you can through it.  (I read your other post and you are a survivor and strong willed.  If anyone can handle the challenges of being a mother you can!)

 

((HUGS))


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#3 come dance with me

 
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Posted 06 July 2013 - 02:36 PM

She was diagnosed with a learning disability, she has a heart condition, Autism, bladder problems, pretty much most of what's on that list for WS but it's all been getting treated individually.  It might be that she doesn't have it, and the symptoms are unrelated.  Either way, the treatment and help she's getting won't change, it will just make it easier to write one thing on the school enrollment form than a list of everything.  Thanks.  We all do what we need to do to get by, and as mothers we have to keep going :)


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Lord please give me patience, because if you give me strength, I may just beat the living crap out of someone...




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