Hello! I'm in my thirties and had a Celiac blood panel about 10 years ago due to a lot of gastrointestinal issues at the time. Blood test came up negative, endoscopy showed inflammation but that's all they told me and then diagnosed me with IBS. I didn't know to ask more, I was so young, but I wish I had pushed for more info.! Following that I took Levsin for my stomach, which helped, and on my own went off of dairy and basically diagnosed myself lactose intolerant. Also started probiotics. Stomach was much better, but it still flared up sometimes. Fast forward a few years and I started experiencing fatigue that got worse and worse. I feel like I could sleep for 15 hours or more if I didn't have to work. I feel lazy, but I'm just too tired to do anything! I used to be motivated to exercise but not anymore.
Other symptoms that have appeared or worsened over the past few years: loose stools (sometimes), gassy, burping, eczema, itchy skin, anxiety, depression, irritable/moody suddenly for no reason, terrible pms, "fuzzy" thinking, memory problems, can't concentrate, easy bruising, hip and leg soreness, weakness in muscles of hands and arms and sometimes face, congestion/frequent sinusitis, dry eyes and mouth, costochondritis, asthma, more cavities (never used to have them)
Last year my liver was enlarged and I had low potassium and had to take a supplement - it improved and nothing was ever found out about why the liver was inflamed.
I had a blood workup a few months ago and turned up deficient in Vitamins B and D. Iron wasn't deficient, but also wasn't very high. The range is 10-291 and mine was 32. Red blood cell count was a little high, and alkaline phosphatase was a little low - both of which they said not to worrry about. They put me on high doses of vitamins to handle the B and D and I thought surely my depression and fatigue would improve with those, but no such luck.
I feel awful most of the time and miss the energy and zest for life I used to have! I just had another Celiac panel, in the hopes that maybe something will turn up this time. Is it possible to test positive years later, after testing negative? Does anyone have suggestions on what to do if the test comes up negative again? I'm almost certain I have some sort of gluten problem...not thrilled about a diet change but if I feel better, it will be totally worth it.