Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Question About Weight Loss

HumanDecency

Recommended Posts

HumanDecency Contributor
HumanDecency
Posted

So recently I have been experiencing a lot of weight loss. 10 lbs this month. I did gluten myself earlier in the month with vitamins but that has been a couple weeks away. Is weight loss a normal process of healing or should I be worried about contamination somewhere? Even though I have been pretty vigilant. Are there any warning signs of malnutrition? Or is it just the fact I am no longer eating crap and less of it?

 

How much did some of my Celiac friends lose? I started around 225. I'm now at 194.5

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted

I also am A newbie I started out at almost 200 lbs and now 175. I think it is normal, A lot of mine was just puffyness. My daughter I don't see very often seen a new pic of me on FB and said Wow mom your face looks so much thinner. I know someone eles with Celiac and she was stick thin!! And now she is gaining weight!! I think it can go either way! Just try and eat as healthy as possible!! Thats what I am doing! :) Trying to get the vitamins back in me! :) Have  to learn about Probiotics tho ...

Link to comment
Share on other sites
Adalaide Mentor
Adalaide
Posted

A lot of information is out there that focuses on the waif celiac. Many of us could actually stand to lose a few (or more) pounds. I have found that as I began to heal many things came together for me that allowed me weight to begin to drop. First, and most important to me, I was healing. I was no longer poisoning my body with every meal. Second, the longer I was gluten free, the more physically active I found myself able to be. Some might think that isn't saying much considering my current state, but it is leaps and bounds better from two years ago when I couldn't get out of bed some days. Third, I cleaned up my diet. Instead of eating from boxes and cans my diet primarily consists of fresh foods now.

 

As long as you aren't dropping weight that you can't afford to lose, I wouldn't be alarmed. It is very probable that is only a side effect of a healthier you. That of course is simply my opinion.

Link to comment
Share on other sites
nvsmom Community Regular
nvsmom
Posted

I lost about 20lbs in the first few months but put most of it back on because i felt poorly from other issues or lingering celiac disease symptoms. I discovered that I gain weight when feeling poorly - I eat extra for energy and seem to hold onto the calories more.  The weight is coming off again now.

Link to comment
Share on other sites
GlutenStinks15 Explorer
GlutenStinks15
Posted

I got diagnosed in the beginning of April and I am now down 30 lbs. (was over 300, now below 300)

 

I think going gluten-free is helping my thyroid (I also have hypo-thyroid disease) and I really think I'm metabolizing better, and also of course I'm eating healthier as well.

Link to comment
Share on other sites
  • 4 weeks later...
w8in4dave Community Regular
w8in4dave
Posted

I have stabilized , I am holding steady at 170 so it has been about 3o lbs I lost .. I am 5'7" so yes I could stand to lose it. I don't eat "alot" of the pre packaged stuff, I "try" and eat more homemade stuff .. As in fresh meat, fresh veggies, a rice or potato a night sometimes I go for quinio <-- spelling but you know what I am saying :) 

Link to comment
Share on other sites
bellalunarena Newbie
bellalunarena
Posted

In November of 2012, I set out to lose weight. I overhauled my diet. I attempted to work out. I weighed 217. 

 

I weigh 167 now. 

 

I have no idea, in light of my recent dx, if that weight came off due to malabsorption, due to my dietary change, or due to medicine I am on for a completely different condition.

 

But I keep telling myself that even if it didn't end up coming off the healthy way, who says I can't keep it off the healthy way, especially now that I have the knowledge to help my body heal and recover?

 

I heard a saying when I joined the gym:

"Eat healthy, and you will BE healthy." 

Food is fuel, not emotions. <---that was hardest for me...I am a compulsive eater.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted

Yup i am still eating healthy and people who I have not seen in a while are saying, Wow Wendy you have lost alot of weight!! They don't realize I have had a problem and I am Celiac. So when they ask how I am doing it, I just try to say, I am just eating healthy and not eating pre packaged foods. 

Link to comment
Share on other sites
no7ang Rookie
no7ang
Posted

Yup i am still eating healthy and people who I have not seen in a while are saying, Wow Wendy you have lost alot of weight!! They don't realize I have had a problem and I am Celiac. So when they ask how I am doing it, I just try to say, I am just eating healthy and not eating pre packaged foods. 

Hi, just wanted to add that weight loss was one of my first symptoms--was diagnosed in July and since going gluten free have lost even more weight----i believe that this is because i am eating more healhy than ever, but......seriously need to gain some weight now as too thin---i found some gluten free muffins that pack 347 calories each--i try and eat at least 2 a day in the hope that as i heal i will gain some weight, i also take supplement drinks prescribed by doc.

oh how i long for the years when i tried to lose a few pounds--ha ha----many people don't realise that trying to gain weight for some people with celiac is just as frustrating then for those trying to lose weight.

Link to comment
Share on other sites
w8in4dave Community Regular
w8in4dave
Posted

Hi, just wanted to add that weight loss was one of my first symptoms--was diagnosed in July and since going gluten free have lost even more weight----i believe that this is because i am eating more healhy than ever, but......seriously need to gain some weight now as too thin---i found some gluten free muffins that pack 347 calories each--i try and eat at least 2 a day in the hope that as i heal i will gain some weight, i also take supplement drinks prescribed by doc.

oh how i long for the years when i tried to lose a few pounds--ha ha----many people don't realise that trying to gain weight for some people with celiac is just as frustrating then for those trying to lose weight.

I used to be stick thin all my life till I got married. It slowly came on. When I was in high school I wore a size zero. When I first got married I wore a size 6 so I had gained some weight. I always fely if I could just gain some weight .. I bought me some protein powder and stuff ... Well it was nasty so I never ate it. But hubbs eats alot of noodle dishes so I naturally gained weight .. and kept and kept. Now I am losing , I am sure I was Celiac back then. Have always had "Bathroom" issues , until now. :) I have never been happier than the way I am eating now! I feel so much better!! Of course good and bad days and then there are those terrific days. :) Those make me happy!! 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748
    NYKaren
    Newest Member
    NYKaren
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...