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Help! I Don't Know What To Eat Anymore.
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3 posts in this topic

I was diagnosed with Celiac disease about a month or two ago.

I am 22 years old, doctor told me back when I was 16 years old I had irritable bowel syndrome. Well come to figure, that  doctor never diagnosed me with IBS. But I had a upper GI and colonoscopy and turns out I have Celiac, and I keep acting like I have IBS too, because it just seems right.

I am not sure what to eat, I have yet to see a dietician and sometimes I only get to eat once or twice a day due to the pain. Its a gassy pain, stabbing, very hurtful pain that almost is like I'm in labor again.

I recently started taking Bentryl for the pain and Gas X, they seem to semi work.

I cut out all dairy now, it seems to make me sick.

I also cut out baked beans now, and tomatoes. I just need help.

I am very weak, so its hard for me to make food, and most gluten-free foods are expensive.

I also can't eat rice.

 

Help? I crave sugar and just real food.

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I'm sorry you've been feeling unwell.  :(

 

Prediagnosis, I used to take a LOT of Gas X for my bloating pains too... but I think there was gluten in my capsules (not sure on that) so I tossed them after my diagnosis.

 

Lots of your symptoms could still very well be due to your celiac disease. I used to get almost random pain, and it often built up towards the end of the day. Now, after a year gluten-free, I still get gassy and bloated every few days. Some of your discomfort could still be caused by celiac disease, but I don't doubt that you have other food intolerances.

 

You have a problem with tomatoes (perhaps your problem with baked beans is the tomato sauce?), rice and gluten. That still leaves you with a fair amount of food options although you'll have to do more food prep, and be a bit more creative, than the average person. Perhaps make wraps with lettuce leaves or corn tortillas. Coconut or almond flour is wonderful for making baked goods with and tends to have more nutrition than the average  gluten-free baked goods. carry nuts or LaraBars around with you so you always have snacks when you are on the go. If you focus on eating veggies, meats and eggs,  and some fruits (minus tomatoes) it will make life easier for you.

 

Also, have you considered milk being a problem for you? Up to 50% of celiacs are lactose intolerant in the first half year gluten-free, I know that I was. Often that goes away as you heal - many board members have reintroduced dairy into their diet after a few months. I personally used to get pain and bloating from dairy, and it is much less now, but I haven't bothered bringing it back into my diet because I see no need and I feel great without it.

 

Hang in there. The first few weeks are the hardest, especially if you experience withdrawal which can throw extra fatigue, headaches, and a bad mood into the mix for a few weeks.

 

Best wishes.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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