Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Help! I Don't Know What To Eat Anymore.
0

3 posts in this topic

I was diagnosed with Celiac disease about a month or two ago.

I am 22 years old, doctor told me back when I was 16 years old I had irritable bowel syndrome. Well come to figure, that  doctor never diagnosed me with IBS. But I had a upper GI and colonoscopy and turns out I have Celiac, and I keep acting like I have IBS too, because it just seems right.

I am not sure what to eat, I have yet to see a dietician and sometimes I only get to eat once or twice a day due to the pain. Its a gassy pain, stabbing, very hurtful pain that almost is like I'm in labor again.

I recently started taking Bentryl for the pain and Gas X, they seem to semi work.

I cut out all dairy now, it seems to make me sick.

I also cut out baked beans now, and tomatoes. I just need help.

I am very weak, so its hard for me to make food, and most gluten-free foods are expensive.

I also can't eat rice.

 

Help? I crave sugar and just real food.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm sorry you've been feeling unwell.  :(

 

Prediagnosis, I used to take a LOT of Gas X for my bloating pains too... but I think there was gluten in my capsules (not sure on that) so I tossed them after my diagnosis.

 

Lots of your symptoms could still very well be due to your celiac disease. I used to get almost random pain, and it often built up towards the end of the day. Now, after a year gluten-free, I still get gassy and bloated every few days. Some of your discomfort could still be caused by celiac disease, but I don't doubt that you have other food intolerances.

 

You have a problem with tomatoes (perhaps your problem with baked beans is the tomato sauce?), rice and gluten. That still leaves you with a fair amount of food options although you'll have to do more food prep, and be a bit more creative, than the average person. Perhaps make wraps with lettuce leaves or corn tortillas. Coconut or almond flour is wonderful for making baked goods with and tends to have more nutrition than the average  gluten-free baked goods. carry nuts or LaraBars around with you so you always have snacks when you are on the go. If you focus on eating veggies, meats and eggs,  and some fruits (minus tomatoes) it will make life easier for you.

 

Also, have you considered milk being a problem for you? Up to 50% of celiacs are lactose intolerant in the first half year gluten-free, I know that I was. Often that goes away as you heal - many board members have reintroduced dairy into their diet after a few months. I personally used to get pain and bloating from dairy, and it is much less now, but I haven't bothered bringing it back into my diet because I see no need and I feel great without it.

 

Hang in there. The first few weeks are the hardest, especially if you experience withdrawal which can throw extra fatigue, headaches, and a bad mood into the mix for a few weeks.

 

Best wishes.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,874
    • Total Posts
      919,413
  • Topics

  • Posts

    • gluten intolerance, dairy intolerance and fructose
      I'v posted on here b4... 6 yrs ago I was diagnosed as severely gluten intolerant. ( they were kinda shocked that test for celiac was negative) anyway my symptoms went away up until a few months ago. I went to the gi doctor and they said I can't have dairy or fructose.. * I found that out yesterday, I thought my tests for dairy was neg but guess it was pos. And I had no clue about the fructose*..    Anyway is it possible to have all these I tolerances? It's not making since to me.... also if you experience same thing what can I eat!! All I had today was grilled chicken and rice because it was on my lost from gi doctor... I'm a college student so I need easy quick stuff as easy as I can have it now I guess.. also is almond milk ok to have and coconut milk? I'm very confused on the fructose part.. dairy I'v been of for 6 weeks.... my doctor sent a referl over to a diatrition doctor but I want stuff to get me by until I get in. I don't even know what to look for all the research I'v done is just confusing me even more since different websites say different things..... thank you in advance.. I'm trying to gain weight I was gaining the first few yrs of being gluten free but I went back word and stuff went down hill again... 
    • Toblerone
      I don't eat chocolate often, but I have never had a gluten reaction to Toblerone. I trust it to be gluten-free.
    • So I've been glutened....
      I am so sorry for how your feeling.  I can sympathize; over time I notice I couldn't have any type of gluten free products.  I read that since you don't have villi in your small intestines you have no defenses, meaning even the tiniest bit of exposure causes a flare up.  I even have to be careful when I purchase products by reading the labels to ensure it says manufactured by a nut, soy, milk and wheat free facility.  Be very careful, unfortunately
    • Symptoms despite strict gluten-free -- new here
      I have been reading a lot about leak gut syndrome which is new to the medical community in the sense that they don't know how to manage it.  If (you are female) make sure to do a yearly pap and uterine check to ensure there is no issues there.  If you are not a female then definitely confirm with an endoscopy if your small intestines are still damaged.  I am looking into doing the leaky gut diet to see if it will help, the book I am reading is "Eat Dirt" by Dr Josh Axe.  Especially since I notice anytime I am exposed to gluten by accident my symptoms are worse each and every time.  I know get severe back and rib cage pain, with bloating, gurgling and diarrhea with severe nausea.  I am willing to try anything and I am now reading this book and applying the diet to see if I can heal my intestinal lining.
    • Help
      Ok so I had my colonoscopy & endoscopy last Thursday. Don't get results until July 13th as GI is on vacation. I've had bad pain in my lower left abdomen that wraps around to my lower back as well for the past 4 days..even hurts to touch lightly. Went back to the ER & they did an ultrasound & CT scan. The Doctor said that I have "prominent" lymph nodes in the area that is painful as well as thickening & inflammation of my Sigmond colon? Um ok what is that all about? Kind of freaking out over the whole swollen lymph nodes thing. Has anyone ever dealt with this before? 😒
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,909
    • Most Online
      1,763

    Newest Member
    Fourpeople
    Joined