Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Concerns With Going Gluten-Free?
0

14 posts in this topic

I would love to hear your responses to the following question. 

Question:
What  have been your biggest questions, challenges or concerns with going gluten-free?

Thanks all for your insight!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Cross contamination. Eating in restaurants. That's all I can think of right now.

0

Share this post


Link to post
Share on other sites

How in the world I'm going to keep gluten away from my 6 year old celiac who's friends with all the neighbors that all seem to like to feed him random crap! And I'm talking both kids and adults. I'm hoping the adults understand (and so far most of them are) but kids....well....they're kids.

Also...how in the world we're going to afford to eat like this.

0

Share this post


Link to post
Share on other sites

At first it was a bit of a panic as I went through out pantry and tossed or gave away about a quarter of it. So many fast dishes were gone like pork chops with a mushroom soup gravy. I have one picky son who loves chicken nuggets. i had to figure out new ways to cook all of those things... I think the need and anticipation of doing new things was much worse than actually doing it.  Homemade gravy is tastier (and I have found gluten-free mushroom soup) and the chicken nuggets I make are probably healthier that those that come in a box.

 

So, at first I would say the hardest part was facing the change.

 

Now the only thing that bugs me is the hassle of packing extra food when ever we go out to eat at friends' houses. I have to bring an appetizer so my kids and I can fill up if it looks like our menu will be limited, I often bring gluten-free buns so the kids can have those 9buns are s often served) and I always bring a dessert because no one knows how to bake gluten-free.  LOL  It's also a hassle to pack food for errands knowing that we can't stop off in a fast food store.

 

Overall, the changes are for the best. knowing that we are all healthier now makes it easier to put in the extra effort.

 

Mommy2krj - I have three gluten-free kids (ages 5-10) who live on a street of two dozen kids. Keeping them gluten-free can be done. I talked with all of the parents and asked they not give the kids food unless I give the okay; they all seem to respect that. My kids know the rule too, although I worry a bit about my oldest in case he wants to be "cool" and eat junk with the rest.  I compensate by having lots of snacks around so I can feed the neighbourhood. Peanuts, fruit smoothies, watermelon or freezies are the norm.

0

Share this post


Link to post
Share on other sites

At first it was a bit of a panic as I went through out pantry and tossed or gave away about a quarter of it. So many fast dishes were gone like pork chops with a mushroom soup gravy. I have one picky son who loves chicken nuggets. i had to figure out new ways to cook all of those things... I think the need and anticipation of doing new things was much worse than actually doing it.  Homemade gravy is tastier (and I have found gluten-free mushroom soup) and the chicken nuggets I make are probably healthier that those that come in a box.

 

So, at first I would say the hardest part was facing the change.

 

Now the only thing that bugs me is the hassle of packing extra food when ever we go out to eat at friends' houses. I have to bring an appetizer so my kids and I can fill up if it looks like our menu will be limited, I often bring gluten-free buns so the kids can have those 9buns are s often served) and I always bring a dessert because no one knows how to bake gluten-free.  LOL  It's also a hassle to pack food for errands knowing that we can't stop off in a fast food store.

 

Overall, the changes are for the best. knowing that we are all healthier now makes it easier to put in the extra effort.

 

Mommy2krj - I have three gluten-free kids (ages 5-10) who live on a street of two dozen kids. Keeping them gluten-free can be done. I talked with all of the parents and asked they not give the kids food unless I give the okay; they all seem to respect that. My kids know the rule too, although I worry a bit about my oldest in case he wants to be "cool" and eat junk with the rest.  I compensate by having lots of snacks around so I can feed the neighbourhood. Peanuts, fruit smoothies, watermelon or freezies are the norm.

Thanks...it helps to have someone who gets that part. :) I'm slowly talking to all the neighbors and all the kids too....there's just one kid that worries me as he is constantly sneaking food out of his house! He'll bring out a whole container of something that was just bought at the store and feed all the kids in the neighborhood with it. Oy. His parents don't seem to care as I've said something to them before....they yell at him and nothing else so he just does it again the next day. *sigh*

I do plan on learning to make some decent snacks from scratch because with the prices of the gluten free snacks....well....we're not sharing that with anyone on a regular basis! It would cost a fortune!!! So we'll stick to the whole food snacks and keep lots of fruit around. :)

0

Share this post


Link to post
Share on other sites




NVSMOM

 

Can you tell us the brand of gluten-free mushroom soup?

 

MOMMY2KRJ,

 

Eating out and going to someone's house for a get together are the toughest, but can be managed.

0

Share this post


Link to post
Share on other sites

NVSMOM

 

Can you tell us the brand of gluten-free mushroom soup?.

It is called Pacific Natural Foods, Organic Cream of Mushroom Condensed Soup. It comes in a small brown/beige carton that is shorter than the typical soup can. It is expensive but I like to have it on and for quick meals in a pinch.

I found it in the natural foods section at Superstore - this is in Canada.

0

Share this post


Link to post
Share on other sites

Thanks for all the great replies.  Going gluten-free is a challenge but definitely worth it!

0

Share this post


Link to post
Share on other sites

 

It is called Pacific Natural Foods, Organic Cream of Mushroom Condensed Soup. It comes in a small brown/beige carton that is shorter than the typical soup can. It is expensive but I like to have it on and for quick meals in a pinch.

I found it in the natural foods section at Superstore - this is in Canada.

 

You can also make a white sauce (milk (or sub) butter and cornstartch) and add chopped mushrooms for a quick sauce. It freezes just fine too. Add salt and pepper too. Takes about 10 minutes. Skip the mushrooms and add cheese. The options are endless to a basic white sauce.

0

Share this post


Link to post
Share on other sites

How in the world I'm going to keep gluten away from my 6 year old celiac who's friends with all the neighbors that all seem to like to feed him random crap! And I'm talking both kids and adults. I'm hoping the adults understand (and so far most of them are) but kids....well....they're kids.

Also...how in the world we're going to afford to eat like this.

Going gluten-free is tough especially with kids because of the social pressures.  How do you handle this with your child?  Any tips for helping young children to understand that gluten is not good for them?  Thanks for your insight, greatly appreciated!  

0

Share this post


Link to post
Share on other sites

Facing it was toughest. It's a major life change and for me (and probably for many of you too) it was extremely daunting.

 

Then came cleaning out the pantry. It was a sort of funeral for the things I loved and couldn't have anymore.

 

I thought summer bbq's would be difficult, but now I just ask my host to please cook my food on a piece of tin foil on the grill (less chance of cc that way.) And I bring my own dessert.

 

Eating out - well - I only have a list of 5 places right now where I feel safe and comfortable. I haven't traveled yet, but will be traveling this month, so we'll see how that goes. I plan to bring A LOT of food/snacks with me.

 

Hang in there. It will get easier.

0

Share this post


Link to post
Share on other sites

At first it was a bit of a panic as I went through out pantry and tossed or gave away about a quarter of it. So many fast dishes were gone like pork chops with a mushroom soup gravy. I have one picky son who loves chicken nuggets. i had to figure out new ways to cook all of those things... I think the need and anticipation of doing new things was much worse than actually doing it.  Homemade gravy is tastier (and I have found gluten-free mushroom soup) and the chicken nuggets I make are probably healthier that those that come in a box.

 

So, at first I would say the hardest part was facing the change.

 

Now the only thing that bugs me is the hassle of packing extra food when ever we go out to eat at friends' houses. I have to bring an appetizer so my kids and I can fill up if it looks like our menu will be limited, I often bring gluten-free buns so the kids can have those 9buns are s often served) and I always bring a dessert because no one knows how to bake gluten-free.  LOL  It's also a hassle to pack food for errands knowing that we can't stop off in a fast food store.

 

Overall, the changes are for the best. knowing that we are all healthier now makes it easier to put in the extra effort.

 

Mommy2krj - I have three gluten-free kids (ages 5-10) who live on a street of two dozen kids. Keeping them gluten-free can be done. I talked with all of the parents and asked they not give the kids food unless I give the okay; they all seem to respect that. My kids know the rule too, although I worry a bit about my oldest in case he wants to be "cool" and eat junk with the rest.  I compensate by having lots of snacks around so I can feed the neighbourhood. Peanuts, fruit smoothies, watermelon or freezies are the norm.

Thanks for the inspiration!  Great to know that it can be done with a little effort :)!

0

Share this post


Link to post
Share on other sites

Dealing with the DX. Trying to figure out make up, lotions, shampoos. Feeling socially left out and feeling deprived. Wondering if I'll ever be pain free?

 

Just to name a few.

 

Now, 3 years in, cross contamination, eating out, and trying to figure out if I need to quit my job.  I'm around gluten and my allergy foods way too much. .

0

Share this post


Link to post
Share on other sites

I would love to hear your responses to the following question. 

Question:

What  have been your biggest questions, challenges or concerns with going gluten-free?

Thanks all for your insight!!!

 

 

My biggest challenges and concerns are being careful to not contaminate my wife. I do not have celiac and we are not a 100% gluten free house so I need to be very careful on what I use and where and to be sure to clean up my mess when done.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,366
    • Total Posts
      917,513
  • Topics

  • Posts

    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
    • Mashed potato soup during healing
      I was on pretty much a liquid diet for 8 months waiting for my nausea to go away completely. I mostly had mashed potato soup, 1/2 fat ice cream (mostly whey, not milk), chocolate drink (no added milk) and gummy vitamins. The soup tasted yummy and I'm still alive so I figured I'd share it for people not feeling well in the beginning. I've been noticing people with alot of trouble keeping food down in recent posts. I couldn't have milk or eggs, but the cheese in the recipe didn't bother me at all. Notice the lack of spices. Makes it easy on the stomach.   Mashed potato soup: Boiled yukon gold potatoes (5lb bag) 1 package cauliflower, steamed 4-6 slices of Land O'Lakes white American cheese 4 tablespoons butter salt 16 cups homemade chicken broth, salted   Chop steamed cauliflower into teensy bits (pureed is better). Put in mixer with butter, cheese and a potato or two. Blend while slowly adding potatoes. Keep whipping for a few minutes to insure the cauliflower and potatoes are not lumpy at all. Salt to taste.   Combine 1/2 cup mashed potatoes to 1 cup salted chicken broth. Mix with spoon until mashed potatoes have completely dissolved. Enjoy. Individual servings can be frozen.   Homemade chicken broth: makes 8 - 10 cups of broth   1 organic chicken (regular chickens are too big) 1 stalk celery 1 carrot 1 large bay leaf 1/2 package fresh thyme from the  herb section of the vegetables area   Put all ingredients in pressure cooker along with 1.5 liters water. Bring to pressure. Cook for 35 minutes. Separate broth from solids. Separate broth from fat. Add ridiculous quantities of salt until it tastes like soup. Sorry I use a salt grinder so I don't have precise salt quantities.    
    • I have kidney stones...spent last night at the ER
      Hey ArtG, I saw the urologist today...unfortunately for me they can still see my stones on an xray.  Sigh.  The largest is 3x6 in my right kidney.  He does not believe I can pass this one on my own.   All of my bloodwork came back fine.  Nothing alarming in the urinalysis either. His recommendations...keep drinking tons of water.  I had 4.2 liters of urine output when I tested.  Add in a fish oil supplement.  Decrease sodium intake.  Limit meat to 10 ounces per day.  Increase dietary calcium.   Work at lowering oxalate consumption...my urinary oxalate was 45.  They want it between 20 and 40.  But he gets people that are over 100 so mine is not all that high. 3 options...1. watch and wait.  Recheck in a few months to see if there is stone growth.  2. Shock wave lithotripsy.  3. Let it come out when it decides to and see what happens. I just don't know.  I hate the idea of being put under as they would do for the shock wave thing.  I've had too many surgeries already.  It scares me to be honest.  I also don't want to deal with another episode.   I don't know what I'll do.  We've got a vacation planned at the end of the month and I just want to go and enjoy that.  Not worry about kidney stones. I'm sorry to hear about your upcoming surgery...it really is always something!
    • celiac disease is psychosomatic
      I know what food products are. Probiotics was a recent example I saw on the news about things labeled gluten free that were not gluten free. So, supplement labels in addition to food labels.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined