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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Weight Loss Group?
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9 posts in this topic

with all of the food issues we have, joining something like weight watchers isn't always an option. i was wondering if anyone would be interested in being part of an online celiac weight loss group? we could share diets/recipes, talk about frustrations, and encourage each other.

what do you think?

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Excellent idea!! Count me in! I have been using Weight Watchers, but it just doen't meet my dietary needs. Everyone recommends whole wheat things, and just don't understand when I say I can't have them. Our breads and pastas are so much higher in calories than wheat, so it is easy for me to get fatter than I am!

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I'd be interested.

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Can we start a thread that is just weight loss and accountability? One with just tips and menus and weigh-ins? I would want to include tape measure results, because I lose inches before I lose pounds! Maybe even just keep it on this thread, and anyone interested can post to it.

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I would be interested

Lorraine

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OK, yesterday I blew it. I think my Honeycombs have a cross-contamination issue. I could feel the reaction less than an hour after eating them. I can eat plain oatmeal without a problem, so I know it's not the oats in it.

I also just plain ate too much Easter candy!

breakfast: 1 bowl Honeycomb cereal, 3/4 c whole milk

lunch: grilled beefsteak, french fries (homemade), pear

dinner: hamburger patty w/veggies on top

snack: 1 whole box chocolate cherries, 1 caramel egg

bedtime: an apple

The daytime snacks got me. I will have to do better today! :rolleyes:

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i think the best place to start would be to chat about what kinds of diets we're on and what has worked for us in the past. what do you think?

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I cannot have gluten, eggs, poultry, strawberries, anything from the peach family, and tree nuts. I am so happy to be able to have dairy!

Monday:

breakfast and lunch: lean beef steak and fries

dinner: lean beef steak, mahed potatoes, peas

snacks: apple, cheese cubes, potato chips

I was at a church function serving snacks, and the only thing I could have was potato chips and cheese cubes. I looked at all of the homemade goodies the other ladies had brought, and thought how the misery was just worth even one taste. I will just have to make sure that I take something that I can have, so I joined the fellowship committee. It is my responsibility to take care of myself!

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So much for spelling! That is "mashed potatoes" and "the misery was just NOT worth even one taste". One of these days, I might be perfect....NNOTTT!! :D

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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