Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New Member Intro...
0

8 posts in this topic

I've been gluten-free for about 3 weeks now and just want to share my story.

I've always have signs of gluten sensitivity but did not know much about it until I stopped eating wheat. I was ignorant until it basically punched me in the face and knocked me on my butt. I've had on an off issues with fatigue, mental fog, lack of concentration, and sleep issues. I've always thought that it was sleep apnea (mistaking fatigue with sleepiness). 

What prompted me to stop eating wheat is when I went to visit family and went out to a lunch that 100% made from wheat and as soon as I got home, I was so tired I could not move for a few hours. (and I knew I had plenty of sleep the night be before because I've started using cpap and have an electronic device that tracks my sleep) Later on, I ate some of the leftovers and starting feeling like crap again. I decided to stop eating wheat and started researching. Which brings me to discover the "amazing" worldof gluten free. :wacko:  It took so long to realize wheat and gluten was the cause of my issue is that I just didn't eat much wheat related foods normally.

 

Anyway... I'm 3 weeks in and definitely have more energy and sleep much better... however, the mental fog has not lifted and I'm now dealing with something that is totally new to me: depression. I've never been a very emotional person  and have to say that I've lived a very charmed life...absolutely nothing in my life to be depressed about.. but the last 2 weeks has been pretty debilitating.  I'm aware that this happens because of gluten withdrawal, but it still sucks! how long does can it last? should I be slowly reducing me gluten intake instead of cutting it out cold turkey?

 

ps.. I don't think I have celicacs...I've had no digestive issues, stable weight, and only minor gas that would be considered normal among my guy friends. never had the blood test for celiacs but tested normal in vitamins and minerals in my blood test.

0

Share this post


Link to post
Share on other sites


Ads by Google:

you are probably having withdrawals - i don't think it makes much difference whether you stop eating gluten little by little or all at once.  at one point you are going to be eating none at all, and then withdrawals would begin.  i felt better in a few weeks - one day i was still feeling like i had the (withdrawal) flu - still achy and listless, night sweats, etc - then i woke up the next day and it was gone.  if you have already done 3 weeks, you should be close to this point (but everybody's different)  :)

 

that being said:  have you been checked for any other conditions that may be causing your health problems.  you said your vitamin levels were good, so that's good :)  some other health issues respond well to the gluten free diet and you may benefit by pinpointing them.  (thyroid comes to mind - and they can further adjust with medication, for example)  when we suspected i had celiac, my doc ran a bunch of other tests to rule out anything else it might be/or a combination of several things (turns out 'just' celiac lolz)  

 

good luck!

0

Share this post


Link to post
Share on other sites

Yep, it's withdrawal. It should be over soon.

0

Share this post


Link to post
Share on other sites

Thanks for the reply. I hope it goes away soon! I've always thought people that have depression should just "suck it up", go work out and now I know how they feel!

I've also done blood work for thyroid and testosterone and they all worked out normal.

I've just ordered the test kit from Entero labs. I know their testing is somewhat controversial but I'm mainly using it as a physiological confirmation and a tool to help me to see if there are other foods I should avoid. I know elimination diet is the best way, but a few hundred bucks is worth it for me so I don't have to stop eating eggs and dairy for a few weeks to see if it makes me feel better.

0

Share this post


Link to post
Share on other sites

Just my opinion, but shortcuts don't cut it. When you are new to the diet you may find yourself reacting to lots of different foods for no good reason. My advice would be to stick to a very limited diet for a couple or few weeks just to get your immune system to settle down. Two or three weeks goes by pretty quickly. If you stick to just plain cooked meat, rice, and veggies, plus fruit for dessert, not only will you heal quicker, but even a non-gluten intolorant person would start to feel better. Then you could add say, eggs. Wait a week and then add dairy back. After that you can try anything else you've been missing. It isn't that hard and it might just save you from weeks and months of wondering what ELSE you're reacting to.

0

Share this post


Link to post
Share on other sites




Thanks. Are reactions to other foods, say, dairy and eggs the same as gluten? Specifically the fatigue and mental fog. I haven't found much info on this... Most of the reaction to milk and eggs that I read about digestive related?

0

Share this post


Link to post
Share on other sites

I get fatigue and fogginess with other foods I am intolerant to.  I also get it really bad when I withdraw offending foods.

0

Share this post


Link to post
Share on other sites

well hallelujah my male PMS is finally over! Still not thinking clearly but I'm glad that I'm no longer wanting to crawl into a hole every day. 

 

Thanks for the advice everyone, I'm going to eat clean just to be safe. I did get my test kit so we'll see what results I get.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,681
    • Total Posts
      921,728
  • Topics

  • Posts

    • Breakfast on the go is always trickiest for me - I go with a whole fruit - banana, apple - or a yogurt, or a small bag of nuts.  Occasionally, I have a couple of hardboiled eggs at my local pret a manger.  Much prefer breakfast at home, where I can make myself an egg and cheese sandwich with avocado on gluten free toast.  Or cereal ;-)
    • thanks for your input, the reason I do the blood test is because I found out my duagther has it recently and she carry dq2 gene,so must be from my husband or me...im in the process waiting for my genetic test back,,by the way,I do have lots of celiac symptom,so it could be gluten sensitiive you said,thanks again.  
    • No I'm in the UK, from what I've been told that's a good thing for gluten labeling and standards compliance. What you and everyone else on here says makes me sense than what the doctors are saying (a confused message at best is what they're giving me, each one with a slightly different version of it). My referral letter is in the post so on theory appointment may not be that far away. I have a load of my favourite Quorn stuff (non-gluten-free version) in the freezer so perhaps using that up may be a good way to proceed for now. I'm out at the moment and torn whether to try chips from a café, in the strict gluten-free future would probably be a no-no but in current situation probably not so bad...
    • I also only really eat one meal a day and always after I get home. I never really feel hungrey. I call it 'Pavlov's dog in reverse'.  I think it comes from so many years of food making me sick. I have gotten to the point where I now at least can eat a sandwhich and some fruit during the day but it wasn't a quick process. When folks get like that it is very important to make sure that one meal has a good amount of both calories and nutrtion.  If your diet is how you describe you are starving yourself.  You need to get yourself used to eating again.  What helped me was carrying a baggie with some nuts and dry fruit with maybe even a handful of gluten free pretzels and always some chocolate baking chips. I just ate couple pieces when I thought of it throughout the day. A little bit of cheese and a couple safe crackers, a piece of fruit or a small tin or individual serving snack pack are also good. You need to get some nutrition during the day so you can feel up to cooking a simple full meal  for dinner. I hope your feeling better soon.
    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,682
    • Most Online
      3,093

    Newest Member
    Russ Phelps
    Joined