Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten Challenge Before Endoscopy
0

2 posts in this topic

I am a 30 year old woman who comes from a family with 5 diagnosed Celiac sufferers (all women on my mother's side, including my mom). About 7 years ago, I started to feel sick all the time; stomachaches, headaches, tired all the time, bloating, gas, anxiety/depression. The body aches and tiredness made me feel like I had the flu without the congestion part. At that time, my mom suggested I go gluten free and see if I felt beter. I tried it out, and was super diligent about eating gluten free, and actually started f=to feel better after a month or two. I was 23 years old at that time, and without health insurance, so I never went to the doctor for a proper diagnosis. But I DO know that I felt better after not eating gluten, and would feel terrible if I accidentally ate gluten over the years. 

 

About a month ago, I was having really bad stomach bloating and indigestion and heartburn, and was referred to a GI doc by my primary. The GI told me that she would have to properly test me for Celiac through blood test and upper endoscopy, and that I would have to eat a "gluten heavy diet" for the week prior to the procedure. Of course, for someone who has avoided gluten for 7 years, this news was terrifying! I also feel like if I was already eating a strictly gluten free diet, why would she need to rule that out at all? My current symptoms wouldn't have anything to do with Celiac... Right? Regardless, I did the gluten challenge for a week. And while there was fear at first, there was also a tiny bit of excitement at eating a few things that I missed. I noticed during the gluten challenge that I didn't have as much stomach pain as was anticipating (it still wasn't great), but I DID have terrible headaches, extreme fatigue (like sleeping 10-12 hours a night), felt really spaced out and found it hard to concentrate, and had the bloating/gas/etc. I stopped eating the gluten the night before my endoscopy, and have been back to a gluten free diet since then, which was a week ago. 

 

Here's where my question comes in; has anyone else been through this same scenario? Having to eat gluten for a testing procedure after being gluten free for SO long? A week later, and I am still having symptoms, especially the tiredness. How long should I anticipate this lasting? Considering I hadn't eaten gluten for 7 years, I seriously dumped a WHOLE LOT of gluten into my system for this test! Still waiting for the results. 

 

Any advice/reassurance would be much appreciated! Thanks! :)

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

It is recommended that a gluten challenge be about three months in duration, not just one week! I was told to ingest the equivalent to 3- 4 pieces of bread daily for 12 weeks. It is odd that you were told that small timeframe. I do hope the results will be accurate. Many people who have been gluten free for ages do the challenge so thankfully you are not alone. As our reactions and bodies differ wildly, it is difficult to say how long your symptoms will last. Hopefully you feel better quickly. Be kind to yourself. I do know of people whose symptoms last for several weeks so am not surprised at your story.

Welcome here! Please post your results if you wish. I am curious about the one week thing.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,647
    • Total Posts
      918,464
  • Topics

  • Posts

    • Biopsy confirmed?
      Right, usually they do an endoscopy after a positive blood antibody test.  The biopsy confirms the antibody results.  Doing them in the reverse order doesn't hurt anything though.  Sometimes people "fail" the antibody tests but still have gut damage.  Not everybody makes the same antibodies or in the same quantities.  Anyway, you should make sure they are doing the complete celiac antibody panel, not just a ttg test. And don't worry if the celiac tests are positive for gliaden antibodies.  Going gluten-free is an adjustment to your diet. Quite a few people around here have managed to adjust successfully.  It takes some effort, but anything worthwhile does they say.
    • Celiac Night Vision
      I don't have scotomas but you might find more help on a forum dedicated to vision issues.  Here are a couple I found.  the last link is a Yahoo search for "eye forum"  There may be others found if you try a search on Google. http://www.medhelp.org/forums/Eye-Care/show/90 http://www.healthboards.com/boards/eye-vision/ https://search.yahoo.com/yhs/search?p=eye+forum&ei=UTF-8&hspart=mozilla&hsimp=yhs-003
    • Positive Biopsy, Negative Blood Tests
      BTW, all first degree relatives of celiacs are supposed to be tested for celiac every 2 years in the absence of symptoms -- immediately if symptoms present. Your kids, your parents & all siblings should be tested. And that goes for your brothers kids too.
    • Positive Biopsy, Negative Blood Tests
      I agree completely with cyclinglady! Do you even know that there is such a thing called silent celiac? No symptoms at all but the villi are damaged.  I see you joined in 2009. Why? Is that when your brother was diagnosed? IMHO you need to do a lot of research & find out just exactly what you're risking. 
    • Positive Biopsy, Negative Blood Tests
      What?  Be sure that next endoscopy tests you for lymphoma (cancer) as well!   Seriously.  You need to do some research as your knowledge of celiac disease is lacking.  Did you fail the entire celiac panel?  Or did your doctor/insurance save cash and just order the very good (but does not catch all celiacs) TTG IgA?  You have a family history, a positive biopsy, what more do you need?  You do realize that this is not about just giving up gluten, don't you?  We just had a member join this year who was told years ago that her tests were "inconclusive" and that she now has suffered with lymphoma (cancer)? Ugh!   Endoscopy in 10 years?  Who would even wait 10 years?  This isn't colon cancer and polyps!   Are you talking about a colonoscopy?  Are you even sure you had an endoscopy?   Be sure you have your bones checked too.....and forget the breath.  You might not have any teeth and implants will be out since your bones will be compromised. Sorry, if I come on strong, but when I was diagnosed I had no tummy issues.  A few months later, my bones began breaking.  I was undiagnosed for a long time because of mis-informed doctors.  At least it was not stupidity on my part.   So, I urge you to research this disease more!  Hopefully you'll ward on another autoimmune disorder by remaining gluten free.  Find what celiac blood tests were actually taken!  Even if you do not think you have celiac disease, something has caused villi damage -- like a parasite, milk, or something......even more sinister! Good luck!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,741
    • Most Online
      1,763

    Newest Member
    Roemill
    Joined