I am a 30 year old woman who comes from a family with 5 diagnosed Celiac sufferers (all women on my mother's side, including my mom). About 7 years ago, I started to feel sick all the time; stomachaches, headaches, tired all the time, bloating, gas, anxiety/depression. The body aches and tiredness made me feel like I had the flu without the congestion part. At that time, my mom suggested I go gluten free and see if I felt beter. I tried it out, and was super diligent about eating gluten free, and actually started f=to feel better after a month or two. I was 23 years old at that time, and without health insurance, so I never went to the doctor for a proper diagnosis. But I DO know that I felt better after not eating gluten, and would feel terrible if I accidentally ate gluten over the years.
About a month ago, I was having really bad stomach bloating and indigestion and heartburn, and was referred to a GI doc by my primary. The GI told me that she would have to properly test me for Celiac through blood test and upper endoscopy, and that I would have to eat a "gluten heavy diet" for the week prior to the procedure. Of course, for someone who has avoided gluten for 7 years, this news was terrifying! I also feel like if I was already eating a strictly gluten free diet, why would she need to rule that out at all? My current symptoms wouldn't have anything to do with Celiac... Right? Regardless, I did the gluten challenge for a week. And while there was fear at first, there was also a tiny bit of excitement at eating a few things that I missed. I noticed during the gluten challenge that I didn't have as much stomach pain as was anticipating (it still wasn't great), but I DID have terrible headaches, extreme fatigue (like sleeping 10-12 hours a night), felt really spaced out and found it hard to concentrate, and had the bloating/gas/etc. I stopped eating the gluten the night before my endoscopy, and have been back to a gluten free diet since then, which was a week ago.
Here's where my question comes in; has anyone else been through this same scenario? Having to eat gluten for a testing procedure after being gluten free for SO long? A week later, and I am still having symptoms, especially the tiredness. How long should I anticipate this lasting? Considering I hadn't eaten gluten for 7 years, I seriously dumped a WHOLE LOT of gluten into my system for this test! Still waiting for the results.
Any advice/reassurance would be much appreciated! Thanks!