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I Have So Many Questions


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#46 ItchyAbby

 
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Posted 06 August 2013 - 08:50 PM

Hello, lovely people of DermHerpFo. Thank you so much for your thoughtful and kind responses. I have stayed away for a couple of days just trying to get my shit together. And I have been working hard to redirect my attention away from the rash as much as possible (which seems nearly impossible at times). I signed up for a dress sewing class, I have been knitting up a storm, and meditating in my backyard. I have been reading and cooking like crazy. And little by little, I have been going back to my work, with the help of my most darlingest, sweetheartiest significant other, who has a lighter workload during the summer. I hope to be able to exercise again in the near future. So, basically, I am just trying to learn to live with the rash, rather than let it dictate my living (emphasis on "trying" - some days are more successful than others).

 

Anyway, IT (the horrid rash) still ebbs and floes, but the overall trends still seems to be improving. GAH! I am afraid to even say that. Too many times over the last few months I have eaten those words and they are not delicious, AT ALL

 

My emotional health is slowly recovering, though I do wonder if it might take even longer than the rash to clear. Man, IT really messes with my head. IT has brought me to depths of despair that I never even knew existed. I become convinced that everyone is so sick of me and of hearing about my rash. I'M sick of hearing about my rash. The other day I decided that my SO would be much better off without me, that I am such a burden and just no fun to be around now. He gathered me up and hugged me and said he wasn't going anywhere. That man is a treasure. Things are starting to feel a little more "possible" these days, and I truly hope that continues.

 

I am working on not being afraid of food. That has been one of the saddest things about this illness - before this, I was a big foodie from a big foodie family. We talk about food all the time. As we finish one meal, we are planning the next. We grow food just so we can have the best and freshest. We have chickens and ducks and bees and are talking about getting goats. We plan travel itineraries around food. My parents traveled to Puerto Rico with me and they brought a small carry-on for clothes and a cooler full of cheese and meat to check, EACH. We are obsessed with food, you see. And I am currently obsessed with food but it has been in a completely different way - not the loving jumble of appreciation for taste, texture and togerherness, but out of fear that what I put in my mouth will make me miserable. The past week I have been working to reverse that some, even within the constraints of being Low-Iodine and gluten free. I made lamb and parsnip stew in the crockpot, roasted chicken with garlic cloves stuffed under the skin, carrot cardamom muffins, zucchini-cilantro soup, and pesto pesto pesto on everything (minus the parm, of course)

 

In a way it feels like I have been holding my breath for the last week, just waiting and watching and waiting some more. It really does seem to be getting better. I saw my physician yesterday and she was so pleased with how much better it looks than the last time she saw me three weeks ago. My SO said it looks so much better today when we were taking the daily rash pictures. So far, so good. I whisper to my skin sometimes "please. please keep healing"

 

The many permutations of this rash are fascinating. Just when I think I have figured out how it works, it changes. I am no longer getting the water blisters, just the red dots and sometimes hives. And they are no longer in big clusters, but more individual. And they do not stick around as long. But I have also not had a day without at least one itchy lump or bump in 6 weeks, whereas all spring it would flare and recede, flare and recede. So, I dunno. It's odd. I think it's getting better but sometimes I just wonder if I have gotten better at tolerating it. (I think I saw Simone say something similar)

 

Oh! and I've noticed a new thing to improve with being totally gluten free - or rather, my SO noticed it. He said this morning "You know, you don't snore anymore. " And we both surmised that it must have something to do with the inflammation calming down now that I am Gluten-Free. Cool, huh?

 

Squirmy - thank you for continuing to share your experience. You must know that it means so much to those of us who are newer at this to hear from someone who has been at it a little longer. You have given me so much information to work with and that is empowering. I do see a little tiny light at the end of the tunnel, and on my good days, I am running like hell toward it. :) The itch still makes me cry sometimes (though I haven't cried in a few days) but it hasn't make me want to die in a while. I am sleeping better, and haven't needed ice packs at night in about a week. I keep wondering how long I will have to do LI, but I am trying to just focus on the present. (I really really really miss cheese and butter, though)

 

Simone - You take the "cookers" too?! (That's what I call the hot showers) They are a life saver for me - they gave me at least 3 hours of relief at the worst of it, and lately even more. It's such an intense pleasure/pain! Then I moisturize afterwards with olive oil. Yes, I smell like salad dressing for a little bit, but it really has become my favorite moisturizer. :) And I agree - this forum, and most especially Squirmy and Prickly, have been so incredibly helpful and kind. I don't know what I would have done had I not found my way here. You and I MUST vow to help the next generation of DH folks when we are able, ok?

   Thank you for the cookbook rec - I will check it out! I have started introducing very small amounts of grains back, just for a bit of variety and to loosen the restrictions that are on me right now - so far just a tiny bit of rice and masa. But mostly, I am eating epic amounts of veggies, which makes for epic pooping. (I think it's safe to say that we are all obsessed with our bowel movements in here. Never TMI! Heh. )

 

Ok. I'm about to turn into a pumpkin. Good night all. I wish you deep, itch-free sleep. :)


  • 0

Self Diagnosed with DH in June 2013

MD and ND confirmed shortly thereafter

Gluten free June 1, 2013

Low Iodine July 15, 2013 - (waiting for the rash to clear...)

Other symptoms: IBS-D gone, skin on face much clearer, anxiety gone, periods regulating and less painful, and oh! this one is new: I have not had a UTI since going gluten-free (used to get them several times a year)

Currently training to become a Nutritional Therapy Practitioner. I want to heal as many guts as I can!

 

Love Heals.


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#47 squirmingitch

 
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Posted 07 August 2013 - 05:46 PM

I'll never be able to find it now but I did see one thing that was a med document that said the UVB treatment actually worsened dh. But it was only the one thing & it was NOT a "study" with references etc... so I don't know how they decided that. 


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#48 pricklypear1971

 
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Posted 07 August 2013 - 10:36 PM

Hey Abby, sorry I wasn't around. If you need me just pm me!

Glad things are getting better. Dh is a weird combo of "one day at a time" and "reassess in two weeks". And sometimes it takes others telling you it looks better, or you act differently. It's all so hard to wrap your brain around.

It is "a thing" to rebuild your life after gluten/dh. Really. You aren't doing a little thing, here.
  • 1
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#49 ItchyAbby

 
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Posted 08 August 2013 - 10:22 AM

Annnd, now it's flared up again. WTF?! I am NEVER saying it's getting better again. EVER. It really does seem like every time I do, it flares up.

 

You are so right, Prickly - it really is one day at a time and I need to look at it as a big picture rather than the individual moments. Overall it's still much better than it was at it's worst, in the beginning of June. And it's still better than it was at the end of June when I had my Iodine-overload flare up. But sheesh, it can really take the wind outta my sails. I had a really good day yesterday. Today all I want to do is sleep and shower. (I also took a 25mg hydroxyzine this morning and it made me super groggy - Next time I'll take a half dose.)

 

Blah.


  • 0

Self Diagnosed with DH in June 2013

MD and ND confirmed shortly thereafter

Gluten free June 1, 2013

Low Iodine July 15, 2013 - (waiting for the rash to clear...)

Other symptoms: IBS-D gone, skin on face much clearer, anxiety gone, periods regulating and less painful, and oh! this one is new: I have not had a UTI since going gluten-free (used to get them several times a year)

Currently training to become a Nutritional Therapy Practitioner. I want to heal as many guts as I can!

 

Love Heals.


#50 squirmingitch

 
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Posted 08 August 2013 - 01:15 PM

((((((((((((((((HUGS)))))))))))))))))))))))))

 

Yup, I speak in whispers too. And try not to say it's getting better. :P


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#51 ItchyAbby

 
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Posted 12 August 2013 - 09:50 AM

(((BIG HUG)))

 

Nothing to see here folks. Just a fading rash. Pretty boring really... :D

 

(I say it's not getting worse now. That seems positive, true and not at all likely to jinx)


  • 0

Self Diagnosed with DH in June 2013

MD and ND confirmed shortly thereafter

Gluten free June 1, 2013

Low Iodine July 15, 2013 - (waiting for the rash to clear...)

Other symptoms: IBS-D gone, skin on face much clearer, anxiety gone, periods regulating and less painful, and oh! this one is new: I have not had a UTI since going gluten-free (used to get them several times a year)

Currently training to become a Nutritional Therapy Practitioner. I want to heal as many guts as I can!

 

Love Heals.


#52 squirmingitch

 
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Posted 12 August 2013 - 03:29 PM

YAAAAAAAAAAAAAAAAAAAAAAAAAAAYYYYYYYYYYYYYYYYYYYYYYY Abby!!!!!!!!!!!!!


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#53 ItchyAbby

 
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Posted 12 August 2013 - 06:55 PM

Thanks Squirmy! *restrained happy dance*

 

There are lingering hotspots here and there, and my sacrum/top buttcrack still itches quite a bit, even though it looks less inflamed. But the itch is different: it's an annoying itch for sure, but more like a "normal" itch, not the "OHMYGODI'MGOINGTODIEFROMITCH" itch that leaves me gasping for breath.

 

I still don't quite understand if I have Celiac or not (or whether that matters). Since I do not have DQ2 or DQ8, it would seem that it is unlikely, but maybe that is just a misunderstanding in the medical community? So, can I have DH without having Celiac? I am reading the book "Real Life with Celiac", and they have a chapter on DH, and while it's quite informative,  it seems that even there the information is mixed and there are lots of gaps. What a weird condition this is. It's fascinating and infuriating.

 

My mental health is improving - the anxiety has dissipated significantly. I have some lingering panicky moments, but I seem to be better able to deal with it when it arises. My therapist believes that I have some PTSD from this and I do not doubt it. My head, just like my skin, may take a while to calm down.

 

Now I just wanna know when I can eat butter again. I miss it so much. And ice cream...a whole summer without ice cream makes for a crabby Abby. And I cannot even console myself with Coconut Bliss as I have been abstaining from coconut - it was suspected of making me flare up, though it's hard to say if that was just the natural cycle of the rash. I will reintroduce it slowly.

 

On to dealing with the awkwardness that is the LI-gluten-free diet: a dear friend and neighbor came by to see me yesterday. I updated her on what was going on and told her a little about my diet restrictions. She said "Oh come on over! I'll make you gluten free waffles. They are so good." (Her husband is gluten-free) Anyway, I blanched a little. The idea of eating at someone else's house is still a little too daunting right now. So, I asked a little more about what was in these delicious gluten-free waffles. Amongst the things: whole eggs, soymilk and/or ricemilk, both with carageenan. *SIGH* I gently told her that it is better for me to just feed myself rather than try to let anyone else contort themselves to my needs right now. And then I invited her over to eat here instead.


  • 0

Self Diagnosed with DH in June 2013

MD and ND confirmed shortly thereafter

Gluten free June 1, 2013

Low Iodine July 15, 2013 - (waiting for the rash to clear...)

Other symptoms: IBS-D gone, skin on face much clearer, anxiety gone, periods regulating and less painful, and oh! this one is new: I have not had a UTI since going gluten-free (used to get them several times a year)

Currently training to become a Nutritional Therapy Practitioner. I want to heal as many guts as I can!

 

Love Heals.


#54 squirmingitch

 
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Posted 13 August 2013 - 11:00 AM

Terrific idea inviting her over to eat at your house!!!! That's thinking on your toes gal & being diplomatic in the bargain. :) 

 

Well, there's no time like the present to test some iodine. Pick your item. Maybe ice cream since you love it so much --- just make sure there is no carageenan in it. I have seen some with it. Hagen Daz does not have it if I remember correctly. Just do one item at a time though. Don't get mucked up adding 2 or 3 until you find out what this does.

 

As to the genes ----- those are not the ONLY 2 genes but 90% of the info. out there acts like they are. As more & more research is done they are finding other genes involved but there are not great numbers of them (or maybe enough research on them) for it to be touted all over the place. Sort of like everything you read about dh says the elbows, knees....... & we know it can be anywhere at all!

Sorry hon, if you have dh, you have celiac disease plain & simple. A dx of dh is a dx of celiac.

 

Your first paragraph above ---- oh yeh! You nailed it! And that's where I am ---- annoying itch but not the "OHMYGODI'MGOINGTODIEFROMITCH" itch that leaves me gasping for breath.

Ahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh...............................

 

Gotta run. Life calls. I wish I could take the phone off the hook so when life calls I wouldn't have to hear it ring or answer it. :lol:  :lol:  :lol:


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#55 ItchyAbby

 
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Posted 16 August 2013 - 05:09 AM

Thanks, Squirmy. The more I learn the more I realize how little we know about this condition! It's such a mystery. And it's frustrating when the medical "authorities" doggedly stick to incomplete or outdated norms.

 

I LURRRRRBE Haagen Daz! Ohmygoodness do I love ice cream. But you know what I decided I needed to introduce first? Butter. So I ate two pats of organic, unsalted butter (that I sprinkled with kosher salt). That's right. I just ate the butter by itself. I wanted pure, unadulterated buttery goodness. It was divine. :D

 

Here's the thing that's going on now: I ate the butter a 8 pm on Tuesday night. At 2:30am Wednesday morning, I woke up itchy with a new rash flare on my left flank. That seems too fast for it to be the butter that got me. So, I dunno how to go about this reintroduction if I just keep flaring up, seemingly randomly. How will I ever know if something is causing it or not? How will I know when it is okay to reintroduce foods?

 

Squirmy, I know you have been doing LI for 20 months or so and you still have flares. How do you know it's not something you are eating currently, even something that may be considered LI and gluten-free? Or do you just attribute it to the normal cycle of the rash?

 

The other thing that is weird about this outbreak on my left flank is how quickly it came back. A week ago, Wed. 8/7, the same area started to flare. By Tuesday 8/13 it was brown and flaky. (That was the night I ate the butter). And then Wed. 8/14 this new flare came on...and it came on fast! The "usual" progression has been: a little "pimple" that turns into a few more bumps within 24 hours that then flares up into a spread of hives. But this flare-up just went straight to the hivey spread - no build up. Seriously, just when I think I've got it figured out, it changes on me! It's wild. It's not so different that I had a reflare in that time frame but that it happened in the same spot - "usually" it moves on to another "quadrant". (And now I am wondering if that's true...back to my notes!)

 

I actually have 7 quadrants... septants? Left and right lat/pit/sideboob, left and right flank, left and right tummy and lower back. My lower back has been the problem child for the last few weeks. The rash there just keeps traveling from side to side and back again. I think a lot has to do with summer heat - it's hot and uncomfy when I am sitting in the car, on the couch and sleeping (I'm a back sleeper). I need to get more ice packs.

 

Some days I still cannot believe that this is happening to me. On the other hand, it has become my new normal, and that is kind of unfathomable and a little saddening. But whaddyagonnado? I don't want to fight it - that's stressful and exhausting. I refuse to accept or embrace it - that would be stressful and false. So, I just tolerate it. There is a certain peace in tolerance.


  • 0

Self Diagnosed with DH in June 2013

MD and ND confirmed shortly thereafter

Gluten free June 1, 2013

Low Iodine July 15, 2013 - (waiting for the rash to clear...)

Other symptoms: IBS-D gone, skin on face much clearer, anxiety gone, periods regulating and less painful, and oh! this one is new: I have not had a UTI since going gluten-free (used to get them several times a year)

Currently training to become a Nutritional Therapy Practitioner. I want to heal as many guts as I can!

 

Love Heals.


#56 squirmingitch

 
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Posted 17 August 2013 - 05:41 PM

The flares will hit the same places over & over again AND new places will arise. It happens. This stuff is a bitch with a capital B. 

It sounds like it could be iodine from the butter but then again it could just simply be a flare. You will not know until you test again & again. That's why it's so hard..... there are no true hard & fast rules with this stuff as far as when & how it flares & if it's iodine or not until you test, test & test again. That's a huge part of the reason I've been li for so long. I keep flaring & can't seem to find a spate of time when things are calm long enough for me to be able to get a good grip on weather it's a flare or caused by iodine.

 

How do I know it's not something I'm currently eating? B/C I don't take any chances with gluten ----- NONE . And I'm li sooooo...... doing that is the only way I can know it's the normal cycle of the rash. Believe me, this stuff makes you crazy. Despite all that I do; every once in a while I still question if I got gluten somewhere which is utterly ridiculous!!!!! That's how nutz this rash makes a person. For it to persist so long, I think, is an inconceivable thing for our brains to process or believe. We know it. The medical info. tells us that yet we can't believe we can be so vigilant & good & have this stuff still hanging on & on. 

Go here & start @ post #68 --- this is my story in pictures mol. after you finish that then go to pg. 6 to see what all that turned into. Beware! Page 6 is scary, VERY scary.

http://www.celiac.co...oto-bank/page-5

 

And this is an example of dh simply doing what it does despite being pristine in diet & low iodine.


Edited by squirmingitch, 18 August 2013 - 06:35 AM.

  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#57 ItchyAbby

 
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Posted 18 August 2013 - 08:50 AM

Oh Squirmy. That looks...I cannot even think of a word. "Uncomfortable" is too mild, "painful" is too generic. I am so sorry you have to live with this horrible rash. Was this the "worst" outbreak that you told me about earlier? Could you attribute it to stress at all?

 

What strikes me is how different your rash pattern is from mine: yours has many more individual dots. Mine is what I think Prickly aptly called "creeping crud". And I too, keep flaring - have been since June - without enough of a break for me to try any reintroductions. I tried the butter last week when the rash was the calmest it's been, but maybe that was too soon. Next time I am going to wait for a week or two (maybe more) after the all clear (no new itchy dots or spots, brown spots only, everything flaked off)

 

What I meant by asking about how you know if it is just the normal cycle of the rash is this: how do you know that you are not reacting to something else? This line of inquiry may be a result of me having read too much lately about autoimmune diseases. There are sites that tell me that I should quit all nuts and nightshades or grains and legumes, and still others that say I should limit bananas, leafy greens, broccoli...and on and on, until there is nothing left that feels safe to eat. I do think I need to not read so much right now. It makes me very anxious and fearful.


  • 0

Self Diagnosed with DH in June 2013

MD and ND confirmed shortly thereafter

Gluten free June 1, 2013

Low Iodine July 15, 2013 - (waiting for the rash to clear...)

Other symptoms: IBS-D gone, skin on face much clearer, anxiety gone, periods regulating and less painful, and oh! this one is new: I have not had a UTI since going gluten-free (used to get them several times a year)

Currently training to become a Nutritional Therapy Practitioner. I want to heal as many guts as I can!

 

Love Heals.


#58 squirmingitch

 
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Posted 18 August 2013 - 09:55 AM

Yes, that was the worst outbreak I have had before gluten-free or since gluten-free. It shocked the hell out of me! And it was the darkest days of my entire life. It was excruciating times 1,000. It felt like I had shards of glass embedded in my skin 24/7. Clothing was sheer torture so unless I absolutely had to go somewhere, I sat around the house nekked & still the lesions were beyond painful. All of that which you saw & more there weren't photos of & not one, not one got any infection. THAT is testament of the strength of the antibodies in our skin.

 

Reacting to anything else:

For over 6 months, it was closer to 9 months, I was low salicylate as well as low iodine so my diet consisted of cashew butter, flax meal, fresh beef, chicken, pork, celery, gr. beans, rice, peas, leeks, iceburg lettuce, bananas, deeply peeled potato, safflower oil, decaf instant coffee, egg whites, limes, plain salt & no other spices. What more could I cut out? If one has gut issues I can see going for what all those sites say but I seriously doubt any of the foods listed that I was eating was causing my skin reaction. And to put the test to that statement --- I have been eating everything except gluten & iodine since then & have actually improved as far as the rash goes. I no longer get the bone deep driveyouinsanescreaming itch. I am indeed improving albeit at times it seems far too slowly. I still get blisters but very few compared to before. I can go hours at the time w/o itching. I only wake once each night & sometimes sleep all the way through.

 

I think you are right --- you should not read so much right now. I did & it just made me crazy anxious & I fretted about every little thing I put in my mouth. IrishHeart (on this board) told & still tells ppl this:

Do not be afraid of food! You need food. Eat. And she will be the first to say a food log is a very valuable tool. But don't freak yourself out where food is concerned. 

 

The stress question:

ABSOLUTELY! Stress makes a huge impact on my rash & I know it. 


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#59 ItchyAbby

 
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Posted 18 August 2013 - 04:57 PM

:( Outbreak on my stomach today. I woke up this morning and everything was looking really good and calm. Then by 2pm, my stomach was covered in red hives. I dunno what to do, Squirmy. Is this the butter? Is this the hydroxyzine? Maybe it's my upcoming period? My stomach has been clear for a couple of weeks, my best area. New spots also showed up in my pits and sides. Ironically, my lower back is the calmest it's been in weeks. The rash has been steadily decreasing overall, and suddenly it's getting worse again. I'm so discouraged.


  • 0

Self Diagnosed with DH in June 2013

MD and ND confirmed shortly thereafter

Gluten free June 1, 2013

Low Iodine July 15, 2013 - (waiting for the rash to clear...)

Other symptoms: IBS-D gone, skin on face much clearer, anxiety gone, periods regulating and less painful, and oh! this one is new: I have not had a UTI since going gluten-free (used to get them several times a year)

Currently training to become a Nutritional Therapy Practitioner. I want to heal as many guts as I can!

 

Love Heals.


#60 squirmingitch

 
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Posted 18 August 2013 - 06:41 PM

Have you made sure the hydroxyzine is gluten free?

No, I don't think this is the butter now. That would have happened & you wouldn't be clearing & then relapse from iodine unless you ate more of it.

It could be your upcoming period. Hormones affect the rash. Pregnant women will get dh when they never had it before so hormones are certainly a factor.

Also, something I think we've missed telling you about is that the rash really likes to ramp up later in the day. It's different for each of us but it may begin in the afternoon or later & it seems like it's all a big buildup for the nighttime keepyouawakescreamingmeemies.

 

I keep telling you sweetie that this is what the rash does. Your back may clear but it pops up other places, then it may hit your back again. It gets better overall & then it flares & it makes you crazy. It does not have any manners. It follows no rules. You keep trying to figure it out but you can't. No one can. This is why I gave you those photos of me as an example. I had been pretty darn well clear with only a few places for weeks & then BOOM! it did to me what you saw in the photos. And it STRESSES us out. And stress feeds my rash so it's a viscous cycle. Abby hon, the rash is not going to go away overnight. I would like to think it would but at this point in time, with what's been going on with you, I think it's not going to be one of those Ta-Da! it's gone! things for you. The only & best thing I can tell you right now is not to expect it to do this or that b/c it will disappoint you every time. You'll get your hopes all up just to have them dashed upon the rocks & you end up on an emotional roller coaster. I've been there, done that. I know it sounds easy for me to say but just try to take it 1 day at a time & don't keep looking for it to show you signs that it's clearing for good --- you'll just keep yourself in a state. I did the same thing & in hindsight I can honestly say that I would have been much better off if I had not dwelled all the time on trying to figure out if it's going away or not.

Abby dear I know how rough this is. I'm crying for you & what you're going through. It sucks big weenies!

And now you need some monster hugs

 

((((((((((((((ABBY)))))))))))))))


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 





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