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Glutened, Nightmares, Insomnia Oh My!
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I got "glutened" in the last few days, usual symptoms but something new.....I can't sleep, and when I do it's disrupted by nightmares, sleep walking and a creepy crawly feeling. I've woken up sleep walking in the last couple days, wake up disturbed with nightmares, and then can't get back to sleep--I'll be wide awake for hours, like I've had mass amounts of caffeine at midnight! Going on day 4 with this, any ideas??? I'm exhausted all day, my body won't relax, this is all VERY new to me!! Help!

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I'm sorry. Anything to break the cycle...exercise, a massage, a drink...???

I hate it when a gluten symptom like that happens...something so weird and unpredictable and disruptive. Ugh.

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Sorry to hear you had such a rough go!  The nightmares are new for me (although most symptoms are -- only 6 months since going gluten-free), but that has become the first sign of a glutening for me.  So you're not alone on that issue.  No sleepwalking for me, at least that has been reported...  Hope you flush it out quickly!

Cathy

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3+ years and every so often I have a dream where I am being offered something gluteny or glutened.  Not as often as in the beginning tho!

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Wow...thank you so much for starting this thread!!! I had never thought about gluten being connected to my sleep issues. I was 99% sure I had nightmare disorder (i.e. sleep anxiety disorder) because I've suffered horrendous dreams my whole life, especially when I was younger and undiagnosed. Since being diagnosed Celiac (9 years ago), I never thought to analyze my sleep with potential for trace/accidental gluten intake (I am strictly gluten-free, highly symptomatic). I am going to see if I can link my nightmares to eating out...the highest chance of eating trace gluten for me. Obviously, stress still causes me to have horrible sleep, but maybe gluten is a factor too...or maybe gluten even contributes to my anxiety and stress!

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    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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