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Another Pic - Do You Think This Is Dh?


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14 replies to this topic

#1 Si & Ash's Mom

 
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Posted 10 July 2013 - 05:27 PM

Hello all. I know that you aren't able to diagnose my son but I would love to hear your thoughts. My 6 year old son has a rash on both of his elbows (one side is worse than the other) and I want to be armed with as much info as possible before we go see the doctor. Do you think it's possible that this is DH? He says it's itchy sometimes but not all the time so that leads me to believe that it isn't. I'll have the doctor look at it anyway but do you think it's worth asking for a biopsy? Just not sure what to do next (if anything at all!). Thanks for your input :)

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#2 Si & Ash's Mom

 
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Posted 11 July 2013 - 06:18 AM

Here's some more info. My son has not been diagnosed with celiac - he has allergies (dogs and cats and hay fever to a lesser extent) and has struggled with reflux since he was a baby. I believe either celiac or ncgs is in our family. My grandmother has always said she had celiac disease though I don't think she was officially dx'd. My grandmother, my brother and myself all deal with gi issues, apnea/snoring, and skin issues (eczema, keratosis pilaris) as well as fatigue and depression (oh and I am really low in iron as well). I recently had celiac blood work done which all came back negative. Obviously celiac/food sensitivities are on my brain and there is a strong possibility that I am simply being an over-concerned parent but skin issues seem to signal internal issues. I'm just trying to figure out what to do next... I can almost guarantee the doctor will give me some cream to put on his elbows and send us on our way. That just doesn't really get to the underlying issues IMHO. I'd love to hear some of your opinions (even if it's that I'm being unreasonable!). Thanks :)


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#3 squirmingitch

 
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Posted 11 July 2013 - 06:22 AM

DH is itchy, itchy, itchy!!!!! He would be clawing himself raw. And photos can be tricky..... It doesn't really look like dh. It could be psoriasis of some kind. I wouldn't push for a biopsy for dh for this reason ~~ If he does it & it's negative then you'll play hell getting him to biopsy it again for dh at a later date should the need arise.


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#4 Si & Ash's Mom

 
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Posted 11 July 2013 - 06:32 AM

DH is itchy, itchy, itchy!!!!! He would be clawing himself raw. And photos can be tricky..... It doesn't really look like dh. It could be psoriasis of some kind. I wouldn't push for a biopsy for dh for this reason ~~ If he does it & it's negative then you'll play hell getting him to biopsy it again for dh at a later date should the need arise.

Thanks squirmingitch. That's what I thought. I'll take him in to the doctor anyway, just to see what he says, but I won't push for a biopsy. I appreciate your thoughts!


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#5 squirmingitch

 
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Posted 11 July 2013 - 06:57 AM

YVW!

A question. Does anyone in your family have celiac disease? I haven't been on the other forums in a while so don't know your situation. So I'm wondering what made you think it might be dh? 

 

There are many rashes & skin problems associated with celiac disease. If at some point you suspect again that he really does have dh, then come back here before you have him tested so you can get the right info. to walk into the doc with so you can make sure he gets tested the right way.


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#6 Si & Ash's Mom

 
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Posted 11 July 2013 - 07:41 AM

YVW!

A question. Does anyone in your family have celiac disease? I haven't been on the other forums in a while so don't know your situation. So I'm wondering what made you think it might be dh? 

 

There are many rashes & skin problems associated with celiac disease. If at some point you suspect again that he really does have dh, then come back here before you have him tested so you can get the right info. to walk into the doc with so you can make sure he gets tested the right way.

Ah! I had a long post with more info but it seemed to disappear (all my posts need mod approval since I'm new so maybe that's why). My grandmother has always said she has celiac disease but I don't think she was ever actually dx'd. My grandmother, my brother and I have all dealt with GI troubles (cramping, diarrhea), snoring/apnea, fatigue and depression (and I recently found out I am really low in iron). My doctor recently sent me for celiac blood tests - they all came back negative. My son has not been tested for celiac - he has had reflux since he was a baby (repeatedly on prilosec, I think it was) and has bad allergies to dogs/cats (and hay fever to a lesser extent). I'm probably just being an over-concerned parent but the skin issues, in my opinion, signal internal issues. Anyway, it just sucks feeling like something's wrong but I never seem to make any progress (and I meet a lot of resistance from family too)! I appreciate your help/advice though. There's so much knowledge here - it's just awesome!


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#7 notme!

 
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Posted 11 July 2013 - 07:45 AM

Ah! I had a long post with more info but it seemed to disappear (all my posts need mod approval since I'm new so maybe that's why).

 

(sorry!  it should be still there, just out of sequence because there were other replies after that one)  :)


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#8 Si & Ash's Mom

 
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Posted 11 July 2013 - 07:46 AM

(sorry!  it should be still there, just out of sequence because there were other replies after that one)   :)

No worries! 


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#9 squirmingitch

 
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Posted 11 July 2013 - 09:05 AM

Oh I see. That's why I didn't know. It was like cross posting happens.

Okay. I understand where you're coming from & I don't think you're overreacting; you're just keeping a weather eye out & rightly so! Well, there's nothing to keep you all from going gluten-free. The only thing with your kids is that an official dx would make things easy for school b/c you could prove to them that he/they need to eat gluten free. That may be an issue, so you have to decide how to proceed & I don't envy you the decision ~~~ it's a tough one.


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#10 Si & Ash's Mom

 
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Posted 11 July 2013 - 10:07 AM

Oh I see. That's why I didn't know. It was like cross posting happens.

Okay. I understand where you're coming from & I don't think you're overreacting; you're just keeping a weather eye out & rightly so! Well, there's nothing to keep you all from going gluten-free. The only thing with your kids is that an official dx would make things easy for school b/c you could prove to them that he/they need to eat gluten free. That may be an issue, so you have to decide how to proceed & I don't envy you the decision ~~~ it's a tough one.

Yes, I would love an official diagnosis if he does have celiac. It would be better for school and it would make it easier for our family to accept it. If I were to make my son gluten free without a diagnosis I can guarantee my parents and my inlaws would disregard it. Oh well...


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#11 squirmingitch

 
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Posted 11 July 2013 - 10:41 AM

I completely understand. And it's frustrating for you as it's like being caught between a rock & a hard spot.

 

Hang in there.


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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#12 Si & Ash's Mom

 
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Posted 11 July 2013 - 11:36 AM

I completely understand. And it's frustrating for you as it's like being caught between a rock & a hard spot.

 

Hang in there.

Thanks! I have a doc appointment for my son on Monday. If anything comes out of it, I'll post :). Thanks again!


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#13 Mum in Norway

 
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Posted 08 August 2013 - 09:29 AM

What did the doc say?

I have had a rash that looks just like that, only more read, my whole life, have just reasently started to wonder if it might be DH...


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#14 Si & Ash's Mom

 
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Posted 28 August 2013 - 12:00 PM

What did the doc say?

I have had a rash that looks just like that, only more read, my whole life, have just reasently started to wonder if it might be DH...

Sorry - I only checked this now... his doctor looked at it and said it was nothing. I am assuming he's correct and that it isn't DH but I still feel it seems fishy. Just not indicative of anything in particular. I have come to the conclusion that I need to figure out my own health first and get an appropriate diagnosis for myself before I can help my kids with their concerns. Hope you are able to sort out your own health as well :)


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#15 w8in4dave

 
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Posted 30 August 2013 - 07:09 AM

Looks like my rash ... CAn they do a swab test? Mine is on my back 


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Recovering Gluten Eater 

DX'd June 17th 2013





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