Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Another Pic - Do You Think This Is Dh?
0

15 posts in this topic

Hello all. I know that you aren't able to diagnose my son but I would love to hear your thoughts. My 6 year old son has a rash on both of his elbows (one side is worse than the other) and I want to be armed with as much info as possible before we go see the doctor. Do you think it's possible that this is DH? He says it's itchy sometimes but not all the time so that leads me to believe that it isn't. I'll have the doctor look at it anyway but do you think it's worth asking for a biopsy? Just not sure what to do next (if anything at all!). Thanks for your input :)

http://www.flickr.com/photos/43034105@N08/9256884905/lightbox/

0

Share this post


Link to post
Share on other sites


Ads by Google:

Here's some more info. My son has not been diagnosed with celiac - he has allergies (dogs and cats and hay fever to a lesser extent) and has struggled with reflux since he was a baby. I believe either celiac or ncgs is in our family. My grandmother has always said she had celiac disease though I don't think she was officially dx'd. My grandmother, my brother and myself all deal with gi issues, apnea/snoring, and skin issues (eczema, keratosis pilaris) as well as fatigue and depression (oh and I am really low in iron as well). I recently had celiac blood work done which all came back negative. Obviously celiac/food sensitivities are on my brain and there is a strong possibility that I am simply being an over-concerned parent but skin issues seem to signal internal issues. I'm just trying to figure out what to do next... I can almost guarantee the doctor will give me some cream to put on his elbows and send us on our way. That just doesn't really get to the underlying issues IMHO. I'd love to hear some of your opinions (even if it's that I'm being unreasonable!). Thanks :)

0

Share this post


Link to post
Share on other sites

DH is itchy, itchy, itchy!!!!! He would be clawing himself raw. And photos can be tricky..... It doesn't really look like dh. It could be psoriasis of some kind. I wouldn't push for a biopsy for dh for this reason ~~ If he does it & it's negative then you'll play hell getting him to biopsy it again for dh at a later date should the need arise.

0

Share this post


Link to post
Share on other sites

DH is itchy, itchy, itchy!!!!! He would be clawing himself raw. And photos can be tricky..... It doesn't really look like dh. It could be psoriasis of some kind. I wouldn't push for a biopsy for dh for this reason ~~ If he does it & it's negative then you'll play hell getting him to biopsy it again for dh at a later date should the need arise.

Thanks squirmingitch. That's what I thought. I'll take him in to the doctor anyway, just to see what he says, but I won't push for a biopsy. I appreciate your thoughts!

0

Share this post


Link to post
Share on other sites

YVW!

A question. Does anyone in your family have celiac disease? I haven't been on the other forums in a while so don't know your situation. So I'm wondering what made you think it might be dh? 

 

There are many rashes & skin problems associated with celiac disease. If at some point you suspect again that he really does have dh, then come back here before you have him tested so you can get the right info. to walk into the doc with so you can make sure he gets tested the right way.

0

Share this post


Link to post
Share on other sites




YVW!

A question. Does anyone in your family have celiac disease? I haven't been on the other forums in a while so don't know your situation. So I'm wondering what made you think it might be dh? 

 

There are many rashes & skin problems associated with celiac disease. If at some point you suspect again that he really does have dh, then come back here before you have him tested so you can get the right info. to walk into the doc with so you can make sure he gets tested the right way.

Ah! I had a long post with more info but it seemed to disappear (all my posts need mod approval since I'm new so maybe that's why). My grandmother has always said she has celiac disease but I don't think she was ever actually dx'd. My grandmother, my brother and I have all dealt with GI troubles (cramping, diarrhea), snoring/apnea, fatigue and depression (and I recently found out I am really low in iron). My doctor recently sent me for celiac blood tests - they all came back negative. My son has not been tested for celiac - he has had reflux since he was a baby (repeatedly on prilosec, I think it was) and has bad allergies to dogs/cats (and hay fever to a lesser extent). I'm probably just being an over-concerned parent but the skin issues, in my opinion, signal internal issues. Anyway, it just sucks feeling like something's wrong but I never seem to make any progress (and I meet a lot of resistance from family too)! I appreciate your help/advice though. There's so much knowledge here - it's just awesome!

0

Share this post


Link to post
Share on other sites

Ah! I had a long post with more info but it seemed to disappear (all my posts need mod approval since I'm new so maybe that's why).

 

(sorry!  it should be still there, just out of sequence because there were other replies after that one)  :)

0

Share this post


Link to post
Share on other sites

(sorry!  it should be still there, just out of sequence because there were other replies after that one)   :)

No worries! 

0

Share this post


Link to post
Share on other sites

Oh I see. That's why I didn't know. It was like cross posting happens.

Okay. I understand where you're coming from & I don't think you're overreacting; you're just keeping a weather eye out & rightly so! Well, there's nothing to keep you all from going gluten-free. The only thing with your kids is that an official dx would make things easy for school b/c you could prove to them that he/they need to eat gluten free. That may be an issue, so you have to decide how to proceed & I don't envy you the decision ~~~ it's a tough one.

0

Share this post


Link to post
Share on other sites

Oh I see. That's why I didn't know. It was like cross posting happens.

Okay. I understand where you're coming from & I don't think you're overreacting; you're just keeping a weather eye out & rightly so! Well, there's nothing to keep you all from going gluten-free. The only thing with your kids is that an official dx would make things easy for school b/c you could prove to them that he/they need to eat gluten free. That may be an issue, so you have to decide how to proceed & I don't envy you the decision ~~~ it's a tough one.

Yes, I would love an official diagnosis if he does have celiac. It would be better for school and it would make it easier for our family to accept it. If I were to make my son gluten free without a diagnosis I can guarantee my parents and my inlaws would disregard it. Oh well...

0

Share this post


Link to post
Share on other sites

I completely understand. And it's frustrating for you as it's like being caught between a rock & a hard spot.

 

Hang in there.

0

Share this post


Link to post
Share on other sites

I completely understand. And it's frustrating for you as it's like being caught between a rock & a hard spot.

 

Hang in there.

Thanks! I have a doc appointment for my son on Monday. If anything comes out of it, I'll post :). Thanks again!

0

Share this post


Link to post
Share on other sites

What did the doc say?

I have had a rash that looks just like that, only more read, my whole life, have just reasently started to wonder if it might be DH...

0

Share this post


Link to post
Share on other sites

What did the doc say?

I have had a rash that looks just like that, only more read, my whole life, have just reasently started to wonder if it might be DH...

Sorry - I only checked this now... his doctor looked at it and said it was nothing. I am assuming he's correct and that it isn't DH but I still feel it seems fishy. Just not indicative of anything in particular. I have come to the conclusion that I need to figure out my own health first and get an appropriate diagnosis for myself before I can help my kids with their concerns. Hope you are able to sort out your own health as well :)

0

Share this post


Link to post
Share on other sites

Looks like my rash ... CAn they do a swab test? Mine is on my back 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,374
    • Total Posts
      920,570
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard about and well taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a celiac disease to me with the records, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten due to what being He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • I'm new to the forum, so this topic may already have been covered....please forgive me, if that's the case.  I am in the beginning stages of guiding the development of a 504 plan to file for my 6th-grade daughter who was diagnosed with Celiac Disease 2 weeks ago. The diagnosis was made with a biopsy. My first question...A 504 is what's necessary....not just the IHCP, correct or no? I have the Physician's Statement & the Medical Evaluation report from our GI specialist. What else do I need to have at the ready? The team has requested we go ahead and write the IHCP & then include it with the 504.  And my second question...What accommodations have others found relevant to include on the IHCP  & 504? I just watched a 504-Plan webinar I found on this forum & it recommends the following: -access to gluten-free food in classroom & cafeteria - excused absence from activities that use gluten-containing foods or materials -  prevent cross-contamination in school food service - use of microwave to heat personal meals -  bathroom priveleges Is there anything I need to consider adding? My daughter does prefer eating school meals rather than packing a lunch from home & I am concerned about special events, overnight field trips etc. My learning curve is steep. What am I missing? Teach me, please & thanks so much! This forum has already helped me tremendously these past few weeks.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,450
    • Most Online
      1,763

    Newest Member
    Chellygirl
    Joined