Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Otc Supplements To Treat Symptoms


Mad Engineer

Recommended Posts

Mad Engineer Newbie

When I started going gluten-free, I had a pretty bad case of depression for weeks and I basically tried every single supplement on Amazon that had a good review to alleviate the depression....None of them really did a whole lot for me. (at one point I was taking pills from 5 bottles at a time... lol)

 

Obviously there's no cure to what we have but has anyone had any luck with OTC supplements to help with the symptoms ? 

for me, its the brain fog that I'm still dealing with... there's a bunch of stuff that claims to improve cognitive ability (I learned the term Nootropics in my research) has anyone have real experience with anything that helps with their symptoms?

 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Vitamin B12 sublingual, all natural supplement helped my brain fog and fatigue, until I got too much of it and got brain fog and fatigue!  Digestive enzymes are helping me to break down my food as my villi are healing.  My villi are too damaged to do the job of telling the pancreas to fire.  I take a multi-vitamin and am currently trying to find an over the counter powdered one that will work for me.  I have been getting it through a health practitioner and it has worked wonders for me.  I had nutrient levels tested and  found out what other food intolerances I had.  This helped me with brain fog.  I make sure to buy natural products which I feel are taken into the body better.

Link to comment
Share on other sites
Mad Engineer Newbie

any special kind? I tried a subligual B complex drop.. it does hype me up some what. I made the mistake of taking it right before bed one time and had an even harder time falling asleep then usual. 

 

I've briefly read some stuff on folate (which I think its B5?) that some people had success with brain fog?

Link to comment
Share on other sites
1desperateladysaved Proficient

All of the Natural food store Vitamin B sublingual tablets worked, so no special kind.  I am low in folate, but now my vitamin B12 is good.  I have a clear mind now!  For me, anyway B12 seemed to be the key.  I am working on bringing up my Folate by taking a vitamin B supplement with it and taking more green vegetables. I am looking for a supplement to give me a boost; however I have so many intolerances that supplements are hard to find.

D

Link to comment
Share on other sites
Mad Engineer Newbie

Thank you for the tip about the B vitamins. I did some more research and found out there are many forms of B12. The most common form is the cyanocobalamin which is less potent and breaks down to negligible amount of cyanide. I bought some of the methylcobalamin which is supposed to be more absorb-able.

 

during my search in B-vitamins learned about MTHFR polymorphism, (reduced ability to process folate) which seems to help people with chronic fatigue, esp with mental fog.  This probably belongs in a separate post but some of the treatment "protocols" basically involves taking methylcoblamin and folate in the form of l-methylfolate.

I don't know how much real science is behind it but I've reach the point of trying stuff that may work in a 'shotgun approach" (especially when these supplements are so inexpensive compared to prescription drugs and probably less side effects). Anyway I've taken the two for a few days and I'd have to say my energy level is up and my mental fog is maybe 50-75% gone. its no miracle cure and I'm not 100% cured yet,  but hopefully someone finds this useful. 

Who'd knew such a cheap common vitamin can have such an impact on energy levels!  (I should probably get tested for the MTHFR genes to make sure I actually do have this genetic defect and its not all in my head)

 

Anyway, if anyone has any other ideas, please share!

Link to comment
Share on other sites
Celiac Mindwarp Community Regular

Hi there

I found b12 good too, and when I made sure I wasn't getting cross contamination and cleaned up my diet, to mostly paleo had great improvements. Brian fog is now one of my first symptoms when glutened, along with a kind of instant feeling of hopelessness which last about 3 days.

Might be worth checking for any sneaky cc happening.

Glad you are getting some relief already, depression ain't fun.

Welcome to the board :)

Link to comment
Share on other sites
1desperateladysaved Proficient

Are you doing enzymes and Probiotic?  My Healthline Restore Probiotic seems to be doing something.  I am planning to try their enzymes as well, but for now I am taking Integrative Therapeutics, Inc enzymes which I get through my health practitioner.  I have also had success with enzymes from health food stores.  I can't remember exact brands, but have had success from several.  One of my favorite brands at the health food store are Nutrition Way.  I am not sure they do enzymes, though.

 

If you have adrenal issues you can look up herbs to support your adrenals.  I am using Astragalus, Siberian Eleuthero, and licorice in a preparation I purchased from my health care provider.  They advised me to go buy herbal singles from the store and I found them surprisingly inexpensive compared to other supplements. 

 

I really like to talk about these natural things.  They can be very powerful, so caution is warranted.  I once burned a sprained leg, that I was trying to help, by applying  a dry mustard compress.  I know of someone that burned their finger with garlic.  Check with a healthcare provider, and/or carefully study it out, so you do no harm.

 

D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
×
×
  • Create New...