Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Sun Sensitivity
0

9 posts in this topic

I was diagnosed close to a year ago. I've been gluten free since, with good results. My six month follow up showed great improvement. Since I was pretty asymptomatic prior to diagnosis, this was good to hear.

However,this summer I have become extremely sun sensitive. After even a very short time in the sun, I break out in a painful and itchy rash. It doesn't look like the pictures of DH, but more like a bumpy sun burn.

Does anyone else out there have sun sensitivity-- and what do you do besides staying covered up or inside?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm extremely sensitive to the sun and get burned quite easily, with splotchy red patches. The sensitivity did worsen with age - perhaps also because I get less holidays and less time at the seaside and my skin is less accostumed to the sun, but also because it gets drier with age. However I never connected it to celiac disease and in my case frankly I think it is not connected. I can offer however some practical wisdom hoping it won't sound too lame

1) If you are in the sun, put on sunscreen. Sounds stupid and obvious, but it may not be if you are not used to it. Protection 50 will insure that the sun does not touch you at all. Protection 40 or 30 is a good barrier. I prefer milky emulsions to creams, easier to spread and less oily. Even in the city you can put sunscreen on your face and arms (women do it all the time, lots of face creams have an inbuilt sunscreen factor)

2) Use as wide a hat as possible when on the beach and use caps in the city or a stylish Borsalino-like hat

3) Buy and use a sun umbrella when on the beach (I love swimming and being on the beach but I couldn't survive without a sun umbrella)

4) Wear loose cotton or linen shirts and pants if you feel that you have to stay covered.

0

Share this post


Link to post
Share on other sites

In the early days of my recovery (and leading up to it for many years) I seemed to have lost the ability to handle any sun exposure. I would burn easily and had to be very cautious. Have they been monitoring your vitamin D levels as you recover? I was put on megadoses of D3 and still my D levels were not adequately recovering. When I added a lot of healthy fats and cholesterol from trusted sources, pastured butter, coconut oil and lots of pastured eggs and stayed away from vegetable fats like crisco, corn oil, canola oil, soy oil, cottonseed oil, my D levels began to rise and I was able to begin tolerating sun exposure once again. I went from being pale and pasty to having a more natural color year round. I don't overdo exposure but certainly tolerate it much better now. The paradox of sunscreen is that you are spreading a toxic substance on the body's largest organ that blocks the body's ability to synthesize vitamin D naturally. The mechanism of producing it requires ample supplies of cholesterol, so if you are trying to eat low fat/low cholesterol it seems you would be setting up the mechanism where you remove the very things that the skin needs sun exposure to make for good vitamin D levels. Vitamin D which is now being understood to be crucial in the prevention of all sorts of disease mechanisms.

0

Share this post


Link to post
Share on other sites

A rash similar to heat rash after a day at the beach was one of the first things I noticed when I started getting sick. I still get a similar rash now if I go to the beach. I am not sure if it is celiac related but I hope with the supplements and gluten-free diet it will eventually go away. I try and stay in the shade as much as possible and put on sunscreen.

0

Share this post


Link to post
Share on other sites

You're making me think that my extreme sun sensitivity is not a matter of age but of depleted skin resources due to celiac disease... who knows! It would be a nice thing...

1

Share this post


Link to post
Share on other sites




Thank you for the thoughtful and thorough responses.

 

I've been extra careful to stay in the shade and to load up on sun screen - and the rash has cleared up. I use to be a "sun worship-per" as a teen - and maybe now I am paying the price. 

 

I never had this problem before - so I was wondering if it is a celiac connection. I tend to blame all of my woes on celiac! <_<

0

Share this post


Link to post
Share on other sites

I noticed it seemed to be worse the first summer after I went gluten free. I had never had the itchy bumps you described (Polymorphous Light Eruption) pior to that.

I deffinetly belive it is celiac related.

0

Share this post


Link to post
Share on other sites

I had polymorphous light eruption for years, but found after I stopped eating gluten it actually went away. During the PLE my dermatologist had me apply 50+ spf sunscreen Plus a lotion that contained zinc oxide.  This would help keep the rash/hives at bay.

0

Share this post


Link to post
Share on other sites

I get this. Took me awhile to figure out what it was. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined