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Getting Tested Again?


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9 replies to this topic

#1 WinterSong

 
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Posted 14 July 2013 - 05:44 PM

Hi, 

 

I was diagnosed with Celiac in March 2011. By November of 2012 I finally had gotten my tTg level back down to normal. I've been doing really well since and haven't gotten sick at all. Feeling great.

 

I'm going to lose my current health insurance at the end of September and need to decide if I want to go in for a check up blood test to make sure that gluten isn't sneaking in without me knowing.

 

How often do you get your levels checked if at all? My doctor didn't say anything other than congratulations during our last conversation. 

 

Thanks!

 

Jessica


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Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012


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#2 nvsmom

 
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Posted 14 July 2013 - 06:08 PM

My GP won't do any sort of blood check test. Period. I have started seeing another ( nutrition based) doctor and he seems to want to test every two months. I would say that the ideal is every year until you are sure you are healed (negative tests and no symptoms) and then only when you suspect a problem after that.

Congrats inherently negative levels! :D
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Nicole Posted Image

"Acceptance is the key to happiness."

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Celiac - June, 2012
Hypothyroid - August, 2012

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#3 Lisa

 
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Posted 14 July 2013 - 06:12 PM

Jessica, I would go for the follow up while you have insurance. ;)


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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#4 psawyer

 
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Posted 14 July 2013 - 07:00 PM

Jessica, I would go for the follow up while you have insurance. ;)

Good advice.


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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#5 love2travel

 
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Posted 14 July 2013 - 07:40 PM

I get mine done every six months. Probably will cut back to annual now that I was diagnosed over two years ago. I agree - definitely go while you still have insurance.
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#6 GottaSki

 
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Posted 15 July 2013 - 06:05 AM

I was every six months for the first two years until both my celiac panel and nutrients were all good.  Now I get them all annually.

 

I agree with Lisa and Peter -- get them done while you have insurance -- along with any other tests you can think of. 

 

We remain insured but this past few years our coverage has increased at a ridiculous rate which has required our family to change to a catastrophic policy until I am back to work full time.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#7 WinterSong

 
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Posted 16 July 2013 - 12:48 PM

Thanks for the advice! Even though my last test was negative, I'm going to schedule another appointment while I can to make sure that I'm still on track even though I haven't gotten sick :)


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Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012


#8 nvsmom

 
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Posted 17 July 2013 - 06:57 AM

Good luck.  :)


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Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

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#9 Mom-of-Two

 
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Posted 23 July 2013 - 10:10 AM

First check 6 months after, since those were normal, both myself and my 8 year old only have to go yearly. Forever, according to my GI!

She also checks my iron still, as I'm having trouble getting that up. My 8 year old had normal vitamin levels after diet change, so her pediatrician doesn't need to monitor her nutrients regularly.
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#10 WinterSong

 
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Posted 14 August 2013 - 01:14 PM

Thanks to everyone who replied. Just got my test results back and my ttg is still normal. Whoop!
  • 0

Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012





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