Posted 15 July 2013 - 08:11 AM
My daughter and I both have these symptoms. When I was first dx'd my gastro symptoms improved with the complete removal of gluten -- but the autoimmune symptoms all worsened with time.
If you are anemic it is possible you have not yet healed enough to be properly absorbing nutrients. Have you had other nutrient testing, besides iron?
My Celiac Doc runs mine annually now -- for the first two years gluten-free I was still very deficient in most of these:
B1, B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc
Also might want to add the CMP and CBC if they haven't been run lately.
Healing can take a long time -- for me I had no improvement to my celiac biopsies (I had annual endos as I wasn't improving gluten-free) -- until my three year mark and even then the improvement was minimal.
Have you tried a food/symptom journal? Some need to remove more than just gluten from the diet until healing happens.
Good Luck to you
Let us know how it goes with the dietician.
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE -- probable cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
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