Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

What In The World Is Going On With My Body


niese

Recommended Posts

niese Explorer

So I have been gluten-free for almost 2 months however the past week off and on I have been having watery diarrhea  (sorry if TMI) I have not eaten anything new as a matter of fact not had much of an appetite and I feel like I have not been gluten or CC I don't have any abdominal pain that I usually get from CC.  I am on probiotics and digestive enzymes which are both gluten-free.   At first I thought maybe the D was from my monthly cycle but that is over with.  I am also dairy free however cheese and yogurt don't bother me but I really haven't had any this past week.  I don't understand what the heck is going on.   :(

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Sometimes we can't think beyond Celiac.  Perhaps it's just a virus or a bit of food poisoning?  Maybe a new food intolerance? 

 

Hope someone else might have a more definitive answer.  I hope you're feeling better soon!

Link to comment
Share on other sites
niese Explorer

Sometimes we can't think beyond Celiac.  Perhaps it's just a virus or a bit of food poisoning?  Maybe a new food intolerance? 

 

Hope someone else might have a more definitive answer.  I hope you're feeling better soon!

I haven't eaten anything new, really haven't eaten much of anything not much of appetite.  Today I didn't eat until 2pm and was up at 8:30am, I really wasn't hungry and forced myself to eat something.  I just can't figure this one out. 

Link to comment
Share on other sites
pricklypear1971 Community Regular

Keep a food log.

Also, consider that you may now be more sensitive to gluten cc. Your symptoms may change. Anyone else at home eat gluten?

Link to comment
Share on other sites
niese Explorer

Keep a food log.

Also, consider that you may now be more sensitive to gluten cc. Your symptoms may change. Anyone else at home eat gluten?y

yes I have gluten eaters in the house, but I am a freak when it comes to my gluten-free cooking/food.  When I cook I clean the kitchen down first buy wiping everything down counters, stove top, sink, then I get my food and utensils out which I have my own for gluten-free only.  I never cook when someone is cooking gluten food, usually I cook first then they cook.  No matter what I always follow my cleaning routine and all my stuff is kept separate as well. So if I am getting CC I don't know what I am missing.  Everyone stays out of my food so there isn't any double dipping or anything like that.  In the beginning it was't like this until I flipped out and put my foot down.  

Link to comment
Share on other sites
niese Explorer

Maybe it is a virus but I have no other symptoms of anything even my energy is up. If it is a new food intolerance that blows my mind how can all of a sudden develop a new food intolerance?  Figuring this all out can be mind blowing at times..

Link to comment
Share on other sites
pricklypear1971 Community Regular

Are you kissing a gluten eater???? Do they eat around the house? In your bed?

That said, at almost 1 year gluten-free I became sensitive to commercial mint flavoring. Made everything go right through me. Could have knocked me over with a feather. No big cramping, sickness otherwise...just a complete emptying of my intestines. Bye bye junior mints.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



niese Explorer

Are you kissing a gluten eater???? Do they eat around the house? In your bed?

That said, at almost 1 year gluten-free I became sensitive to commercial mint flavoring. Made everything go right through me. Could have knocked me over with a feather. No big cramping, sickness otherwise...just a complete emptying of my intestines. Bye bye junior mints.

sorry to hear about the jr mints those are awesome.  I make sure hubby brushes teeth before any kisses drives him nuts but he is getting use to it. Eat in bed I would flip on him if he did that lol.  No we all usually eat at the table.  Maybe it is a bug or a new food intolerance, guess back to the food journal :(  

Link to comment
Share on other sites
pricklypear1971 Community Regular

sorry to hear about the jr mints those are awesome. I make sure hubby brushes teeth before any kisses drives him nuts but he is getting use to it. Eat in bed I would flip on him if he did that lol. No we all usually eat at the table. Maybe it is a bug or a new food intolerance, guess back to the food journal :(

I have a 5'4" rat that spreads gluten all over my house. So, very little gluten for my spawn (at home). Hubs is well trained (and brushed and washed).

It may be a bug. I had a nasty one last year, I swear it took 2 months to feel normal. I would have sworn it was gluten except Spawn Rat had same symptoms.

I know your appetite is down, but maybe consider switching to totally new whole foods and see if anything changes?

Your beauty products are gluten-free?

Link to comment
Share on other sites
niese Explorer

I have a 5'4" rat that spreads gluten all over my house. So, very little gluten for my spawn (at home). Hubs is well trained (and brushed and washed).

It may be a bug. I had a nasty one last year, I swear it took 2 months to feel normal. I would have sworn it was gluten except Spawn Rat had same symptoms.

I know your appetite is down, but maybe consider switching to totally new whole foods and see if anything changes?

Your beauty products are gluten-free?

I don't have any issues with my skin so do I still need to have gluten-free beauty products.  I do make sure my chap stick is gluten-free just encase I lick my lips lol

Link to comment
Share on other sites
bartfull Rising Star

It depends on how much you trust yourself to be careful. I am a fanatic about washing my hands, but if your foundation is not gluten-free and you touch your face, then eat something without washing your hands first, you might get glutened. Also, if you don't use a gluten-free shampoo, eventually you will get a little bit up your nose and then of course you will swallow it. Lotions of course could get into your food if you don't wash your hands EVERY time you pop something in your mouth. It's crazy the things you might never think of that can be dangerous to us.

Link to comment
Share on other sites
niese Explorer

It depends on how much you trust yourself to be careful. I am a fanatic about washing my hands, but if your foundation is not gluten-free and you touch your face, then eat something without washing your hands first, you might get glutened. Also, if you don't use a gluten-free shampoo, eventually you will get a little bit up your nose and then of course you will swallow it. Lotions of course could get into your food if you don't wash your hands EVERY time you pop something in your mouth. It's crazy the things you might never think of that can be dangerous to us.

Oh boy this disease is enough to drive me crazy with everything there is to learn.  I don't wear makeup too often maybe once or twice a month.  Thats only cause I am not working at the moment, when I worked I wore it almost everyday.  I never gave all this a thought that you said.  I do wash my hands alot especially before touching or eating any food, of course after using the restroom.  Wow shampoo never gave it a thought however I do only use suave which if I remember correctly it is suppose to be gluten free.  As far as beauty products I am looking for the same ingredients as food or is there something different I need to look for?  Guess I need to check my body wash as well.  Gee just when I thought I had this disease understood you learn something new, but then again I am still a newbie.  I did finally find a GI dr that specializes in Celiac and I see him next month so excited just hope he is good.  Thanks everyone for all the info very helpful.   

Link to comment
Share on other sites
1desperateladysaved Proficient

It could be clean out stuff.  The body is bound to surprise you at times.  Mine has!

 

You haven't by chance began to take magnesium or Vitamin C.  These cause diarrhea when your body can't handle so much of it.

 

Get well,

 

D

Link to comment
Share on other sites
Gemini Experienced

I don't have any issues with my skin so do I still need to have gluten-free beauty products.  I do make sure my chap stick is gluten-free just encase I lick my lips lol

niese......I am a very, very sensitive celiac who does not screen anything but lip products and hand creme.  It is not hard at all to NOT gluten yourself, unless you have bad habits like not washing your hands before you eat.  Who doesn't wash their hands after applying make-up?  You do not want make-up on your clothes because it can stain them permanently so if you manage to not stain your clothes, then you can manage to not gluten yourself with foundation.  I don't know many people who apply foundation that close to the mouth, anyway, that you would need to worry about that.  It's not supposed to be applied that way.

 

As for shampoo, it depends on how you bathe or shower.  If you let the shampoo run down your face, then it could be a problem.  This is 100% common sense driven and you will learn in time what you can safely do.

 

I only say this because I have been gluten-free for 8 years now, never had any skin issues from gluten to begin with, and my antibody tests always come back stellar and I haven't had a Celiac symptom in 5 years......other than the rare occasion when I am glutened on a trip.  That's rare indeed, though.  My symptoms are severe and I always know when I have even been cc'd.  It has never happened from make-up so please don't fear your make-up bag!  ^_^

Link to comment
Share on other sites
Wheresthebeef Rookie

This could be your body flushing toxins out ESPECIALLY if you are taking alot of probiotics, and especially if you feel better after the diarrhea. I've experienced this alot myself while taking quality probiotics.  Maybe slow down on the probiotics and make sure to keep electrolytes up and stay hydrated.

Link to comment
Share on other sites
niese Explorer

Thanks everyone for the advise.  

 

This could be your body flushing toxins out ESPECIALLY if you are taking alot of probiotics, and especially if you feel better after the diarrhea. I've experienced this alot myself while taking quality probiotics.  Maybe slow down on the probiotics and make sure to keep electrolytes up and stay hydrated.

Now that makes sense I don't feel the usual sickness with diarrhea so thinking its just my body flushing out the toxins.  I do only take 1 probiotic but only been taking them for about 3 weeks now along with digestive enzymes.  I do take 2 digestive enzymes before each meal thinking I will cut back to 1 per meal and see what happens, thanks for the advise.  

Link to comment
Share on other sites
niese Explorer

niese......I am a very, very sensitive celiac who does not screen anything but lip products and hand creme.  It is not hard at all to NOT gluten yourself, unless you have bad habits like not washing your hands before you eat.  Who doesn't wash their hands after applying make-up?  You do not want make-up on your clothes because it can stain them permanently so if you manage to not stain your clothes, then you can manage to not gluten yourself with foundation.  I don't know many people who apply foundation that close to the mouth, anyway, that you would need to worry about that.  It's not supposed to be applied that way.

 

As for shampoo, it depends on how you bathe or shower.  If you let the shampoo run down your face, then it could be a problem.  This is 100% common sense driven and you will learn in time what you can safely do.

 

I only say this because I have been gluten-free for 8 years now, never had any skin issues from gluten to begin with, and my antibody tests always come back stellar and I haven't had a Celiac symptom in 5 years......other than the rare occasion when I am glutened on a trip.  That's rare indeed, though.  My symptoms are severe and I always know when I have even been cc'd.  It has never happened from make-up so please don't fear your make-up bag!  ^_^

thanks for the info I was freaking out about my makeup and was about to throw everything out lol 

Link to comment
Share on other sites
pricklypear1971 Community Regular

thanks for the info I was freaking out about my makeup and was about to throw everything out lol

Okay, I want to make a point.

Gemini has great luck not getting cc'd from cosmetics, or shampoo, or lotion...but YOU may not.

Being concerned about topical gluten is not exclusively the domain of dh sufferers who break out from topical gluten.

We are all different. Just like one of us will not be able to eat X food or be in X environment, some of us need to get all gluten out of the house and out of our body products.

Plenty of Celiacs refuse to use glutenous skin/beauty care, not just DH Celiacs and just not ones with other dermalogical issues.

I compare using glutenous body care to washing my dishes with glutenous dish soap, or polishing my furniture with wheat germ oil. Not a smart move.

If you think you are getting glutened, and you can't explain how, and there's gluten in your body care products...my advice is to replace them with gluten-free versions and see if that solves the problem. If it doesn't, then go back to your other products.

Link to comment
Share on other sites
bartfull Rising Star

What Pricklypear said. B)

Link to comment
Share on other sites
niese Explorer

Okay, I want to make a point.

Gemini has great luck not getting cc'd from cosmetics, or shampoo, or lotion...but YOU may not.

Being concerned about topical gluten is not exclusively the domain of dh sufferers who break out from topical gluten.

We are all different. Just like one of us will not be able to eat X food or be in X environment, some of us need to get all gluten out of the house and out of our body products.

Plenty of Celiacs refuse to use glutenous skin/beauty care, not just DH Celiacs and just not ones with other dermalogical issues.

I compare using glutenous body care to washing my dishes with glutenous dish soap, or polishing my furniture with wheat germ oil. Not a smart move.

If you think you are getting glutened, and you can't explain how, and there's gluten in your body care products...my advice is to replace them with gluten-free versions and see if that solves the problem. If it doesn't, then go back to your other products.

thank you for the information.....never thought of dish soap what brand do you use? I am using Suave shampoo heard it is gluten free is that true? As far as beauty products am I looking for the same ingredients as in food or are they different? Thanks so much for your help. 

Link to comment
Share on other sites
pricklypear1971 Community Regular

thank you for the information.....never thought of dish soap what brand do you use? I am using Suave shampoo heard it is gluten free is that true? As far as beauty products am I looking for the same ingredients as in food or are they different? Thanks so much for your help.

I am not familiar with all of the suave shampoos. I'd assume each one is different. I know others use it, perhaps they'll chime in? I use suave unscscented hairspray and its fine.

As far as ingredients go, yes...look for wheat derivatives. Cosmetics are difficult. I suggest visiting the Gluten Free Makeup Gal: Open Original Shared Link

I use Dawn dish washing detergent. I don't know how common gluten in dish soap is, but I know others use Dawn.

Link to comment
Share on other sites
Gemini Experienced

Okay, I want to make a point.

Gemini has great luck not getting cc'd from cosmetics, or shampoo, or lotion...but YOU may not.

Being concerned about topical gluten is not exclusively the domain of dh sufferers who break out from topical gluten.

We are all different. Just like one of us will not be able to eat X food or be in X environment, some of us need to get all gluten out of the house and out of our body products.

Plenty of Celiacs refuse to use glutenous skin/beauty care, not just DH Celiacs and just not ones with other dermalogical issues.

I compare using glutenous body care to washing my dishes with glutenous dish soap, or polishing my furniture with wheat germ oil. Not a smart move.

If you think you are getting glutened, and you can't explain how, and there's gluten in your body care products...my advice is to replace them with gluten-free versions and see if that solves the problem. If it doesn't, then go back to your other products.

No...I beg to differ. It is not luck, but pure effort on my part....and yes, I will say it......I am just not paranoid.  I have never let fear rule with this disease but based my habits on valid science.  Science states that unless you are eating it, it should not be a problem for the vast majority of Celiacs.

 

I also stated quite clearly that a person has to look at their own personal habits to see if they will be ingesting products on a regular basis but that mystifies me as eating make-up on a regular basis is not somehting to aspire to....even if you aren't a celiac. 

 

Lastly, I use good products.  Good products rarely, if ever, contain a wheat component because wheat is a cheap filler and thickener.  I actually did screen my make-up after the last conversation we had on this and none of it contains a gluten component.  So, another thing to keep in mind...use good products.  You should anyway because it's on your skin and if you want to look your best and save your skin as you age, use the good stuff.  The odds of it having gluten in it is less likely to happen.

 

OK.....I know I stated lastly but I had to comment on this......you cannot keep using the "Everyone is different" mentality for your arguments.  Celiac Disease is Celiac Disease and the Rx for following the diet is pretty much the same for everyone, except maybe those with external skin issues.  Different ballgame in that they also often have skin allergies to boot.  The goal is to not ingest gluten to cause a reaction.  The only difference in success is personal habits and how careful you are about not eating it.  That's it.  There is nothing magical about keeping it out of your mouth.  It cannot be absorbed through your skin.  If you choose to screen everything, that's perfectly fine but for those of us who have figured it out and do not gluten themselves on a daily basis by using unscreened products on their faces, it is not a crapshoot. Many people do this without an issue so try and curtail your snarky comments about it not being a smart move.  You don't have to agree with me but let's not be overdramatic about it.

Link to comment
Share on other sites
  • 2 weeks later...
designerstubble Enthusiast

Just saw your post, thought I'd respond as I became intolerant to corn and corn products at about 2 months gluten-free. Watery poo too! Disappeared as soon as I cut the corn! I now only eat whole foods as most of the corn I ate was in the gluten-free alternatives, which IMHO are just full of rubbish mostly. 

Keep an eye out for other intolerances, food diary is great way... I know that there are many on here that became intolerant to many foods as part of 'healing' process.... Hope you are better now

Link to comment
Share on other sites
niese Explorer

Just saw your post, thought I'd respond as I became intolerant to corn and corn products at about 2 months gluten-free. Watery poo too! Disappeared as soon as I cut the corn! I now only eat whole foods as most of the corn I ate was in the gluten-free alternatives, which IMHO are just full of rubbish mostly. 

Keep an eye out for other intolerances, food diary is great way... I know that there are many on here that became intolerant to many foods as part of 'healing' process.... Hope you are better now

Thanks I should do the food diary.  I am thinking maybe its my colitis acting up.  I go to GI dr on the 20th new dr suppose to be specialist in Celiac 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748

    TT24
    Newest Member
    TT24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...