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Hives Again...hormonal?
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5 posts in this topic

So I've had a theory i might be salicylate sensitive for a while...I had a hives reaction one time that lasted 3-4 weeks from something. I had my last period....and the hives stopped just before that started...then i had some swelling in one of my toes and a couple hives right when my period ended. I had also started eating fish and sweet potato etc. Fish supposedly high in histamine and sweet potato high in sals. Ok..so i kept eating these things and drinking coconut water etc and I've been fine for about 2 and a half weeks now. Thing is..i think i've ovulating now and i've started to get a random hive here and there. Today i had one on my upper lip..that went away and then another one formed to the left just below my mouth..that's now gone too...so far i'm not seeing anything else. I know that sals can be cumulative in the system but i was able to tolerate more than this about a month and a half ago after a long time of being off anything but low sals foods. So it seems unlikely to me that it's the salicylates..but maybe i'm wrong? The thing i'm noticing now is it seems to be when my hormones are changing possibly....The first time i got these it was just before my period. They lasted (as i said) 3-4 weeks. Ended just before my last period...had a little bit right after my period and now is right around when I ovulate. Had anyone else had anything like this before?

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In retrospect (and at the time I noticed it), my hormones were all messed up at the time my DH and celiac and thyroid was at their worst.

I suggest hormone testing, saliva and blood...and cortisol testing. I suspect you need adrenal support. I'd check thyroid, too. You may need hormone supplementation - probably progesterone.

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This is what i'm thinking. Can adrenal issues cause hives? I was going to do my saliva test tomorrow and send it off friday. I'm getting thyroid tested soon and i'm just a little worried....I hope it's not salicylates because honestly....i can't deal with the low salicylate diet..i tried it..it doesn't make me feel good body wise. I'm also getting checked for the mthfr gene defect with the blood test.

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After all these weird symptoms after all these years...I'd say "sure, why not?".

Bottom line - off is "off". If your body is off, alls fair.

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Truth. I've heard some people with food sensitivities to sals say their symptoms were better on hydrocortisone and worse when they got off so maybe it does go back to adrenals...

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
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