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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

1 Month :)
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14 posts in this topic

    One month yesterday!! (I just looked it up!) And I feel so much better!! Not 100% but so much better!! I still wake up with leg cramps, but I am NOT running to the restroom all the time and I have more energy, altho I do feel really tired during the middle of the day, like I want to take a nap. In fact I did the other day!! I have NEVER been a napper before.I feel better after the nap. Other than that and a lil constipation I am doing great!! I want to get on some Probiotics , still am going to see the Gastro guy on the 6th. Not sure why at this point but will talk to him. Thank you all for the great support!! I love this place!! :) I am amazed at myself!! I also will go back to the Dr, Because I still have a rash on my back, losing hair and my toe nails and also the white tongue thing. But feeling better is wonderful!! :) 

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Party?

 

Hell Yes!

 

One Month with all that improvement....NICE :)

 

I am so pleased you are improving quickly....you are awesome...hang tough!

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Congratulations. Keep up with the high spirit, and don't get discouraged if some days feel harder again. Healing is through a curve just like learning.

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Thanks !! Yes I am amazed I feel so much better!!! It is such a load off me knowing what my problem is. Now I can go out and eat and not have horrible pains and stuff , I am amazed!! Now I will get to my other issues when I see the Dr. Next week. At least I feel better! I may not be 100% healthy but I feel soooooo much better!! Even my friends can tell the difference! I cannot w8 to talk to my Dr. I have not seen him since I was Dx'd ... His office called and told me, so I have not talked to him about it as of yet .... 

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This is fantastic news:)

Great to hear you are getting improvement so quickly.

Your positive attitude on the board in the last few weeks has been lovely, I am sure you will continue to improve

Mw x

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Woo Hoo!

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Thanks everyone! I am so very happy to be here!! I have learned so very much!! Thanks!!

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Congrats!  It is great to be feeling better!

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skidding in late.............been a zombie for a bit there.............congratulations on your one month!  Also add you have been a wonderful fun additional to the board and I am glad you are here and beyond happy to know you are improving quickly!

 

Hip Hip Hooray for You :)

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I am so glad you are feeling better. Isn't it wonderful to feel GREAT?!  :D

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great news!  congratulations!  :D

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Well Thanks e1 :) But sadly now I think I am having a set back! I have had some big "D" problems the last few days!! Like horrible! I am trying to figure out what the problem is!! I am thinking it may be Dairy ??? I just don't know... I have an appt with the GI Dr. The 6th. Hoping to get to a nutritionist , or dietitian or someone to help me.... I have lost 25 lbs in the last month ... But I am still feeling better, I am hoping I get more answers from Dr's ... But until then I will be very careful of what I eat. To tell you the truth, I am afraid to eat anything when I am out. I go to restaurants with my friends and don't order anything. Came home from a Vaca 9 1/2 hr drive and didn't eat anything . This is the same thing I was doing before I was DX'd ... when I am out I won't eat anything. I am supposed to go to  Mackinac Island with a couple of friends for 3 days. I am going to be afraid to eat anything... Not really sure If I should go or not. It is payed for. Maybe talking to the Doc will help. Here I was doing so well!! Just don't know!! I did buy some probiotics today from The Whole Food Store .... :) Trying everything I can :) Thanks for all the support!! :) 

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Well It has been 2 months :) Yay for me!! My set back was from a restaurant I ate from  :( , But I went to Mackinac Island and there was a Pizza place that had Gluten Free pizza!! It was my first time with Gluten free Pizza!! I loved it!! They said they were very careful about how they cooked it and utensils they used. I had no problem!! :) We went back the next night I had a burger with no bun and a salad. I was going to see if the cook could microwave me a tater but all their potatoes came in frozen. I wasn't going to risk that contamination so I got a side salad. So 2 months in I am doing pretty good!! 

I am still suffering from exhaustion tho, I feel like I have worked for a week straight! Hard labor and I am exhausted! Altho I don't work! I hope that gets better soon. Seems I have my good days and bad days. Just try and plug along!! Maby it is from my trip?

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    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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