Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

1 Month :)
0

14 posts in this topic

    One month yesterday!! (I just looked it up!) And I feel so much better!! Not 100% but so much better!! I still wake up with leg cramps, but I am NOT running to the restroom all the time and I have more energy, altho I do feel really tired during the middle of the day, like I want to take a nap. In fact I did the other day!! I have NEVER been a napper before.I feel better after the nap. Other than that and a lil constipation I am doing great!! I want to get on some Probiotics , still am going to see the Gastro guy on the 6th. Not sure why at this point but will talk to him. Thank you all for the great support!! I love this place!! :) I am amazed at myself!! I also will go back to the Dr, Because I still have a rash on my back, losing hair and my toe nails and also the white tongue thing. But feeling better is wonderful!! :) 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Party?

 

Hell Yes!

 

One Month with all that improvement....NICE :)

 

I am so pleased you are improving quickly....you are awesome...hang tough!

0

Share this post


Link to post
Share on other sites

Congratulations. Keep up with the high spirit, and don't get discouraged if some days feel harder again. Healing is through a curve just like learning.

0

Share this post


Link to post
Share on other sites

Thanks !! Yes I am amazed I feel so much better!!! It is such a load off me knowing what my problem is. Now I can go out and eat and not have horrible pains and stuff , I am amazed!! Now I will get to my other issues when I see the Dr. Next week. At least I feel better! I may not be 100% healthy but I feel soooooo much better!! Even my friends can tell the difference! I cannot w8 to talk to my Dr. I have not seen him since I was Dx'd ... His office called and told me, so I have not talked to him about it as of yet .... 

0

Share this post


Link to post
Share on other sites




This is fantastic news:)

Great to hear you are getting improvement so quickly.

Your positive attitude on the board in the last few weeks has been lovely, I am sure you will continue to improve

Mw x

0

Share this post


Link to post
Share on other sites

Woo Hoo!

0

Share this post


Link to post
Share on other sites

Thanks everyone! I am so very happy to be here!! I have learned so very much!! Thanks!!

0

Share this post


Link to post
Share on other sites

Congrats!  It is great to be feeling better!

0

Share this post


Link to post
Share on other sites

skidding in late.............been a zombie for a bit there.............congratulations on your one month!  Also add you have been a wonderful fun additional to the board and I am glad you are here and beyond happy to know you are improving quickly!

 

Hip Hip Hooray for You :)

0

Share this post


Link to post
Share on other sites

I am so glad you are feeling better. Isn't it wonderful to feel GREAT?!  :D

0

Share this post


Link to post
Share on other sites

great news!  congratulations!  :D

0

Share this post


Link to post
Share on other sites

Well Thanks e1 :) But sadly now I think I am having a set back! I have had some big "D" problems the last few days!! Like horrible! I am trying to figure out what the problem is!! I am thinking it may be Dairy ??? I just don't know... I have an appt with the GI Dr. The 6th. Hoping to get to a nutritionist , or dietitian or someone to help me.... I have lost 25 lbs in the last month ... But I am still feeling better, I am hoping I get more answers from Dr's ... But until then I will be very careful of what I eat. To tell you the truth, I am afraid to eat anything when I am out. I go to restaurants with my friends and don't order anything. Came home from a Vaca 9 1/2 hr drive and didn't eat anything . This is the same thing I was doing before I was DX'd ... when I am out I won't eat anything. I am supposed to go to  Mackinac Island with a couple of friends for 3 days. I am going to be afraid to eat anything... Not really sure If I should go or not. It is payed for. Maybe talking to the Doc will help. Here I was doing so well!! Just don't know!! I did buy some probiotics today from The Whole Food Store .... :) Trying everything I can :) Thanks for all the support!! :) 

0

Share this post


Link to post
Share on other sites

Well It has been 2 months :) Yay for me!! My set back was from a restaurant I ate from  :( , But I went to Mackinac Island and there was a Pizza place that had Gluten Free pizza!! It was my first time with Gluten free Pizza!! I loved it!! They said they were very careful about how they cooked it and utensils they used. I had no problem!! :) We went back the next night I had a burger with no bun and a salad. I was going to see if the cook could microwave me a tater but all their potatoes came in frozen. I wasn't going to risk that contamination so I got a side salad. So 2 months in I am doing pretty good!! 

I am still suffering from exhaustion tho, I feel like I have worked for a week straight! Hard labor and I am exhausted! Altho I don't work! I hope that gets better soon. Seems I have my good days and bad days. Just try and plug along!! Maby it is from my trip?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined