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Related Health Issues, Auto-Immune Hypothyroid, Anemia, Adhd
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Hi,

 

I'm new here and although I've been wary about eating healthy, in terms of salads, fruits and vegtables for a number of years, I'm 28, I recently decided to go 100% gluten and dairy free (like checking all labels and watching out for cross contamination, because I have had a number of what I thought to be abnormal health issues over the years which never really made that much sense.  I'm in good shape and feel fine, relative to how I usually feel, but just still wonder could some of these issues be related to the same source, gluten?  My Mom finally went gluten free a couple months ago.  She had IBS and GERD for years and it has helped her a lot.  She was not overweight but also lost 10 pounds in a month.  I've been mostly vegetarian as an adult and am very into not eating processed foods or added sugars, so I'm adding some meat into my new diet, which I can already feel some difference, in terms of being more calm. As a kid my Mom, who didn't know at the time, fed us a lot of bad grain type foods and we always had ice cream and those processed betty crocker baking items around, but all of us seemed to have had pretty good metabolisms, considering what is in that stuff! My dad still eats all those processed foods and has always been extremely skinny, but is generally depressed and irritable.

 

Here are the health issues I've had that I would really appreciate any feedback on the relation to gluten or casein, if know from personal experience:

-starting as a teenager felt foggy headed and somewhat depressed.

-Had red flushed cheeks and rash on backs of upper arms for a few years in early teens

-got first period at age 14 (which I always thought was a little old)

-didn't have period for almost year ages 15-16

-had pnemonia

-very low resting heartrate at age 16, normal weight, doctors told me i must have an eating disorder, a heart condition, or brain tumor, eventually blood test showed very high TSH and I was diagnosed hypo-thyroid from hasimotos.

-diagnosed with adhd in college, but have had the symptoms for as long as my parents can remember.

- have had anemia or low iron and also a lot of coldness at the extremities since being a teenager.

-have had periods of time where i am really into oatmeal (plain), nothing added, i think this is because of cross contamination with gluten.

 

 

Thanks so much for reading :)

 

 

 

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Gluten and dairy can both affect the thyroid. Hypothyroidism is VERY common for celiacs and the gluten intolerant. I'm under screening to see if i'm still hypo or not. I've only been medicated for 4 days in the past on a t4 only med but i have to look into nutritional deficiencies and adrenals before going gung ho on this. I'm very sick with other things at the moment. I just started vitamin D (D Drops) and magnesium oil. So far so good.

 

I recently heard dairy also affects the thyroid..how, i'm not positive. If you are hypo and use facebook I highly recommend joining the group "Thyroid Sexy" that Gena Lee Nolin has. Very very informative and lots of nice people there. It's typically recommended by doctors who really know their thyroid that going gluten free is recommended anyhow. SO most definitely there is a connection :) Periods can be affected by being hypothyroid and foggy thinking can go back to gluten and hypothyroid and even dairy. So most definitely I think it could go back to those things :) Hopefully some others will weigh in on what they think too.

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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