Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Nervous About Family Vacation... Help!
0

7 posts in this topic

Hi everyone!  :) This is my first new post so I'll give a little history - I have been gluten free for about 3 months now. It has completely changed my life! I had really bad panic attacks & stomach pains before and now I don't have them at all! (Well, unless I get accidentally glutened.) I'm relatively new to this so I haven't gone out to eat very much. 

I'm going on a cruise to Bermuda in August and I'm really nervous! I know that the cruise line knows of my diet but I'm scared about being accidentally glutened. Also I'm going with my extended family (ALL of which don't understand ANYTHING about gluten intolerance at all) and I know they all want to eat out at least once in Bermuda.

I have done some research and have emailed different restaurants but I usually get one word answers which doesn't help me much.

Does anyone have any tips for me about being gluten free and traveling? Or even eating out while I'm in Bermuda.

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

I came upon this website that might be of help to you:  http://www.nothingtodoinbermuda.com/celiac-in-bermuda.html

 

It is good that you are doing this because you need to get back on the horse and live life and not be afraid to travel.  I have been doing this since 2005 and yes, I have been glutened a few times while traveling but it may happen, it may not.  You will become more comfortable the longer you do it.

 

Cruise lines are supposed to be good but remember to ask the important questions when speaking with waitstaff like how food is prepared and handled.  I do not go overboard with questions but let anyone know, very politely, how sick I will be if I take a hit and if you say it with a smile and your best manners, it has never failed to elicit positive responses and extra effort.  You will become an expert on this in due time but do not be afraid to speak up......even to family members.  Do not them tease you...this is serious.

 

If you feel uncomfortable about something, just order plain food at first.  A steak and potato, fish, chicken and keep it simple.  Above all, do not be afraid.  You can do this.  If the unthinkable happens and you are glutened, it will pass and you will have learned a lesson.  But if you keep it simple in the beginning and remember how things are cc'd, then you should be fine.  I also can tell you that if you eat out in Bermuda in a higher end restaurant, they usually always get it right because the chef's generally have been trained in culinary school and have more knowledge.  Bermuda is not cheap, by the way, and restaurants there should be able to handle it well.

 

Make sure to have some safe snacks in your cabin to fall back on.  Carry a protein bar with you when you sightsee but if it's hot, that might be problematic as they can get melty.  I hope the website can offer up some tasty places for you to try.  Last thing....do not go overboard on rich food.  If you are still healing and have been eating in and plainly, sometimes going crazy can end up with a tummy ache!  Pace yourself and have a blast!

0

Share this post


Link to post
Share on other sites

I went to Bermuda 40 years ago so I can't help you. But what I do remember is that there are a lot of guest houses with full kitchens that you can stay in. I imagine your family has already made reservations so unless they got a guest house you'll have to rely on restaurants.

 

The other thing I remember is that it was so humid that when the maid came in and changed the sheets evey morning they were dry, but by the time I crawled into bed at night they felt damp. Connecticut was humid, and the deep south was humid, but I have never experienced humidity like they have in Bermuda! So even though there is usually a breeze off the ocean, try to go easy. We celiacs don't do as well in heat and humidity as other folks.

 

Oh yeah, one more thing I remember. If you are swimming in the ocean and notice large fish bumping against your legs, look around and see if everyone else has gotten out of the water. I thought the fish were neat so I was trying to catch them with my hands. When I FINALLY looked up and noticed I was the ONLY person still in the water I waded back to shore. I found out those fish I was trying to catch were barracuda!! :o

0

Share this post


Link to post
Share on other sites

Having just come back from vacation, I can tell you it's important to make an effort to eat whole foods as frequently as possible.

 

I am pretty sure I'm suffering from too much processed foods / too much low level gluten exposure after two weeks of living with gluten eaters and their gluten. I relied too much on processed foods....

 

Honestly, the cruise kitchen is probably safer than a gluteny home (no matter how clean it is). Oddly enough, I always felt better eating out (and eating a chef prepared meal) than eating in my parents' house...and yes, I used precautions.  It's just endemic.

 

You may want to order some meal/restaurant cards. I think they sell them on the celiac.com store.

0

Share this post


Link to post
Share on other sites

Just came back from vacation.  Our host had a ton of gluten food, we tried to eat out a lot and I managed to avoid the bad food as much as possible, loaded up on probiotics digestive enzymes acid aids etc. and do not feel bad.  Neither do the kids.  No one is showing the signs that I expected.  The only issues are in the bathroom, and that is mild.  How did we survive this?  Or has it just not hit yet?  I did have an awful sinus reaction the whole week, but nothing severe and one son has a rash.  Thoughts anyone?

0

Share this post


Link to post
Share on other sites




I've had mild, lingering weird stuff for two weeks. I'm just 'off' - stomach a bit off, headaches, gas, now vertigo, allergies.

I never got one big hit but a low level for two weeks. Ugh.

Everyone is different. Cross your fingers.

0

Share this post


Link to post
Share on other sites

Home 4 days tummies are all good, sinuses are improving.  So, lesson, probiotics, vitamins, and enzymes helped, or we just really got lucky.  :)  We really did try to stick to good food, but I know the kids had some gluten food, and I know, I encountered CC.  Relatives do not always understand and just want to spoil kids.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined