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Pretty Sure Im Slowing Dying. - Past Gluten Free


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#1 Renegade

 
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Posted 18 July 2013 - 02:25 PM

So I have been 100% Gluten Free ever since July and have been trying to be 2 weeks before that with little gluten occurrence and I literally was getting an increase in my energy level. yet not I am beyond extremely exhausted like if I am actually dying.

 

At this point my energy is to its lowest it has ever been in my life, even walking has because difficult,requiring so much energy. Originally I was having a lot of cramps and intestinal pain along with bad constipation and after going Gluten-Free, most of my symptoms had been decreasing.

 

But now my energy is beyond low, I feel constant need to sleep, my attention can be there, I have less brain fogs then I used to have but any physical effort is just awfully difficult.

 

I been working out for 2 years and more now, believe me when I say I look healthy. My weight if between 145 and 150lbs and I am 5'10 male, yet my health has been worse then it ever has been and to be fair I don't see how its ever going to get better.

 

I don't see what I am doing wrong, I try to get my 9 hours of sleep and the last 2 days I slept about 5-6 and last night 6-7, it gets very difficult to fall asleep due to many external factors like my arms being extremely numb, nose's noise and simply not falling asleep because of high stress. Which btw, stress has also been the highest it has EVER been in my life.

 

From low energy to having to find a job because i was only working 2 days a week and since those last 2 days, I been working a new job that will be full time but I don't see how I'll be able to pull this through from feeling so energy deprived.

 

It doesn't help that I've been getting 2 pilonal cysts and what feels like but acne that doesn't go away, yup butt acne which should only get better but it seems to get worse. I also apply castor oil and apple cider vinegar to help all that go away.

 

I have been completely Gluten-Free (1 Month), more recently Dairy Free (2 weeks), I been combining a gluten-free diet and not absolute but severely based Blood type diet, to give myself the best chance of healing, yet it doesn't feel like I am healing at all but simply dying slowly.

 

My daily meals consider of the following.

 

Wake up-Spaghetti sauce: Beef,Tomato,tomato sauce,Mixed colored Peppers,Garlic, spices. (All nutritions that are Pro Blood Type diet, which btw I am O, not sure if + or - but both parents were +.

1H Later:Coffee with Coconut oil and milk, and organic honey.

2H Later-(Corn, Amaranth,flaxseed, buckwheat) cereal, Coconut milk, frozen berries(blueberries,strawberries,black cherry and mango) with cinnamon and almonds that make sure not to mentioned any presence of wheat.

Follow with

3H Later-1 Chicken breast with brown rice mashed with sweet potatoes and salad with butter and cumin.

3H Later- 2 Slice of Glutino Corn bread and others ingredients with 3 organic eggs.

Then if I have I have time I'll also have Rice Noodles 3hours later.

 

So that's it, I don't get how I feel so tired, I eat my proteins my fruits and avoid the bad stuff, yet here I am, like I am going to die.

 

So hopefully anyone can help me figure this out, thanks.


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#2 pricklypear1971

 
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Posted 18 July 2013 - 02:58 PM

Gluten withdrawal? It can be bad.

Have you had your vitamin levels tested? Iron, b, d, calcium, magnesium etc.

I see lots of grainy carbs. Personally, I'd scale back on the grainy stuff and add more veggies. But I respond to veggies positively and grains negatively. A good chunk of gluten intolerants do...something to consider.

Did you go through celiac testing?
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#3 bartfull

 
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Posted 18 July 2013 - 03:14 PM

Vitamin deficiencies?


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#4 dani nero

 
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Posted 18 July 2013 - 03:19 PM

It doesn't matter how healthy you eat. If you're celiac, your body isn't absorbing the nutrients you need, or at least enough of them.

 

Before finding out about celiac, I woke up every morning feeling like I was a zombie who got hit by a bus the previous night, so I decided to eliminate any junk food and processed snacks from my diet in order to have more energy. Instead of feeling better, I felt worse, and worse. 


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#5 Adalaide

 
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Posted 18 July 2013 - 03:38 PM

I felt worse before I felt better. When I was diagnosed with celiac my husband and I were both quite sure at that point that whatever was wrong with me was probably killing me but damned if we could figure out what it was. At that point, I felt pretty much like Dani, a zombie who got hit by a bus. And those were my good days. Then I got my diagnosis and went gluten free. And then I felt worse. So. Much. Worse. It was like I was a zombie who was sucked dry by an army of vampires and left in the middle of the freeway to be hit by 100 buses. Eventually it passed.

 

The withdrawal can be terrible and for the first time your body isn't fighting itself over this poison you are putting in it. Just like when you get sick with the flu or after a major surgery, as your body begins to heal it sucks the energy from you and you feel drained. You'll get through to the other side, you simply have to have patience. This is a marathon, not a sprint. You could have vitamin deficiencies, you could have intolerances to other foods, you could be crashing from too many refined carbs, it could be a million things on top of the fact that your body finally has a respite from being poisoned.

 

My best advice though is to treat your body well, give it as much as you can in fresh veggies, fruits and meats and give it time. Make sure you are at least getting enough time in your schedule for enough sleep, and carve out enough for some naps as you need them on days off if you tolerate naps well without disrupting your life too much. A lot of people think this is some sort of magic cure-all and they stop eating gluten and in a week they feel like superman. It doesn't work that way. (which sucks) Healing may take the patience of a saint, and you may have to dig deep to find that patience. (I sure as hell have had to! :lol:)


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#6 captaincrab55

 
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Posted 18 July 2013 - 03:54 PM

Have you been checked for DH??


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I'm a New Man Without GLUTEN!

#7 1desperateladysaved

 
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Posted 18 July 2013 - 05:20 PM

I had those death like feelings during withdrawal.  Realize it is temporary and try to go on. Resting time is good.  One needs it during this time.  Eventually I would have some really low lows (dying?) followed by the highest high I remembered in years.  When I finally started to get better, I felt I should be better every day, but there were twists and turns and bumps.  I felt hopeless every time I bottomed out. You may be at a bottom point, but it may get better soon.

 

After 30+ years of celiac symptoms, I didn't die.  Instead I am now living with a clear mind and energy.  Keep on walking...

 

Get Well, and here are some flowers ***

 

D


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#8 shadowicewolf

 
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Posted 18 July 2013 - 05:37 PM

I agree with it being with drawl.

 

Are you still working out? I think that might also be part of the issue. Your body is healing. It can take a long time for it to return to normal.


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#9 BZBee

 
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Posted 18 July 2013 - 06:09 PM

I've been gluten free since Feb. and have had similar experiences. They say it's withdraw but I am also Deficient in iron and other vitamins. When the iron levels started improving I started getting more energy. I'll be doing great and then it hits me again. Sadly, it's a process. Hang in there and listen to your body. Also, have they checked your adrenals?
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#10 mommy2krj

 
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Posted 18 July 2013 - 07:26 PM

I still don't see enough greens and other veggies in your diet. The addition of chicken and eggs are good (so long as your body can tolerate the eggs!)

Maybe...along with your spaghetti in the morning you could have a smoothie with fruits and greens in it. Salad fixings aren't insanely expensive and one package of organic spinach would last you for a week if you're only using it in smoothies...though you could mix it up in your spaghetti sauce too. :)

We've only been working on being gluten free for a week. It's been a tough week full of outings and graduation parties so it's been rough but we've done it. Hardest, I think on the 6 year old who HAS to be gluten free.

But I have turned to more fruits and veggies to round out meals than I ever have before. I haven't (unfortunately) been able to get the vitamins to supplement with because they're so expensive and I simply don't have the money right now. We've only eaten noodles once which is almost unheard of in my house. There are 5 of us....6 if you include the dog....so noodles and bread were always some staples for filling growing tummies (my 15 year old is a bottomless pit!) amazingly, he likes the gluten free stuff! :)

Grapes are always present and right now I have cherries. We will have melons....cantaloup, watermelon and honey dew melon. Watermelon tastes wonderful frozen. Lots of salads full of greens and carrots and peas and green onions....occasionally cut up chicken or my husband will put tuna in his. We've been pretty big on asparagus lately too....and if you wrap it in bacon...it's like a treat! We can even convince the 15 year old anti-veggie picky eater to eat some that way. Only one piece....but it's progress! Now he just eats it instead of choking it down like it's killing him! ;)

I can't say I understand the eating to your blood type diet....but I've never really understood any diets unless it was for a medical reason like diabetes or celiac....I should say a proven medical reason like diabetes or celiac. Your diet just seems incredibly restrictive and not in a good elimination diet kind of way. I know I wouldn't feel good eating only those foods every single day. And from what I've read, eating the same stuff day in and day out can bring about some extra food intolerances too...but sometimes you do what you have to do. If those are the only things your body can tolerate right now...that's what you need to be eating....I just hope you aren't being needlessly restrictive due to the blood type diet you're also attempting to follow.


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#11 kareng

 
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Posted 18 July 2013 - 08:01 PM

Don't worry about the blood type nonsense. There is no scientific proof for it. In fact, we had a thread a while back and noted that we had some of every blood type not tolerating gluten.

Celiacs have a hard time absorbing nutrition until they heal. You might want to take some vitamins & maybe a sublingual B12. Some will be absorbed by the I damaged parts. You might want to get your thyroid checked in a few months if you are still unusually tired.
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#12 tarnalberry

 
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Posted 18 July 2013 - 09:21 PM

...

 

I don't see what I am doing wrong, I try to get my 9 hours of sleep and the last 2 days I slept about 5-6 and last night 6-7, it gets very difficult to fall asleep due to many external factors like my arms being extremely numb, nose's noise and simply not falling asleep because of high stress. Which btw, stress has also been the highest it has EVER been in my life.

 

From low energy to having to find a job because i was only working 2 days a week and since those last 2 days, I been working a new job that will be full time but I don't see how I'll be able to pull this through from feeling so energy deprived.

 

...

 

My daily meals consider of the following.

 

Wake up-Spaghetti sauce: Beef,Tomato,tomato sauce,Mixed colored Peppers,Garlic, spices. (All nutritions that are Pro Blood Type diet, which btw I am O, not sure if + or - but both parents were +.

1H Later:Coffee with Coconut oil and milk, and organic honey.

2H Later-(Corn, Amaranth,flaxseed, buckwheat) cereal, Coconut milk, frozen berries(blueberries,strawberries,black cherry and mango) with cinnamon and almonds that make sure not to mentioned any presence of wheat.

Follow with

3H Later-1 Chicken breast with brown rice mashed with sweet potatoes and salad with butter and cumin.

3H Later- 2 Slice of Glutino Corn bread and others ingredients with 3 organic eggs.

Then if I have I have time I'll also have Rice Noodles 3hours later.

 

So that's it, I don't get how I feel so tired, I eat my proteins my fruits and avoid the bad stuff, yet here I am, like I am going to die.

 

So hopefully anyone can help me figure this out, thanks.

 

Why do you have numb arms?  What's wrong with your sinuses?  What are you doing about the stress?

 

While I'm NOT going to say "it's all in your head", chronic stress can cause very, very real physical, biologically based symptoms.  But all the diet changes and exercise in the world won't help much if you don't address the cause of the stress and your own personal resources for handling it.  Meditation, therapy, cognitive modification... there are lots of ways to work on changing your perspective on stress that can physically reduce your stress.  (Various types of meditation, for instance, have been shown to lower blood pressure and cortisol (a stress hormone) levels, as well as change cognitive patterns.)  Removing partiuclalry stressful triggers is also important, and sometimes dismissed as being "impossible".  (For me, it was my job as an engineer and not keeping it cut our take home pay in half, but it was absolutely worth it.) 

 

You may also have real, physical complications - like the nerve issues that are causing numb arms.  (It points to something going on with the lower vertebrae of your neck.)

 

I also see a fairly high carb diet here. Not super high, but might be an issue. I also see far less than 5 servings of fruit and vegetables (think 3 and 3, really), and I know that not getting those makes me feel much more fatigued.


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#13 Foolish_Michie

 
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Posted 19 July 2013 - 12:38 PM

I had those death like feelings during withdrawal.  Realize it is temporary and try to go on. Resting time is good.  One needs it during this time.  Eventually I would have some really low lows (dying?) followed by the highest high I remembered in years.  When I finally started to get better, I felt I should be better every day, but there were twists and turns and bumps.  I felt hopeless every time I bottomed out. You may be at a bottom point, but it may get better soon.

 

After 30+ years of celiac symptoms, I didn't die.  Instead I am now living with a clear mind and energy.  Keep on walking...

 

Get Well, and here are some flowers ***

 

D

Do you remember how long this went on before the good days started consistently outnumbering the bad?


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#14 bartfull

 
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Posted 19 July 2013 - 12:50 PM

When I first started the gluten-free diet I was taking sub-lingual B12 and sub-lingual biotin, plus a multi-vitamin.  After a few weeks I felt better than I had since I was a kid. I had so much energy I was driving my friends crazy. THEN the corn intolerance hit and I could no linger take my vitamins because they all had either gluten or soy or corn.

 

After a month or two I felt like I was dying. My energy level dropped, I could cry (and did) several times a day over nothing, and I actually felt weak. I modified my diet making sure to eat a sweet potato every day (they are the most nutritious vegetable) and broccoli, etc. I upped the amount of meat I ate. I started feeling somewhat better but still have never regained the energy I had for a while there.My memory is shot too. As a matter of fact, I told a friend just this morning that it's time I risked trying corn starch again (I got it back for a while until a glutening knocked me off my feet). I can live without gluten-free breads and stuff, but I need some B12. I'm going to stop by the health food store tonight and get some. I'll let you all know what happens.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#15 1desperateladysaved

 
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Posted 19 July 2013 - 02:49 PM

Do you remember how long this went on before the good days started consistently outnumbering the bad?

 

 

After 2-3 months, I had some better days, but then I cut out all grains and went into a new withdrawal for another 2-3 months..  I did not really have a clear mind until I started rotational diet and cut out foods which I was intolerant last November.  Now I am 1 1/2 years gluten free and have done many things to regain health. Nearly all of the days are being good now. 

 

There are so many factors involved in each person's struggle.  Rotational diet and digestive enzymes were my final frontier(hopefully!), but if you are have functioning villi, or have no intolerances you wouldn't need to do them.  I think nutrient tests were helpful to find out what I needed.  I am on a comprehensive nutrient program as recommended by my health practitioner.

 

I guess you're at that stage when you are ready to do anything to feel better?  It takes time and discernment, possibly some changes.  I  hope you have friends pulling for you.  It is nice to have someone to carry you along.  Do what you know to do-and keep doing it.

 

D


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