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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Do I Have Celiac?
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Okay so after i had my baby-boy with c section i was breast feeding and making alot of milk. But then suddenly i wasnt making milk and starting loosing weight. At first i didnt pay no mind i just thought it was because i was breastfeeding, so i stopped. Then after i stopped, i continued to loose weight , and i didnt know why because i was eating alot like always. Over time i continued to get symptoms, which were:

Constipation

Weight loss

Thrush

Gurgling stomach noises

Bloating

Tired

Sleepy during the day

Difficulty falling asleep

Headaches

Hungry all the time

Mood swings

Blurry vision

Leg pain

So i went to doctor but i dont have insurance so i was paying. He suspected celiac. But need to pay 2000 for biopsy. J went on gluten free diet. And i dint feel better right away but i did feel better in couple weeks on going gluten free. I havent gained weight yet, but i havent loose weight either, maybe because i keep eating gluten accidently. When i do eat gluten by mistake i just gets a few symptoms but not bad like before, and some times i get it to the next day. People please tell me if u think i could have this.

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You could have celiac disease or non-celiac gluten sensitivity (NCGS - it has the same symptoms as celiac disease but no villi damage). There are over 300 symptoms and associated problems, and your ymptoms fit in there. Many of your symptoms fit Hashimoto's thyroiditis too, with a swingbetween hyper and hypo symptoms (but I'm not a doctor - just thinking out loud).

The only way to know if it is celiac disease is to test. Could you do the blood tests instead if you want to know? The cost would be less.

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If accidents are happening, or if you haven't taken any safety measures to prevent your food from gluten cross-contamination, then I'm afraid that your diet has not truly been gluten-free. Being on a gluten-free diet means that your food needs to be free from even the tiniest crumb. Please read this post http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ which will help you understand contamination prevention methods and other things. 

 

By the way, if you're planning on doing any tests later, then you should not go on a gluten-free diet yet, because all tests will come back negative if you're already gluten-free. 

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Doctors did test for liver enzymes, and checked my thyoid and it was fine. And also i was doing the gluten diet as changing the utensils. Not using the same griddle i use to make my husband and kid food. But when i go out i always get sick and tired. Like when i tryed the gluten free pizza from dominos, i forgot all about telling them to change the pan to a clean pan.

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Pregancy can be a trigger for those who may be predisposed to Celiac.   Do  you have a family history (parents or other family members) of digestive issues, diabetes, thyroid or other autoimmune disorders?  Sometime, as my parents would say "a bad stomach" could be a genetic trait you may have inherited.

 

As mentioned, the Celiac Blood Panel would be less expensive than a colonoscopy/biopsy, but you must remain on a gluten free diet for the optimun accuracy.

 

 

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

 

Or, you may choose to go TOTALLY gluten free and see how you feel.

 

Hope this helps. :) And Welcome!

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Doctors did test for liver enzymes, and checked my thyoid and it was fine. And also i was doing the gluten diet as changing the utensils. Not using the same griddle i use to make my husband and kid food. But when i go out i always get sick and tired. Like when i tryed the gluten free pizza from dominos, i forgot all about telling them to change the pan to a clean pan.

 

It's gonna be a tough learning curve in the beginning but will become like second nature as time passes. If I'm about to eat at a restaurant, I first ask them about how they go about preventing cross-contamination. If they don't know what I mean, or tell me that they simply wash the pans that were used to prepare glutinous foods very well, I don't eat there. 

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From what i know. No one in my family has no kind of diseases. But my mom a while back had gastritis. But she avoided spicy and greasy food, and she got better. But my sister has also been having digestive problems. The doctors tell her she has gastritis, and shes been takeing medicine but hasnt got better. So until i know for sure that i have celiac. I will tell her to test for that. And thanks i will inform my doctor about the blood test. I know, its kinda hard to adapt. But now with my husband supporting me and making sure i dont eat gluten, its gottn easier with your loved ones supporting u.

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Okay but now i just have one question. If i would have gluten sensisity, would i have to worry about cross contamination. Because from what i read, gluten sensitivity isnt as bad as celiac.

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It's really up to you to find out the amount of gluten you react to. We can't figure it out for you because we can't feel what you feel after consuming cross-contaminated food.

The blood test should help you answer that question.

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    • Can treatment for Giardia reverse active Celiac
      I haven’t found any large scale studies on this, but only a handful of individual case reports suggesting that in rare cases giardia can temporarily mimic celiac (both the serology & villous atrophy) until it is treated.   I think this is a  complex matter as giardia effects patients differently (most are asymptomatic whilst others suffer from chronic symptoms including malabsorption) for reasons that may not be well understood. In my case - My GI agrees that Giardia can directly cause villous atrophy that cannot be distinguished from Celiac.  As the healing of the villi can be a slow process, I will schedule a repeat endoscopy 6-12 months after my giardia was treated.   Ttg antibodies can also take 6-12+months to completely normalise, especially if the starting levels are high. 6 months would have elapsed at the end of this month, so will schedule a repeat test, hoping for a normal Ttg result to prove the theory.   I have decided to remain on a normal gluten diet until it can be proven that I’m a celiac and not just suffering from a giardia infection.  I have reason to be optimistic as my Gliadin IgA levels are negative (not iga deficient) and also given the sharp decrease in ttg levels 4 weeks after giardia was treated.
    • celiac disease is psychosomatic
      It took all of 3 years before ALL of my symptoms resolved and it was the neuro ones that were the last to go.  If you have been careful about your diet, then you may not be getting glutened as much as you think.  It sounds like you have been careful because you are questioning things you should question to get clarification on.  I am sure if you were doubtful, you would refrain from eating something until you know for sure. Neuro symptoms can last for much longer than other symptoms.  Please be patient because my last neuro symptom was the one that took 3 years.  Have you been tested for vitamin deficiencies?  The B vitamins are important for neuro health, especially B12.
    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
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