Local Cbs News Coverage
Posted 15 October 2005 - 04:42 PM
Pretty good coverage!
Diagnosed 3/03 (Positive Biopsy/Negative Blood Tests)
Daughter dx 12/03 (Positive biopsy/Positive blood tests);
Two sons (Negative blood tests); One on gluten-free diet (6/04) ... cured his persistent, severe headaches.
Posted 15 October 2005 - 04:55 PM
Posted 17 October 2005 - 07:30 AM
There was a segment on the Boston CBS News affiliate (WBZ) at 11pm last night.
Pretty good coverage!
Thanks for sharing. I just wish they would get savvy to the depression anxiety connection and mention it once in a while, it's often the first symptom, but at least they did say that some are GI symptom free.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 17 October 2005 - 08:15 AM
gluten-free since Feb 2005
Posted 18 October 2005 - 05:40 PM
Posted 18 October 2005 - 09:11 PM
I provided info to my GP who was astounded - never knew there were any neurological implications - it was a tummy and D thing! Claire
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