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Local Cbs News Coverage


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5 replies to this topic

#1 Ruth

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Posted 15 October 2005 - 04:42 PM

There was a segment on the Boston CBS News affiliate (WBZ) at 11pm last night.
http://cbs4boston.co..._287191815.html
Pretty good coverage!
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Ruth
Diagnosed 3/03 (Positive Biopsy/Negative Blood Tests)
Daughter dx 12/03 (Positive biopsy/Positive blood tests);
Two sons (Negative blood tests); One on gluten-free diet (6/04) ... cured his persistent, severe headaches.

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#2 maxcarr

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Posted 15 October 2005 - 04:55 PM

Thanks for sharing that Ruth, Dr. Kelly is my doc, and he's great.

MaryAnn
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#3 ravenwoodglass

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Posted 17 October 2005 - 07:30 AM

There was a segment on the Boston CBS News affiliate (WBZ) at 11pm last night.
http://cbs4boston.co..._287191815.html
Pretty good coverage!

<{POST_SNAPBACK}>



Thanks for sharing. I just wish they would get savvy to the depression anxiety connection and mention it once in a while, it's often the first symptom, but at least they did say that some are GI symptom free.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 jenvan

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    Lynne took this picture! :)

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Posted 17 October 2005 - 08:15 AM

nice-thanks! Dr. Kelly seems like a good one...
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~~~~~~~
Jen
Indianapolis, IN

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dairy-free

#5 zippy

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Posted 18 October 2005 - 05:40 PM

Thanks for posting that. I walked in at the tail end, and wanted to see the full segment but couldn't find it.
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#6 Claire

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Posted 18 October 2005 - 09:11 PM

Not a bad article but as usual the focus is on the GI symptoms of celiac. There was no mention here of the disabling neurological damage that is the symptomolgy of many with Celiac and with non-celiac gluten sensitivity.

I provided info to my GP who was astounded - never knew there were any neurological implications - it was a tummy and D thing! Claire
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