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Tests For Casein Intolerance
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Does anyone know if it's possible for a casein intolerance to cause elevated levels of antibodies in a celiac patient? I'm interested because I've been on a very strict gluten free diet for several years, but my antibodies are extremely high, and I'm trying to pin down the culprit.

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I don't think that casein can cause elevated levels of tTG. I believe that lactose intolerance is often a result of high tTG because  the tTG damages the villi where lactase is made. I know that casein intolerance is thought to damage villi too, but I'm not sure how...

 

I'm not medically trained or well versed in this area though. I'm interested in what others have to say too.  :)

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lolz, nicole, i just said the same thing on her other post :)   

 

maybe you are getting cc'd by something that you added in with the casein?  if you're sick from eating it, maybe you're casein/lactose intolerant.  or your gut is just not healed enough to handle it?

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lolz, nicole, i just said the same thing on her other post :)   

Great minds think alike. ;)  LOL

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If you are intolerant to anything in milk it is lactose. It is more likely for you to be allergic to casein as it is a protein. Orit could be whey as it is also a protein. My daughter had an anaphylactic milk allergy and the allergist told us this. It's something to do with the protein chain that causes an allergic reaction with milk. Lactose intolerance causes stomach issues, caesin a dn whey allergy can cause stomach skin and respiratory issues that can be mild.

Caesin is a protein just like gluten so it is possible your body is having a similar reaction. I'd cut out all dairy and ask for the milk skin prick test you don't need to be drinking milk for it. That way you can find out if it is a milk allergy

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    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
    • so does it mean a person who carry dq2 or dq8 gene will have high chance to develp celiac disease if they continue to eat gluten or some other stuff trigger it??      
    • I just wanted to share my experience. I started with the endoscopy because I was having symptoms of a hernia + I had a colonoscopy at the same time to test for Chron's. While getting the scope the doctor noticed damage of the small intestine and did biopsies and they came back positive for Celiac disease. We followed up with the necessary blood work to confirm and those all came back like yours, negative, however my genetic testing was positive. So although rare, it is possible to test negative on the blood work and still have damage and be a positive. I don't know why my blood work was off, but I am glad I had the scope first because I would have never known the damage I was doing if I relied solely on the blood work. 
    • You're welcome. Good that you're having the gene test as well. If you DO have the gene(s) then you realize one can present with celiac at any point in life -- any age -- so you would need to be tested like you were, every 2 years in the absence of symptoms. If one develops symptoms then they need to be tested right away instead of waiting for the 2 yr. mark. It's not common, but is possible to test negative on the blood and still have villi damage on endoscopic biopsy. So depending on the results of the gene test....... you might see if your doc will do a endoscopy for you OR you might be what they refer to as something like a pre-celiac where you're not testing positive yet but most likely will soon.
    • Just don't give up.  Good luck and best wishes to you.  Let me know how it's going for you.  Been there, done this.  It ain't fun.
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