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Diagnosed Again

diagnose celiac gluten free

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5 replies to this topic

#1 amitaitos

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Posted 28 July 2013 - 10:54 AM

Hi.

I'm gluten-free for almost 4 months now, and I was diagnosed again.

My first diagnose showed this:

CELIAC SCREEN (Includes TTG and DGP): 236.0 U/ml

TRANSGLUTAMINASE_IgA: 55.90 AU/ml

 

Now I got these results:

CELIAC SCREEN: 10.1 U/ml

TRANSGLUTAMINASE_IgA: 5.85 AU/ml

ENDOMYSIAL Ab: Pos. 1:10

 

I understand the first two are good now.

My question is about the third one, what does it mean?

 

Thanks.

 

Edit: Perhaps this should be in the Post diagnosis forum...

 


Edited by amitaitos, 28 July 2013 - 11:17 AM.

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#2 GottaSki

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Posted 28 July 2013 - 11:47 AM

Hi.

I'm gluten-free for almost 4 months now, and I was diagnosed again.

My first diagnose showed this:

CELIAC SCREEN (Includes TTG and DGP): 236.0 U/ml

TRANSGLUTAMINASE_IgA: 55.90 AU/ml

 

Now I got these results:

CELIAC SCREEN: 10.1 U/ml

TRANSGLUTAMINASE_IgA: 5.85 AU/ml

ENDOMYSIAL Ab: Pos. 1:10

 

I understand the first two are good now.

My question is about the third one, what does it mean?

 

Thanks.

 

Edit: Perhaps this should be in the Post diagnosis forum...

 

You were not diagnosed again...once you have Celiac Disease you have it for life -- that your tTG has dropped significantly in four months means you are on the right track.  It can take time for the tTG, EMA and DGP to all get back to normal.

 

Were there more results from the first panel?  EMA or DGP  

 

The second panel with positive EMA doesn't mean much without comparing previous results.  1:10 is a very low positive result...my guess is it was much higher four months ago and will completely normalize within your first year gluten-free.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#3 amitaitos

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Posted 28 July 2013 - 12:28 PM

You were not diagnosed again...once you have Celiac Disease you have it for life -- that your tTG has dropped significantly in four months means you are on the right track.  It can take time for the tTG, EMA and DGP to all get back to normal.

 

Were there more results from the first panel?  EMA or DGP  

 

The second panel with positive EMA doesn't mean much without comparing previous results.  1:10 is a very low positive result...my guess is it was much higher four months ago and will completely normalize within your first year gluten-free.

 

Thanks. I know that, I didn't mean I was checking if I still had Celiac, just to make sure I have normal results.

There weren't any other results on the first panel.

 

The problem is that, although the results are good, I don't feel so well; I have lower-stomach pains, acne, and bladder problems.

Any ideas?

Thanks


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#4 1desperateladysaved

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Posted 29 July 2013 - 05:51 PM

Hang in there, and keep up the good work!


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#5 GottaSki

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Posted 29 July 2013 - 06:32 PM

Hang in there, and keep up the good work!

 

Ditto :)

 

Don't mean to dismiss...sometimes it simply takes time...four months seems like a very long time, but in the realm of healing from the damage caused from Celiac Disease it really has been a short time.

 

Because your numbers are improving...it certainly looks like you are on the right track.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#6 amitaitos

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Posted 04 August 2013 - 10:56 AM

Thanks for the encouragement!

Hope it'll be ok...


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