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Need Potty Training Help!
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Hello!  I am new here!  We just found out my 3 year old has Celiac Disease about a month ago.  Positive blood tests and positive biopsy, etc.  We have been gluten free for around 5 weeks now. 

 

The reason we even found out she had this was because I could not get her potty trained.  After 7 months I complained to my pediatrician who ran a ton of tests and we are glad she did!

 

Sorry if this gets graphic, but I need help.  So  my daugthter has bowel movements up to 10 times a day.  It is not loose stool, more like the consistency of clay.  We have her on miralax daily because she is just always full of stool otherwise.  However, her going all day long in tiny increments is not ideal either.  She is now in preschool and I had to get a dr's note for her to even attend because they are supposed to be potty trained and she is clearly not.

 

Any ideas?  She is 3 years and 3 months and we have been potty training for 8 months.  It's really just the bowel movements that are the issue, but I am losing it here!  Last night we went to a baseball game and I had to change her 3 times in 4 hours and she does not even fit well on those diaper changing tables anymore!  Will this get better as her system  heals?  or is this just something that comes with the territory? 

 

 

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It's probably going to take her some time to adjust and figure these things out.  If she's been going 10 times a day, she may not have built up the muscular control she needs just yet.  I would encourage you to give her time, but also to practice.  I know it sounds odd, but what helped my daughter most (though she didn't have these particular issues to work through) was being able to go outside on the grass in our back yard.  (Just like our dog, which is why she thought it was so cool.)  Then there was no "oh, I gotta go" or "oh, I just went" panic, and no "hold it! hold it! hold it until you get to the potty!" scare either.

 

Would it be possible/realistic to start to (slowly!) lower the dose of miralax?

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It might be worth talking to your doctor about a bowel management programme. It basically involves set toilet times, for certain amount of time. It helped our daughters deal with my eldest going from being so backed up she was leaking up to 20 times a day, and my youngest who was so impacted she couldn't go. Miralax along with bowel retraining worked. Our ped said there bodies just need retrained to learn the signals. It's funny but my 4 yr old still goes at the set times without being told to! I say we are goin out her reply is I'm just going to the bathroom before we go! She potty trained in 3 days. My horrifically impacted 2 yr old turned round and asked for underwear and that was that. Be patient it will happen, her body has been through a lot, and you'll soon be loving the calls of mom im on the toilet come wipe my bum!

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    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
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      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
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      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
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