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Ok I have a rash on my back, I do believe it to be the rash Celiacs get, name escapes me at the moment. I am going to the Dr. Thursday and well my Dr. is out of town , when he comes back he is booked up for three weeks, my question is, with this rash on my back (Biggest complaint) what do they normally do about that? Just curious? And hoping I don't get put on a steroid ... The rash is on the small of my back and has moved up. now it is on the backs of my arms. Not alot on the backs of my arms but it is there, also a tiny speck on my face. 
 
I don't like this Dr. I am going to, I went to her b4 when I was having stomach pain, she pushed around and said does this hurt or this? And really it didn't hurt any more when she pushed. She told me there was nothing wrong with me. But did blood work , sent me home with some pill I didn't have filled (why should I if theres nothing wrong with me?) (all in my head)  Anyhoo the next day the Drs. office calls and said I have appendicitis , and if I was to have ANY more or worse pain to go to the ER. Other than that go to Dr. so and so... well in a couple days I had my hot appendix out. But yea I don't like her.

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Dermatitis Herpetiformis....or DH for short.

How long have you had this rash?

Is it itchy? A little or a lot?

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Dermatitis Herpetiformis also known as DH. You need a skin biopsy which is done by a Dermatologist. If it's just on your back though I don't think it's DH. That shows on your arms and legs first not your back. DH lesions are more like little (or big) blisters.

 

Mine are various sizes and while in control if I get gluten they stay on my legs. More gluten they start spreading.

 

You can have a rash when you consume gluten but it's not necessarily DH that's why you need the biopsy. Get your primary doctor to refer you to the dermatologist. Once htat's done since you don't like this doctor if you can get one you like, who listens to you, and you can work with.

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Some celiacs, like me, get a rash and oozey little blisters from gluten exposure that is not classic DH.

My GI doc calls them "gluten rashes". 

 

Some people get rashes from OTHER foods or from plants, etc.

 

How long have you had it? 

 

and..(I see Ski has asked this too...great minds lol

Edited by IrishHeart
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Well the last time I went to the Dr. I had it, I just forgot to tell him about it. Thats the appt that got me diagnosed , but I did forget to tell him about it. It is on my arms also.. It has been there a few months. Seems it doesn't show up on a camera that I can take anyway. It is not from Plants. I have lived with allergies all my life!! Believe me!! This feels kinda dry, it itches worse sometimes than others, I do NOT itch it!! I know better!! but anyway. I go to the Dr. tomorrow, hopefully they tell me what it is. going on my arms and stuff so I cannot w8 to see what it is. Thanks for all your posts. 

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Altho I was wondering if it was DH, what they do about it. 

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What does the rash look like?  Take a look in the DH photo bank.

 

A biopsy can be taken for DH....but not all dermatologists do this correctly...and I doubt any primary.

 

I had a red welty type itchy rash for about six weeks prior to dx and it did wax and wain until completely gone --- can't remember how long but it was at least a month or two.

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DH is the skin form of celiac disease, hon and the treatment is the same: G F diet

Some people use Dapsone for it. Check out the DH section on the forum for helpful tips.

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You know .... I did look at alot of pics and have been trying to find something that resembles my rash. I think now , (And I think you were the  one I seen post this GottaSki), Not every symptom is about Celiac. After doing search and search and searches I think it is from Lichen Planus. with Lichen Planus you can have white tongue, a rash, and have problems with your nails .... And Lichen Planus is also a Auto Immune disease , I think everything is kinda because of the Celiac, not absorbing Vitamins and Minerals and such... I talk to this Dr. today. I will come back and let everyone know...... Maby a dermatologist , maby a nutritionist vitamins and minerals will all help. Hopefully all this will be ok in a few more months .. Heck it hasn't even been 2 months since I have been DX'd so I have to be patient. It is just hard when this rash is spreading. And I am having the other issues.  TY all for your help. And TY GottaSki for your words of wisdom!! I am trying to use them!! :)

 

I am feeling better when I am not accidentally Glutened , I learn more and more all the time!! This is a great site!! I appreciate everyones input on any thread I make. I am getting used to cooking Gluten free. Life will get easier cooking as I learn more! 

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If you are gluten free then a dh biopsy will come up negative even if that's what you have. Period.

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Ok :)

Went to Doc :) It was not the Doc I thought it was!! I like this "Guy" Basically everything is from Auto immune from Celiac, my immune system is just low. For my hair, he told me a shampoo to use.. I forgot at the moment what it is called, over the counter. My mouth, a mouth wash prescription , my toe nails I have to let them grow out a bit more then take a biopsy and take it to them. They will have it sent out. It will take 4-6 weeks to get the results from that, then from there he will prescribe some meds for that, you know the stuff ya gotta take for 3 weeks. And the rash I have a lotion to but on 2 times a day. Basically  he said all will get better in time! I asked for a copy of my Celiac test, he was looking on the computer at my test because I said 1st they called and said,  I didn't have celiac, then they called and said I did have it. So he looked and said wow, not only do you have Celiac, but you have the gene.  But then when the girl was copying my test she did it wrong ! I didn't get everything. When I realized that ,she had a line in front of her. So I said for get it! I might call and ask for it again. So thats it in a nut shell.... I have been worried about this stuff ... Now no worries. He told me try not to get stressed out, alot of stuff happens when 1st immune system is not up to par, and 2 when your stressed. So thats it!! Thank you everyone! I was kinda stressed about it all , and there was no need to be. 

 

Part of test I have says this... 

IGA  IMMUNOGLOBULIN (INCLUDED IN IMGB) RESULT 148    FLAG REFERENCE RANGE : 68-378

IGM IMMUNOGLOBULIN       "       "           "        RESULT 87     FLAG REFERENCE RANGE : 60- 263

IGG IMMUNOGLOBULIN        "       "           "       RESULT 867   FLAG REFERENCE RANGE : 694-1618

TRANSGLUTAMINASE IGA REFERANCE RANGE <4.0 (Negative) RESULT <1.2 

 

Test taken at Mayo Clinic Laboratories .... 

 

in my mind all looks well except that last one ??? not sure what it all means 

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Anyone?

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I'm was a bit confused by your post....I didn't see a direct question...more of an update.

What can we help with?

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It was about my test sorry .... I did another post to make it less confusing 

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    • Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
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