Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Blood Test
0

17 posts in this topic

What's the story with the Celiac blood test. Is it accurate? Do GI doctors live by this result?

I had one done in 2011 that showed I had it apparently, and now just had another (new GI) and it shows normal levels.

I'm not sure what to do with that. Should i call my GI and ask him?

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Were you gluten free when the blood test was done?  Did you have the full celiac panel done?  Were you eating normal amounts of gluten?

 

If you were gluten free for a couple years, the negative results would show that you are doing a good job keeping gluten out of your diet.  If you were eating gluten the whole time, that would be strange.

 

D

0

Share this post


Link to post
Share on other sites

What's the story with the Celiac blood test. Is it accurate? Do GI doctors live by this result?

I had one done in 2011 that showed I had it apparently, and now just had another (new GI) and it shows normal levels.

I'm not sure what to do with that. Should i call my GI and ask him?

 

Nate,

That's how celiac testing works. Your recent results reveal that you have the disease in check.

 

This is a very good thing. You want normal levels. This is the goal!

 

You were diagnosed with celiac because you had elevated levels of antibodies that indicate an immune reaction to gluten. 

 

You went gluten free and your gut healed.

 

Follow up testing should reveal normal levels of these same antibodies because it means you have the disease under control by eating a gluten free diet.

 

It does not mean you are cured. You still have celiac and you will always have it. And by following the gluten-free diet, you keep it controlled.

 

You should be thrilled! I'm happy for you. :)

0

Share this post


Link to post
Share on other sites

To add to what Irish said -

 

A body makes antibodies as a response to an invader - like a germ.  Normally, these antibodies attack the germ.  In the case of Celiac, the antibodies attack the intestines.  This may be the body's way of keeping us from digesting something it thinks is an invader.  However, destroying the intestines isn't really a good idea unless it causes people to stop eating the offending invader.

 

 

The blood tests measure the presence of an antibody in your blood.  When a person with Celiac eats gluten, their body makes antibodies that attack the intestines.  When a person with Celiac stops eating gluten, their body stops making the antibodies.  When the body isn't making antibodies, a test looking for the antibodies would be negative.

 

Follow-up blood testing is done to make sure you are following a gluten-free diet and to catch the rare person whose body doesn't stop making the antibodies.

 

Does this answer your question?  No Pop Quiz today but maybe next class. 

 

teacher-smiley-emoticon.gif

0

Share this post


Link to post
Share on other sites

ok, that's what i thought. I just wanted confirmation. I'm trying to figure out why my doctor would want to run the test again. I tried explaining to him that I haven't eaten gluten in over 2 years but he seemed to not hear me.

He wants to diagnose me again for whatever reason, or at least figure out why i'm loosing weight, and have constant stomach pain.

scopes scheduled for the end of the month too.

0

Share this post


Link to post
Share on other sites




ok, that's what i thought. I just wanted confirmation. I'm trying to figure out why my doctor would want to run the test again. I tried explaining to him that I haven't eaten gluten in over 2 years but he seemed to not hear me.

He wants to diagnose me again for whatever reason, or at least figure out why i'm loosing weight, and have constant stomach pain.

scopes scheduled for the end of the month too.

 

 

He might have wanted to make sure you are really gluten-free.  And rule-out refractory sprue. 

0

Share this post


Link to post
Share on other sites

He might have wanted to make sure you are really gluten-free.  And rule-out refractory sprue. 

 

 

Exactly. 

 

He sounds like a thorough doc to me. He is starting by ruling out active celiac disease first with the antibodies test..

 

Glad you are in good hands. Good luck.

0

Share this post


Link to post
Share on other sites

I think the doctors don't always believe us when we say we are gluten-free. I had my blood rechecked after one year and it was still slightly elevated, and now my doctor keeps rechecking it every month or two like he thinks it will suddenly drop if I am more careful.  LOL  :rolleyes: I couldn't be any more gluten-free.

 

Congrats on the negative tests.

0

Share this post


Link to post
Share on other sites

Wanting to run the same test again makes me think of that quote about insanity: doing the same thing over and over again and expecting different results.

0

Share this post


Link to post
Share on other sites

Just another thought, but have you tried avoiding fluoride?

I didn't know that people could actually be allergic to it until someone said something in another thread and I researched more, but gastrointestinal problems are one of the symptoms. Another scientific study linked hypersensitivity to fluoride to those with other autoimmune system or gastrointestinal problems which immediately made me think of everyone with celiac.

Some more reading shows that the sources of fluoride in our current food and water landscape are way broader today than they have been in the past because it is used in pesticides in addition to dental products. I may finally know why anything but spring water upsets my stomach.

0

Share this post


Link to post
Share on other sites

Just another thought, but have you tried avoiding fluoride?

I didn't know that people could actually be allergic to it until someone said something in another thread and I researched more, but gastrointestinal problems are one of the symptoms. Another scientific study linked hypersensitivity to fluoride to those with other autoimmune system or gastrointestinal problems which immediately made me think of everyone with celiac.

Some more reading shows that the sources of fluoride in our current food and water landscape are way broader today than they have been in the past because it is used in pesticides in addition to dental products. I may finally know why anything but spring water upsets my stomach.

uh, no that one has never occured to me.

I make it a point to never drink tap water unless its boiled first. I always drink bottled water. I learned that lesson the hard way from traveling out of the country.

I know its in toothepaste but do they even make a flouride free one? Also, do you have a link to this study? I'm curious, but it seems worse than trying to avoid gluten in all its forms.

 

and I did get all my blood tests back last night. The values were insanley low on all the IG test. So at least i know i'm not getting contaminated from something i haven't thought of.

It's not helping my current level of stomach distress, and kind of concerns me more because i'm not getting much better.

My next step is to the urologist since they found more stones on my ab CT last week.

0

Share this post


Link to post
Share on other sites

Tom's natural toothpaste does make toothpaste without fluoride.  I am sure there are others.  Lately I am using baking soda.  It is cheap!

 

D

0

Share this post


Link to post
Share on other sites

Wanting to run the same test again makes me think of that quote about insanity: doing the same thing over and over again and expecting different results.

 

 

But I am not sure what this quote has to do with this situation at all. This is standard protocol for follow-up care with celiac.

 

And, you want to see a different result: a low antibodies level.

 

He is still having symptoms and the first thing a doctor should do is make sure the antibodies are coming down.

 

Otherwise, he does not have the celiac under control.

But his good test results show that he does. so it may be something else causing his

problems.

 

Nate,

 

before you start thinking that fluoride and toothpaste and water and so many other things are  contributing to your problem, see the urologist

and then, go back to the GI doctor. It's not always about gluten or things we ingest. It could be something amiss in your GI tract that is easily remedied

 

You could simply have other GI issues, relatively common in conjunction with celiac disease (h. pylori, microscopic colitis, gastritis, lack of good gut bacteria.)

'

I'd get checked out by the GI doctor if I were you, but it's your call. Offered  IMHO

0

Share this post


Link to post
Share on other sites

Nate- I don't think I would worry about rare things like flouride intolerance right yet. Sounds like the doc is eliminating the obvious problem first - problems with Celiac and the gluten-free diet. See what the scope says and the urologist. Get that info and take care of the issues they find. Then you can see if you need to look into more obscure problems.

0

Share this post


Link to post
Share on other sites

That was pretty much my plan.

I have an appt on thursday with my urologist then i need to follow up with the scope tests as soon as i have five free minutes and a day off work to do them.

This i'm sure most know is a busy time of the year. i have two kids going back to school right now. ugh

 

Meanwhile i'm taking probiotics and drinking lots of water, also being nice to my stomach and not eating anything to out of control.

Thanks for the good advice everyone.

0

Share this post


Link to post
Share on other sites

There is a slightly elevated risk for hyperparathyroid for celiacs!  (you mentioned stones)

 

Get your calcium checked and glance at

 

www.parathyroid.com

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,695
    • Total Posts
      921,779
  • Topics

  • Posts

    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,701
    • Most Online
      3,093

    Newest Member
    Dtroutmann
    Joined