Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Am I Hurting Myself?
0

13 posts in this topic

I generally avoid all gluten, but once a month I take communion at church. A family friend who also has Celiac says I shouldn't even be eating the communion wafer. I don't know... the wafer is the size of my thumbnail, and it doesn't seen to give me any adverse effects. If so, they're minimal. Can eating that tiny wafer once a month really hurt me?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Definitley. I've heard the longer you go the more sensitive you get. But each person's level of reation is different, so only you can tell if its good or bad.

0

Share this post


Link to post
Share on other sites

You should definitely speak to someone at the church about a gluten free option. Many churches provide this and it may be offered in all sorts of ways depending on the church you attend.

 

Yes, you are hurting yourself. I'm not sure what faith you are, but if you are Catholic you also need to refrain from drinking from a communal cup since it is contaminated by all the wheat eaters.

0

Share this post


Link to post
Share on other sites

The church in the past has taken a pretty firm position about gluten-free wafers insisting that they must contain wheat!  Fortunately, they have finally approved two suppliers (nuns) who bake these.  I think you have to ask your priest and show proof of Celiac Disease and they should be able to accommodate you.

 

Any inflammation is bound to be bad.  I didn't have symptoms prior to my diagnosis and now not only do I have anemia, Marsh Stage 3B intestinal damage, but I fractured a vertebrae in my back for no reason at all (bone scan in two weeks).  So, I'd talk to your priest!

0

Share this post


Link to post
Share on other sites

yes.

ANY amount of gluten sparks the autoimmune response, hon--whether you feel it or not.

 

No Catholic church I know just provides them for you. (not sure if you are Catholic or not)

You'll have to order some from the Benedictine nuns.

 

Other denominations will allow rice cracker hosts (EnerG makes them)

 

http://www.ener-g.com/communion-wafers.html

 

I get my Mom these Vatican-approved wafers they make. She brings one to church in a pyx (little box specifically made for communion wafers) and

gives it to the priest before mass and he places it on the alter for consecration and she goes up and gets it at communion time.  No cross-contamination. :) 

 

She keeps them in the freezer. They suggest that.  I get her enough for 6 months at a time.

 

 

 

http://altarbreadsbspa.com/altarbreads/index.php?main_page=product_info&cPath=3_10&products_id=21

 

here is what a pyx looks like.

 

http://www.chapelgifts.com/index.php?l=product_detail&p=2005

 

I got her one from amazon for @  $12.00.

0

Share this post


Link to post
Share on other sites




But those "Vatican-approved" communion wafers are not gluten free, they're "low gluten". Which wouldn't be good enough for me. I suspect the OP isn't Catholic though since the Catholics have communion at every mass (unless the OP only goes to church once a month). Many mainline protestants (mine included, Presbyterian) only have it once a month.

 

For the OP -- if you are not Catholic then there are gluten free communion hosts, or perhaps you could use bread. You could either bring it with you, or have the church provide it. My church either does all gluten-free bread when we have communion passed through the pews on trays, or they have gluten-free wafers available when we come up front for real bread.

0

Share this post


Link to post
Share on other sites

i go to the United Methodist church and we use bread, so my pastor lets me bring my own bread.  i just bring it in a snack baggie and whip it out when they offer the bread and he blesses it just like the other bread ;)  and we have tiny individual glasses for the 'wine' (juice)  which the lady who is in charge of purchasing buys the 'light' juice - contains aspartame or some artificial sweetener that makes me crazy........  i know how to solve this, though.  donate the juice!  i just keep forgetting.  duh.

0

Share this post


Link to post
Share on other sites

I'm a Baptist. Sorry I didn't mention that in my original post :) .

0

Share this post


Link to post
Share on other sites

Oh that should be no big deal to go talk to the person in charge at your church and be able to bring your own bread/crackers/whatever and have it set aside safely at the beginning and blessed with the rest. At my church (Mormon, but lets face it, its all the same basic principle) we just keep crackers in the Bishop's office that are safe for the intolerances and allergies of everyone that has special dietary needs. They get enough out every Sunday morning and they go on a separate tray from the bread to prevent crumbs and the young man is careful not to touch the crackers after touching the bread.

 

Maybe you could just do something equally easy like bring a small pack of crackers they could keep there rather than having to remember to defrost and bring a slice of bread once a month.  I know if I had to remember to do that I would be toast. LOL

0

Share this post


Link to post
Share on other sites

 

Maybe you could just do something equally easy like bring a small pack of crackers they could keep there rather than having to remember to defrost and bring a slice of bread once a month.  I know if I had to remember to do that I would be toast. LOL

LOLZ!   :lol:

 

then i have visions of me trying to get my other shoe on, wrestling with the frozen bread to get the slices apart, (stuff is falling out of the freezer) breaking off a (way too big) hunk of it and jamming it in my pocket.  all this at a dead run hahahahaaa i am always late for church!  but, by the time they do communion, it's thawed   :)  

0

Share this post


Link to post
Share on other sites

LOLZ!   :lol:

 

then i have visions of me trying to get my other shoe on, wrestling with the frozen bread to get the slices apart, (stuff is falling out of the freezer) breaking off a (way too big) hunk of it and jamming it in my pocket.  all this at a dead run hahahahaaa i am always late for church!  but, by the time they do communion, it's thawed   :)  

 

But is it still in your pocket?

0

Share this post


Link to post
Share on other sites

Yes!! Watch this video. Should explain the magnitude of how harmful ANY amount of gluten is.

1

Share this post


Link to post
Share on other sites

Yes!! Watch this video. Should explain the magnitude of how harmful ANY amount of gluten is.

Oh my god.

 

I need to show this to...lots of people. 

 

I don't go to church often, but when I do, it's a Unitarian church, but Mister's family are all like hardcore old school Italian Catholics. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined