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Seriously, That Doesn't Make Sense


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32 replies to this topic

#1 Renegade

 
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Posted 02 August 2013 - 02:44 PM

I was fine my whole life, I didn't go throw any misdiagnostic except for some constipation that faded off but I wasn't bloated, I wasn't unable to walk, I had no reason to seek a doctor, then 3months ago I started job hunting as I was under unemployment and it is when it all came to crap. I was doing good, I could smoke weed, I could drink coffee, I could exercise, for Christ shake I could BREATHE AND WALK, I was getting smarter, I had desires, goals, I could enjoy a freaking quiet time by myself and I would feel great, I could digest anything.

 

Then 1 month passed, in May, bloating,cramps, fatigue but nothing unbearable to this point, I could still enjoy all I was doing, notice I am not giving the slightest crap about giving up wheat or bread, I find the gluten-free alternatives better.

 

Then goes second month July, Everything mentioned but worsen and with nausea and incredible hunger, I would be extremely hungry and extremely bloated at the same time, so my doctor suggested I try cutting Gluten.

 

Third month,now I have been 1 month gluten-free and I can't digest anything without feeling bloated, there are just some stuff that are tolerable and pass easier but I get bloated C, I never get D. Which I'm terribly bloated with cramps right now like if I had been glutened, I DID NOT, or maybe it was the clean spoon I used in my own apartment that got me this bad, you know cross-contamination that can't even been seen by your eye.

 

How the hell can some of you still be alive at 50r old going undiagnosed for YEARS?! Shouldn't gluten have made you unable to function and give you bleeding all over your digestive track and permanent physical damage?

 

I am 23, I was fine all my life and in 2 MONTHS , 1 GLUTEN FREE, I am at the worst I ever felt, I feel like I am 80, I am not getting better, I thought I was, yeah because 2 weeks ago I slept 14hours and was beyond exhausted got glutened on that even same day and I felt like crap,

Then 5 days later I had a burst of energy and felt I could be my normal self again,nope, got worse, got better, worse and better and now that's just shit.

 

All I ever did was take care of my HEALTH, I can't imagine how worse this would be had I neglect it, I just don't even wanna think about how worse this could be.

 

All I am good for is sit there and feel bloated now, I take probiotics,vitamins I'll get enzymes when I can afford the cash. I couldn't careless if I can't go to a restaurant, eat out, and get excluded to every events from being gluten intolerance, my health is my only concern.

 

I was thinking, surely if 3 months ago I could do everything I wanted, then 3 months gluten free and I should get SOMEWHAT okay? Well 1 month gluten-free and it just get worse is this how nature intended healing to be? How the hell would it ever be possible to heal without supplements,probiotics,enzymes in a world where you can't even use your body. Surely nature would kill you.

 

My question is, how in the matter of 2 MONTHS did I screw my entire life up? I cannot do anything but be a zombie, 2 MONTHS and you guys go like this undiagnosed for 30years? I am so getting pissed with this.


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#2 shadowicewolf

 
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Posted 02 August 2013 - 02:50 PM

You learn to adapt. I had issues for about... 9 or so years. If it means knowing where all the bathrooms are in a building, so be it.


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#3 kareng

 
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Posted 02 August 2013 - 03:04 PM

Maybe Celiac isn't the issue? Maybe you contracted a parasite? Or some other intestinal issue?
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Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
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#4 Renegade

 
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Posted 02 August 2013 - 03:15 PM

Maybe Celiac isn't the issue? Maybe you contracted a parasite? Or some other intestinal issue?

But I have all the symptoms of celiac, I feel bad when eating gluten product and I get some other intolerance but they dont affect me as incredible as gluten, I also felt all that better feeling rush from cutting gluten and now its up and down. I've cut all grains and it got worse from there, when I was eating rice, rice noodle , honey, corn bread, corn cereal, going all out on nightshade, i was WAY better, mind you, I was crappy as hell, but comparing it to now...crappy is not enough of a meaningful word.

 

I had no reaction to those food NONE AT ALL but I cut them because everyone told me how fad my diet was so I added a ton of veggies, BOOM bloated,fatigue, can't digest crap and breathing got worse. I could do coffee fine on my gluten-free corn,bread,rice no veggie diet.

 

I was happy when I learned It could be gluten, because back when I learned it, I could do everything I mentioned so I thought it would only improve fast, everything went downhill after I cut Gluten.


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#5 bartfull

 
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Posted 02 August 2013 - 03:17 PM

My Mom wasn't diagnosed until she was in her 50's and I believe she had it since birth. She DID have permanent damage. Her villi were not just flattened, they were essentialy GONE. They grew back somewhat, but not to normal levels. She had to have vitamin injections monthly because she couldn't absorb enough from her food.

 

All my life I thought Mom was a hypochondriac. She was ALWAYS complaining she didn't feel good. Yet she sewed our clothes, cooked our food (and all of it from scratch because my Dad had such bad allergies he couldn't handle preservatives and artificial colorings and flavorings), canned and froze all of the veggies that my Dad grew in his GIGANTIC garden, nursed us when we were sick, made, decorated, and sold beautiful wedding cakes, crocheted sweaters and afgans and the like and gave them as gifts and sold the rest, listened to all of our troubles, and through it all she felt TERRIBLE!  

 

After she was diagnosed and went gluten-free and soy-free, as long as she got her shots, she felt GOOD. But it didn't happen overnight. That's why this has seemed relatively easy for me. I saw what SHE went through. I think I was only celiac for about 12 years before figuring it out. I'M still not all the way back, but I'm so much better than I was and I know it's just going to keep getting better.

 

Patience. :)


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#6 bartfull

 
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Posted 02 August 2013 - 03:20 PM

Hon, I never ate many veggies before either. When I started eating a lot of them I had terrible trouble. They are hard to digest compared to the burgers and fries I used to live on. So I just added a few, and I only ate them in small amounts at first.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#7 Renegade

 
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Posted 02 August 2013 - 03:25 PM

Hon, I never ate many veggies before either. When I started eating a lot of them I had terrible trouble. They are hard to digest compared to the burgers and fries I used to live on. So I just added a few, and I only ate them in small amounts at first.

How are they hard to digest? They are the truest nature form, how could it be harder then the bad stuff.


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#8 GottaSki

 
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Posted 02 August 2013 - 03:30 PM

Removed -- answer sounded like I was looking for sympathy...I'm not.

 

 

 

Here is a better answer.

 

Eat whole foods, talk to your doctor and be patient.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#9 GottaSki

 
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Posted 02 August 2013 - 03:31 PM

How are they hard to digest? They are the truest nature form, how could it be harder then the bad stuff.

 

Any food can be difficult to digest -- especially if you do have Celiac Disease -- any food -- healthful or not.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#10 Renegade

 
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Posted 02 August 2013 - 03:34 PM

Why would your body get sicker when "healing" leaving you unable to do any physical work, again that make no sense in a evolution kind of way. I could do and tolerate much better before going gluten-free.


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#11 bartfull

 
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Posted 02 August 2013 - 03:39 PM

Vegetables, especially raw veggies like salad greens, have so much fiber they are hard to digest. You know how corn usually shows up the next morning in the bowl? Salads used to be the same way for me - I wasn't digesting them at all - not the lettuce, nor the carrots, nor...well, you get the idea.

 

And the reason your body gets "sicker" while you are healing is that all of its energy is going INTO that healing, leaving you with nothing left for day to day life activities.


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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#12 Renegade

 
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Posted 02 August 2013 - 04:00 PM

Vegetables, especially raw veggies like salad greens, have so much fiber they are hard to digest. You know how corn usually shows up the next morning in the bowl? Salads used to be the same way for me - I wasn't digesting them at all - not the lettuce, nor the carrots, nor...well, you get the idea.

 

And the reason your body gets "sicker" while you are healing is that all of its energy is going INTO that healing, leaving you with nothing left for day to day life activities.

Yea I feel if I could just rest and eat all day long the healing would be a joke, it's so bad I didn't get to do that when I was unemployed, the problem is I NEED energy, I can't even focus at work properly and I must, my body should allow me some energy left to survive and function instead its forcing me to rest which I can't.

 

You should have seen how hard I used to push my body, taking some time 600mg of caffeine a day, coffee, peanut butter and bread, oatmeal and exercise. You could think that's too much but I could really just push myself so easily, I just can't grasp how it went downhill so fast, I mean it's not like i could feel worse as years went by, I was feeling awesome and then I looked for a jobs and got really stressed out and the whole process took 2 months and boom I was done for, can't do anymore.

 

I'm saying there was no transition, I just felt like shit out of no where. It's like I went from a totally fine person to a 60yr old celiac.


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#13 kareng

 
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Posted 02 August 2013 - 04:20 PM

Celiac symptoms are also symptoms for many other illnesses. Because this came on so suddenly and it is getting worse on a gluten-free diet, I would not limit my search to just Celiac ( if it were me). Yes, I know that won't be a popular stance.
  • 1

santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#14 GottaSki

 
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Posted 02 August 2013 - 04:33 PM

Celiac symptoms are also symptoms for many other illnesses. Because this came on so suddenly and it is getting worse on a gluten-free diet, I would not limit my search to just Celiac ( if it were me). Yes, I know that won't be a popular stance.

 

I second.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#15 psawyer

 
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Posted 02 August 2013 - 04:34 PM

Celiac symptoms are also symptoms for many other illnesses. Because this came on so suddenly and it is getting worse on a gluten-free diet, I would not limit my search to just Celiac ( if it were me). Yes, I know that won't be a popular stance.

I agree as well.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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