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New Here...is Gluten My Problem?

symptoms gluten

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35 replies to this topic

#31 nvsmom

 
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Posted 22 August 2013 - 09:15 AM

I think some are helpful. I have friends who see them and it works for them.   I've never been myself so it can't really comment.


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"Acceptance is the key to happiness."

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Celiac - June, 2012
Hypothyroid - August, 2012

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#32 Jake'sMom87

 
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Posted 23 August 2013 - 02:43 PM

Just an update if anyone is curious. I got the results for my SED rate and ANA. ANA was negative and SED was 11 with a range of 0-20 so normal. My doctor suspects now that I may have Fabry Disease. I had not heard of this one so I googled it and bam sounds like it could be true. So I go next week to have my petechiae reviewed and possibly the blood tests done. While this is definitely not what I hoped for I am anxious to have answers so I can cope and hopefully find ways to feel better. If anyone has heard of this or has anything to share I would love to hear it! If these tests come back negative I am going to more or less demand that they run the celiac tests on me.

Thanks for listening as always.

Robin
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#33 w8in4dave

 
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Posted 23 August 2013 - 05:31 PM

At least they don't think your crazy! 


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Recovering Gluten Eater 

DX'd June 17th 2013


#34 w8in4dave

 
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Posted 23 August 2013 - 05:36 PM

It sounds really complicated!! Have never heard of it before!!Good luck!! Hop you find your answers


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Recovering Gluten Eater 

DX'd June 17th 2013


#35 Jake'sMom87

 
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Posted 24 August 2013 - 02:21 PM

Yes at least they don't think I'm crazy that's true!
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#36 w8in4dave

 
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Posted 24 August 2013 - 06:03 PM

You know I have 1 doctor! I was going to him complaining about rest room problems and about no energy. Only time I have energy  is if I was running to the toilet. after that I had no energy to do anything eles. I mean really ??? Run to the restroom 10/20 times a day? not to urinate unless it was convenient ... and he says ... well I don't think you have Celiac.. What ever !! 

 

The moral is :) at least your doc is looking for other things .. not saying well .. um no I don't think so.. Making you lie to him to get a blood test!! I wish all the best!! Just keep pushing for what ever you have to, to find out your problem .. Never give up!! Good luck!! Huggs and prayer your way! :) 


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Recovering Gluten Eater 

DX'd June 17th 2013






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