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Raising Vitamin D Levels?

vitamin d

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16 replies to this topic

#1 TessTess

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Posted 04 August 2013 - 12:57 PM

Hi!
I've been diagnosed for a long time and its well controlled. The last 3.5 years I've been pregnant and/or breastfeeding, 2 c-sections and my body is struggling a little. I'm having trouble with vitamin D levels, my new doctor (like my old doctor) just keep telling me to take 1000iu of vitamin D, but I already do plus good food, however my numbers are about 20 and I want them much higher, especially as my 10 month old still nurses regularly and isn't eating a huge amount yet.

Anyone know more about what sort if levels I can take?
Thank you!
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#2 notme!

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Posted 04 August 2013 - 01:06 PM

hi, tess - my doc has me on 50,000 iu 1x per week - mine was at 24 - i'm going for a visit on wednesday, so i am curious how much they have gone up (i hope!) certainly makes a big difference and i was surprised at how low i was.  i'm going to ask if i can take a lower dose once per day (hard to remember once a week and i have a brain like a seive lolz) and also see if he would prescribe me something that isn't delivered in soybean oil.  i'll let you know if the 1x per wk mega-dose worked (on wednesday)  :)


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

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#3 1desperateladysaved

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Posted 04 August 2013 - 01:39 PM

I take 5 drops of liquid  5,000 d3 daily.  I am up from 3 drops which put me at borderline normal.

 

 

D


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#4 greenbeanie

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Posted 04 August 2013 - 03:20 PM

My level was 29 two months ago, and I was able to raise it to 50 in just eight weeks by taking 4000 IU of d3 daily. I went gluten-free shortly after the first vitamin level test. I'm not sure how quickly people's levels usually rise, but that seemed like a good increase to me in such a short time! My doctor gave me the ok to take the 4000 IU daily, though she also said that 29 was a fine level and I didn't really need to raise it (so I'm not sure how up on d levels she actually is).
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Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosis still unclear after extensive testing: Atypical wheat allergy, severe NCGI, or false negative celiac tests? Doctors disagree.Gluten challenge caused acute gastritis, esophagitis, and angioedema that lasted 4 months and was eventually determined to be a sulfite allergy. Gluten light for 15 years, then gluten free since June 2013.
Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Improved greatly within six months of going gluten-free.


#5 tarnalberry

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Posted 04 August 2013 - 06:09 PM

Sun!
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
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#6 frieze

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Posted 04 August 2013 - 06:41 PM

Sun!

In moderation!  lol   15-20 min a day.   and supplement with D3, not D2.


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#7 TessTess

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Posted 04 August 2013 - 09:23 PM

Thanks everyone. I was taking prenatals, fish oil and getting midday sun for 20 minutes when I was below 20, then got up to 29 on prescription vit D, but the doctors don't seem as worries about my levels as I am, but I know breastfeeding especially I really need to get them up (and hope some of my joint pain disappears). Anyway I have been researching also on the vitamin d council website and will take 5000ui a day. Thanks everyone.
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#8 powerofpositivethinking

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Posted 05 August 2013 - 05:59 AM

I'm glad you're questioning your doctors.  I'm also taking 50000 ius once a week right now and will get it retested soon.  I had a level of 25 in February this year and supplemented with 3000 ius a day and had it retested last time in June and it went to a 28.  The Vitamin D Council recommends a level of 50.  http://www.vitamindc...-for-vitamin-d/

 

I should've asked...are you gluten free already?  Also have you had your cholesterol tested lately?  Even with sunlight exposure, if you have low cholesterol your body will be unable to create Vitamin D since it is made from cholesterol, and low cholesterol is some people's only indicator of having celiac. 

 

good luck!

 

 

Thanks everyone. I was taking prenatals, fish oil and getting midday sun for 20 minutes when I was below 20, then got up to 29 on prescription vit D, but the doctors don't seem as worries about my levels as I am, but I know breastfeeding especially I really need to get them up (and hope some of my joint pain disappears). Anyway I have been researching also on the vitamin d council website and will take 5000ui a day. Thanks everyone.


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Diagnosed with celiac disease, fat malabsorption, severe pancreatic insufficiency (taking Creon) and vitamin K and D deficiency

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#9 1desperateladysaved

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Posted 05 August 2013 - 10:28 AM

Sun!

I garden 3-4 hours a day, but my levels were still low.  I live in Minnesota, so perhaps the northern rays are not so strong.  .

 

I asked if the body must process the Vitamin D through the small intestine, but it doesn't.  I have a beautiful tan, but still need to supplement my vitamin D!


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#10 greenbeanie

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Posted 05 August 2013 - 11:39 AM

I also spend a lot of time outdoors and it didn't raise my D level, which was puzzling. But I had low cholesterol too (not shockingly low, but 20 points below the low-end value of the reference range, despite eating meat and quite a bit of cheese). I never realized they could be connected! My doctor applauded the low cholesterol as if it were a good thing.

It is amazing how all the weird and unexplained pieces keep falling into place...People here are seriously better at making sense of stuff than all the doctors I've ever see. Wish I'd found this site years ago!
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Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosis still unclear after extensive testing: Atypical wheat allergy, severe NCGI, or false negative celiac tests? Doctors disagree.Gluten challenge caused acute gastritis, esophagitis, and angioedema that lasted 4 months and was eventually determined to be a sulfite allergy. Gluten light for 15 years, then gluten free since June 2013.
Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Improved greatly within six months of going gluten-free.


#11 TessTess

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Posted 05 August 2013 - 11:51 AM

I have cholesterol issues (slightly high, good and bad) and that's barely touching animal products, just genetics (from the non celiac side also) something I try and control by a very strict diet so I can breastfeed.
Anyone recommend a vitamin D3 drops?
Thanks for all the posts!
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#12 notme!

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Posted 05 August 2013 - 12:48 PM

winner!  lolz - is that what your doc recommended, tess?

 

In moderation!  lol   15-20 min a day.   and supplement with D3, not D2.

my doc has me on d2 - why is d3 better?  i'm going on wednesday, trying to get all my ducks in a row (before i go see my quack LOLZ couldn't resist that one - he's really not a bad doc.  he just needs fine-tuning lolz)  what are the drops in or is it just 'straight' vitamin d3?


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#13 TessTess

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Posted 05 August 2013 - 01:01 PM

No Doctor hasn't replied yet to my email, I researched it on the vitamin D council website
http://www.vitamindcouncil.org/
They said (as did my lactation consultant) D3 is better, I can't remember why. I also know its absorbed better with fish oil, so I take them together plus trying to eat wild salmon often amongst other things. I give my young children D3 yum drops by jarrow.
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#14 notme!

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Posted 05 August 2013 - 01:08 PM

thanks -- i think i will take a look-see at that website :)


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#15 frieze

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Posted 05 August 2013 - 02:45 PM

I garden 3-4 hours a day, but my levels were still low.  I live in Minnesota, so perhaps the northern rays are not so strong.  .

 

I asked if the body must process the Vitamin D through the small intestine, but it doesn't.  I have a beautiful tan, but still need to supplement my vitamin D!

Once you tan, you reduce the amount of vit D that you make.  also, don't shower/bathe immediately after sunning.


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