Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Raising Vitamin D Levels?

TessTess

By TessTess
in Related Issues & Disorders

Recommended Posts

TessTess Newbie
TessTess
Posted

Hi!

I've been diagnosed for a long time and its well controlled. The last 3.5 years I've been pregnant and/or breastfeeding, 2 c-sections and my body is struggling a little. I'm having trouble with vitamin D levels, my new doctor (like my old doctor) just keep telling me to take 1000iu of vitamin D, but I already do plus good food, however my numbers are about 20 and I want them much higher, especially as my 10 month old still nurses regularly and isn't eating a huge amount yet.

Anyone know more about what sort if levels I can take?

Thank you!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

hi, tess - my doc has me on 50,000 iu 1x per week - mine was at 24 - i'm going for a visit on wednesday, so i am curious how much they have gone up (i hope!) certainly makes a big difference and i was surprised at how low i was.  i'm going to ask if i can take a lower dose once per day (hard to remember once a week and i have a brain like a seive lolz) and also see if he would prescribe me something that isn't delivered in soybean oil.  i'll let you know if the 1x per wk mega-dose worked (on wednesday)  :)

Link to comment
Share on other sites
1desperateladysaved Proficient
1desperateladysaved
Posted

I take 5 drops of liquid  5,000 d3 daily.  I am up from 3 drops which put me at borderline normal.

 

 

D

Link to comment
Share on other sites
greenbeanie Enthusiast
greenbeanie
Posted

My level was 29 two months ago, and I was able to raise it to 50 in just eight weeks by taking 4000 IU of d3 daily. I went gluten-free shortly after the first vitamin level test. I'm not sure how quickly people's levels usually rise, but that seemed like a good increase to me in such a short time! My doctor gave me the ok to take the 4000 IU daily, though she also said that 29 was a fine level and I didn't really need to raise it (so I'm not sure how up on d levels she actually is).

Link to comment
Share on other sites
tarnalberry Community Regular
tarnalberry
Posted

Sun!

Link to comment
Share on other sites
frieze Community Regular
frieze
Posted

Sun!

In moderation!  lol   15-20 min a day.   and supplement with D3, not D2.

Link to comment
Share on other sites
TessTess Newbie
TessTess
  • Author
Posted

Thanks everyone. I was taking prenatals, fish oil and getting midday sun for 20 minutes when I was below 20, then got up to 29 on prescription vit D, but the doctors don't seem as worries about my levels as I am, but I know breastfeeding especially I really need to get them up (and hope some of my joint pain disappears). Anyway I have been researching also on the vitamin d council website and will take 5000ui a day. Thanks everyone.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


powerofpositivethinking Community Regular
powerofpositivethinking
Posted

I'm glad you're questioning your doctors.  I'm also taking 50000 ius once a week right now and will get it retested soon.  I had a level of 25 in February this year and supplemented with 3000 ius a day and had it retested last time in June and it went to a 28.  The Vitamin D Council recommends a level of 50.  Open Original Shared Link

 

I should've asked...are you gluten free already?  Also have you had your cholesterol tested lately?  Even with sunlight exposure, if you have low cholesterol your body will be unable to create Vitamin D since it is made from cholesterol, and low cholesterol is some people's only indicator of having celiac. 

 

good luck!

 

 

Thanks everyone. I was taking prenatals, fish oil and getting midday sun for 20 minutes when I was below 20, then got up to 29 on prescription vit D, but the doctors don't seem as worries about my levels as I am, but I know breastfeeding especially I really need to get them up (and hope some of my joint pain disappears). Anyway I have been researching also on the vitamin d council website and will take 5000ui a day. Thanks everyone.

Link to comment
Share on other sites
1desperateladysaved Proficient
1desperateladysaved
Posted

Sun!

I garden 3-4 hours a day, but my levels were still low.  I live in Minnesota, so perhaps the northern rays are not so strong.  .

 

I asked if the body must process the Vitamin D through the small intestine, but it doesn't.  I have a beautiful tan, but still need to supplement my vitamin D!

Link to comment
Share on other sites
greenbeanie Enthusiast
greenbeanie
Posted

I also spend a lot of time outdoors and it didn't raise my D level, which was puzzling. But I had low cholesterol too (not shockingly low, but 20 points below the low-end value of the reference range, despite eating meat and quite a bit of cheese). I never realized they could be connected! My doctor applauded the low cholesterol as if it were a good thing.

It is amazing how all the weird and unexplained pieces keep falling into place...People here are seriously better at making sense of stuff than all the doctors I've ever see. Wish I'd found this site years ago!

Link to comment
Share on other sites
TessTess Newbie
TessTess
  • Author
Posted

I have cholesterol issues (slightly high, good and bad) and that's barely touching animal products, just genetics (from the non celiac side also) something I try and control by a very strict diet so I can breastfeed.

Anyone recommend a vitamin D3 drops?

Thanks for all the posts!

Link to comment
Share on other sites
notme Experienced
notme
Posted

winner!  lolz - is that what your doc recommended, tess?

 

In moderation!  lol   15-20 min a day.   and supplement with D3, not D2.

my doc has me on d2 - why is d3 better?  i'm going on wednesday, trying to get all my ducks in a row (before i go see my quack LOLZ couldn't resist that one - he's really not a bad doc.  he just needs fine-tuning lolz)  what are the drops in or is it just 'straight' vitamin d3?

Link to comment
Share on other sites
TessTess Newbie
TessTess
  • Author
Posted

No Doctor hasn't replied yet to my email, I researched it on the vitamin D council website

Open Original Shared Link

They said (as did my lactation consultant) D3 is better, I can't remember why. I also know its absorbed better with fish oil, so I take them together plus trying to eat wild salmon often amongst other things. I give my young children D3 yum drops by jarrow.

Link to comment
Share on other sites
notme Experienced
notme
Posted

thanks -- i think i will take a look-see at that website :)

Link to comment
Share on other sites
frieze Community Regular
frieze
Posted

I garden 3-4 hours a day, but my levels were still low.  I live in Minnesota, so perhaps the northern rays are not so strong.  .

 

I asked if the body must process the Vitamin D through the small intestine, but it doesn't.  I have a beautiful tan, but still need to supplement my vitamin D!

Once you tan, you reduce the amount of vit D that you make.  also, don't shower/bathe immediately after sunning.

Link to comment
Share on other sites
frieze Community Regular
frieze
Posted

winner!  lolz - is that what your doc recommended, tess?

 

my doc has me on d2 - why is d3 better?  i'm going on wednesday, trying to get all my ducks in a row (before i go see my quack LOLZ couldn't resist that one - he's really not a bad doc.  he just needs fine-tuning lolz)  what are the drops in or is it just 'straight' vitamin d3?

D2 is the plant form, D3 is the usable animal form. 

Link to comment
Share on other sites
frieze Community Regular
frieze
Posted

No Doctor hasn't replied yet to my email, I researched it on the vitamin D council website

Open Original Shared Link

They said (as did my lactation consultant) D3 is better, I can't remember why. I also know its absorbed better with fish oil, so I take them together plus trying to eat wild salmon often amongst other things. I give my young children D3 yum drops by jarrow.

hopefully you have read on the vit D site about the accusations of child abuse related to osteomalacia/fractures in breast fed infants of D def moms?m

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748
    TT24
    Newest Member
    TT24
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      14 year old with Celiac & EOE still suffering...

      By Scott Adams · Posted

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...