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Dairy Allergy And Now Calcium Supplements


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41 replies to this topic

#16 notme!

 
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Posted 20 August 2013 - 02:29 PM

could you not ask the people on the milk allergy website?  maybe they would have a better insight - i, personally, do not have a milk allergy, so i have zero knowledge about what products are safe for your milk allergy.  apparently, the 600-800 people who frequent this site at all times don't know either, or you would have an overabundance of answers.  you're asking the 'apple' web forum what they know about 'oranges'  - we know a little, i suppose, as it relates to celiac but not all and not as much as you do.  you have done a bunch of research, evidently, maybe you should share it with people it would help, like milk allergy sufferers?  

 

if you were my kid, i would tell you to just take it.  you'll find out  ;)  but you are not.  use your best judgement :)


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arlene

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#17 seraphim

 
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Posted 20 August 2013 - 02:38 PM

Yeah the thing was I didn't post on here to argue about allergies but plenty of people here have to stay completely away from dairy due to intolerance anyhow so i thought it might be a place for some useful info. The other people I talked to aren't on a forum..I can't find any good allergy forums....it's just people i know with milk allergy but they don't have the umpteen other issues we all deal with on here. Plus I've seen a few people on here say they have allergies as well. Though some seem to confuse with intolerance. I didn't come in here looking to pick apart my milk allergy I just figured lots of people can't have dairy here....why not ask what they think *shrug* I mean I've seen people who have wheat allergy and not celiac talk on here so....why would I think it would be somehow annoying for me to ask this? I mean......gosh..


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#18 notme!

 
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Posted 20 August 2013 - 02:57 PM

"gosh, tina!  eat a quesadilla!"  loved that movie :)


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#19 StephanieL

 
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Posted 20 August 2013 - 03:07 PM

I wasn't trying to pick apart your allergy. From what you are describing, it isn't an allergy.  RAST testing isn't very accurate.  Did your allergist prescribe an Epi Pen for you?

 

Also, it's more common for someone with a beef allergy to be allergic to dairy but not as strong a correlation the other way around.


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#20 seraphim

 
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Posted 20 August 2013 - 03:09 PM

mmmm quesadilla i'd give anything to have one.

 

 

I do have an epipen. What about the swelling on my foot? How are we ever suppose to know when there is a true allergy then? And why is a doctor from Mt. Sinai giving me so called bad advice?


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#21 seraphim

 
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Posted 20 August 2013 - 03:10 PM

Forgot to add I wasn't saying you were picking it apart. That's more about the topic getting off track when it's not what i asked about and being told i don't know the difference between allergy and intolerance when i DO know they are not the same.

 

I have a complicated case of hypothyroidism that i'm trying to sort out and i've heard that can lead to allergies that may go away after treatment so someday i plan to retest and see what it says. Right now i'm a 3.


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#22 StephanieL

 
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Posted 20 August 2013 - 04:25 PM

I have NEVER in my time in allergy land ever heard of hypo being under control making allergies go away.  I would love to see any info you have on this!!!  That would be fantastic!  My DS has Celiac, hashis and food allergies and a few other conditions as well. I was not implying your Dr. is giving you bad info (I wasn't there so I don't know what was discussed or your case).  I DO know that allergy testing is only accurate about 50% of the time and the only true way to dx it is with a food trial/history of a significant reaction.  As for the info, I know many people who see many allergists who are at very well known hospitals and still giving bad information.  Our first 3 allergists had us avoiding things my DS had been eating with no issue based in testing alone. These were "great" Dr's who were not up to speed on the current research. I am not implying I know more than your Dr. all I'm saying is that not all Dr's are as current as they need to be.

 

I won't continue though as you said, this is off topic and not what you were asking about anyway.  Good luck figuring things out.


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#23 seraphim

 
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Posted 20 August 2013 - 04:34 PM

No you might as well go ahead...the thread is so derailed now and i'm not wondering about the supplement anymore anyhow.

I can try and find you the info but Gena Lee Nolin's Thyroid Sexy facebook page mentioned the allergy thing quite a few times and the crowd over there is pretty knowledgeable so i figured they knew what they were talking about. I mean...IF the allergy was caused by the hypothyroid that is. All I know is I did have horrible cramping. I did have swelling after stepping on milk a different time. THEN I found out milk is an apparent allergy i have so it made sense....i don't know why i should doubt this? Can you direct me to some recent research?


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#24 seraphim

 
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Posted 20 August 2013 - 05:03 PM

Can't find it on the facebook page now except allergies being in this long list and it's differentiated from intolerance: https://www.facebook...375387382480223

I saw it mentioned in posts before too. Also found this where someone mentioned reading an article about it themselves: http://www.medhelp.o...ies/show/677275


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#25 StephanieL

 
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Posted 20 August 2013 - 05:14 PM

http://www.niaid.nih...inespatient.pdf

 

This is the most recent (I believe). It talks about when to test and so on. 


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#26 seraphim

 
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Posted 20 August 2013 - 05:38 PM

Just opened the link..about to read but wanted to say now that i think about it.....i used the washroom while at the allergists as did my husband and in both the bathrooms we were in they had air freshener...this is a place for asthma and allergies. When we went into her office for consultation..even though the sign said no food or drink...there were crumbs on our chairs. Nothing said about perfumes and a woman came in bathed in it. The nurse who took my blood pressure had a strong mint gum she was chewing. Would these be bad signs? Because we didn't know what to think.


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#27 seraphim

 
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Posted 20 August 2013 - 06:33 PM

Interesting read I gotta say but scary confusing. I don't know what to think. Either way i should stay away from milk at least for now IF it's an intolerance but...between that cramping and the foot swelling. What do you make of that? I gave up dairy a year ago because i figured it might be a problem...was dizzy etc. But no cramping at that time not until i tried it again.

 

I was also going to get skin pricked with lip gloss that caused me issues to see if i am actually allergic to it...i assume that's different from pricking for food though?


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#28 kareng

 
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Posted 20 August 2013 - 07:00 PM

http://www.niaid.nih...inespatient.pdf
 
This is the most recent (I believe). It talks about when to test and so on.


Thanks for that link. A very good resource. I'm learning a lot from it.
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#29 notme!

 
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Posted 20 August 2013 - 07:42 PM

Just opened the link..about to read but wanted to say now that i think about it.....i used the washroom while at the allergists as did my husband and in both the bathrooms we were in they had air freshener...this is a place for asthma and allergies. When we went into her office for consultation..even though the sign said no food or drink...there were crumbs on our chairs. Nothing said about perfumes and a woman came in bathed in it. The nurse who took my blood pressure had a strong mint gum she was chewing. Would these be bad signs? Because we didn't know what to think.

you probably need a good in-patient evaluation.   has anyone else suggested this to you?   in a controlled environment, where you won't come into contact with all these contaminants.


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#30 seraphim

 
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Posted 20 August 2013 - 08:35 PM

No they haven't. Seems ridiculous anyone would have to go to such lengths I dunno why they couldn't just run the place better than that...it's an allergy specialist I mean...SHEESH! I went to see her originally about my lipgloss reaction but she decided to send me for food and environmental panels and while i was in the waiting room one of my reactions happened. It could have been a coincidence I guess because that happened on and off for weeks even when i was at home. But there was a lot coming our way in there I have to say. Because I have a possible salicylate intolerance they exist in smells as well and at the time i thought the red apple lipstick lip gloss may have overflowed my load that my body could handle and so i was reacting to everything. Now I'm not sure. No idea.


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